Thanks, Carnationa. Actually, my husband died two years ago from a brain tumour, but you are new so would not know that. He was 65. From when he was 50 I was his carer, although I hated the word. He fractured his spine, then got cerebellar ataxia, then the brain tumour for the last four months.
I had other carers in for the last three weeks, Cactus, because I could not manage on my own any more. If I had had to have professional carers in for longer, it would have cost the state a lot more than we were given.
Yes, it was horrible having to change him when he was doubly incontinent, which he had been for 15 years, although for much of the time he did it himself. And I ran a guest house for ten of those, which paid enough to pay the mortgage.
I washed him and fed him, particularly during the last five years.
In the last six months I gave him injections and tested his blood four times a day. He'd been diabetic since he was eleven. In the final three weeks I gave him a third of a banana before he choked, and then had to test his blood and give him an injection to counteract the carbohydrate that he'd just had. I did it because I loved him and did not want him to be looked after by anyone else. And when he decided he had had enough, I lay beside him for three days and nights, waiting for him to say he wanted something to eat or drink. The only time I left his side was when the carers came in to change him and make him more comfortable.
Apologies to those who have heard this before on other threads, but some people need to know that everything is not what it appears. You cannot judge your neighbours by what you see, unless you know them very well.
My husband paid tax and NI from when he was 18 until he was 50. He still paid tax after that from insurance money. He had his state pension for six months.