Having seen it from many angles, I was a cancer patient, had operation and chemo, then did hospital car service 3 days a week for 10 years e, taking patients from home to hospital and therefore also saw many care homes , not on show, but in their ways of working tc etc. Had some really wonderful nursing from many people and one or two that I would not want to be in their wards again, but I would not be browbeaten by their petty attitudes. Rules for safety and medicine etc but I would not be told when to stop reading or to go to sleep etc. If I was unable to sleep I chose to read, making sure my light did not disturb others. I did not wish to lie in the dark in pain and just think! So you do see all sorts of things. Whilst my hair is now white and I am physically having mobility problems and so forth my brain is still working full time. So long as I am able I am living in my own place and so long as I dont make problems for other peoples intend to stay like this. Music and Art are my life, I want to listen to Bach with no background noise etc etc. Have no intention of staying in hospital for any longer that is absolutely necessary. Quality of life is far more important to me than length, and I make my own choices. If I was unhappy about the behaviour of the staff I would do my best to report them via the patient connection and so forth, and insist on leaving and would sign a waiver to get out. Remember the great poem Warning by Jenny Joseph, which begins
When I am old , I shall wear purple
with a red hat that doesnt go and dosent suit me
Well that is the way I want to carry on., and intend to do so!
On occasions I have spoken up about situations that needed to be checked on, I have also taken older friends and a member of my choir and we have agreed t on telling a white lie , that I shall speak as their niece. This was when they had no relative alive or local, and were not getting the informtion they needed, or where being patronised or talked down to. This did allow them to find out information they should have been given, but felt that they had been fobbed off etc. So I think we all need to look out for any vunerable person a that we know about who are in hospital near us.
Good Morning Thursday 7th May 2026
I think someone got out of the wrong side of the bed
