AIBU - Is it fair for me to live like this?

So very sorry to hear how much you are suffering ferry23. The nurse you have seen today sounds as if she is ‘on the ball’ and understands and sympathises with your situation, ensuring that you will receive a call from the GP later today. As she advises, don’t hold back, tell the doctor exactly how it is, and what you need to be put in place. I really hope your leg heals soon, with proper treatment and the support of your lovely nurse. 💐

ferry; can you email your MP? And also contact a local newspaper or radio station? I know in the past that I’ve done both of those for various issues and have had a result. Even GP’s don’t like bad publicity.

Just a little update. I've just had a call from a very lovely GP. He was kind and empathetic. He was able to explain in layman's terms everything I queried and he listened to everything I said. He was sympathetic to me feeling fed up and disheartened and we discussed how best this might be addressed and he is acting upon it.

He asked that when I see the nurse tomorrow, she contacts him and he will come and see me and look at the wound himself. He also said that I am in very capable hands with the nurse that I see most of the time.

So after his call, the time I had with the nurse earlier and the amazing words of kindness and support as well as some really useful advice from all of you on here, I am actually feeling a little more positive this evening. And as I am now 4 days from the end of my last antibiotics and as my darling Dad would have said, "well, if there's a "Y" in the day" - I'm having a glass of wine.

Could you request that a district nurse visit and deal with the dressing?

Missed your update - that sounds more positive.

ferry I hate to say it but you should not be taking alcohol when on a course of antibiotics.

Goodness me ferry , I cannot belive you are literally in such a mess. This is dreadful . Is it possible to show your OP on GN to a medical professional because it paints a true picture of just how bad this is !? Perhaps you have a family member or friend who could accompany you to your next appointment and help to fight your corner? The medics need to know that this distressing physical condition is having an effect on your mental health.
Chocolate has made a very generous offer , I am sure that lifts your spirits a little. Thinking of you.

So pleased to read your more positive post ferry. Sounds as though your GP
is taking care of things. You are having a very tough time. ((((( hugs ))))).

Charleygirl5

ferry I hate to say it but you should not be taking alcohol when on a course of antibiotics.

I finished the course of antibiotics last Friday - hence the treat tonight

Enjoy that treat, ferry, you deserve it. I’ve read all the very supportive posts on here and I’m so glad you are now seeing a more professional and sympathetic nurse. Glad, too, that the GP will go along when you next see the nurse. I hope you see some improvement before long so that you can get your life back again. Keep posting and updating us. The GNs are with you! Lots of hugs and good wishes.

ferry23

Just a little update. I've just had a call from a very lovely GP. He was kind and empathetic. He was able to explain in layman's terms everything I queried and he listened to everything I said. He was sympathetic to me feeling fed up and disheartened and we discussed how best this might be addressed and he is acting upon it.

He asked that when I see the nurse tomorrow, she contacts him and he will come and see me and look at the wound himself. He also said that I am in very capable hands with the nurse that I see most of the time.

So after his call, the time I had with the nurse earlier and the amazing words of kindness and support as well as some really useful advice from all of you on here, I am actually feeling a little more positive this evening. And as I am now 4 days from the end of my last antibiotics and as my darling Dad would have said, "well, if there's a "Y" in the day" - I'm having a glass of wine.

Hurrah to what has happened today!

Chin chin!!

So pleased to read your update ferry.
It’s good that the GP will see you tomorrow and hopefully suggest something to make your treatment more bearable.

Enjoy your glass of wine - little pleasures!

That all sounds a lot more positive. Hope you sleep well tonight and that it's onwards and upwards from now on.

I had a problem at my surgery regarding waiting ages for a referral to a spirometry test and was told it was not the fault of the surgery who had made the referral to the other surgery (who had the equipment).

Eventually I phoned and just asked to speak to the practice manager and was called back the same day. I just said I had a problem I wanted to discuss with them.

I didn't go down the "complaint" route- just said I was exhausted with waiting and things were not going to improve with nothing going on.
It's not nearly as desperate as your case that's for sure but I really wanted to say that I think a simple phone call first may get changes rolling - especially if you are honest and say how totally miserable this is making you.

Going down the formal route is what I'd do after trying to get the manager to resolve it.

As someone else said, there may be a leg clinic you can get referred to.
🤞

It all sounds horrendous though.
Thinking of you.

Good to hear this, ferry - feel free to add chocolate to that wine .

Sorry.
Just read your update - had started writing before I watered the garden.
Good news.

Pleased to read your update ferry23.
If it’s possible could you maybe take a photo on your phone of the dressing and bandages looking their worst before you leave the house tomorrow?

The doctor is likely to arrive in the room once the nurse has removed the dressings ready for him to examine your leg. It might be helpful for him to see the predicament you are enduring between visits when the dressings are sodden and slipping down your leg.

Please try to tell the GP how much this situation is affecting you just as you’ve bravely shared on this thread. Tell the doctor how difficult it is for you to dress and make your way to the health centre with your dressings sodden and ask why you cannot be visited by the district nurse.

Glad you have had a positive update ferry but to me this sounds like serious neglect and I would be taking it further..

Grannynannywanny

Pleased to read your update ferry23.
If it’s possible could you maybe take a photo on your phone of the dressing and bandages looking their worst before you leave the house tomorrow?

The doctor is likely to arrive in the room once the nurse has removed the dressings ready for him to examine your leg. It might be helpful for him to see the predicament you are enduring between visits when the dressings are sodden and slipping down your leg.

Please try to tell the GP how much this situation is affecting you just as you’ve bravely shared on this thread. Tell the doctor how difficult it is for you to dress and make your way to the health centre with your dressings sodden and ask why you cannot be visited by the district nurse.

Good advice!

Thanks for telling us your better news ferry23.

On the suggestion of someone earlier today, I took some photos before I went out this morning, so I'm armed and ready.

I hope you managed to consume half of the bottle!

I cannot believe this has been going on for 8 months- the practice manager must be made aware of this situation.

Good luck tomorrow.

Hoping for some more positive news now, ferry23

Cheers 🍷

There's not the remotest chance I'd "suck it up and put up" in your position. I'd be on the case and stay on the case until it was sorted once and for all in your position.

By now I'd be livid in your position.....and would have long since been googling for the nearest private doctor....

Well we can't all afford to do that......