Charlie Gard

I thought it was disgraceful to see Charlie's Army on the News tonight, wailing and gnashing their teeth when they strike me as just being "rent-a-mob". They mostly have no idea what they are talking about and it seems to me that many of them have just jumped on the bandwagon. How dare they be more emotional and upset than the poor parents when the father was trying to read out a statement!

I read that Prince Harry found it very hard when his mother had just died and he saw people who had never met her crying in the street when he was just numb with pain and shock. He just couldn't understand it, and Charlie's Army seem the same to me.

My heart goes out to the GOSH staff and other parents of ill children who are having to run the gauntlet of this gang every time they enter the building, and put up with dreadful treatment and a hate campaign.

Thanks for the link, Cold, that statement is the real truth that was needed.
One sentence resonates with me, "GOSH treats patients not scans." The hospital's own clinical findings were surely far more convincing than some professor's long distance assessment of the case, (although it doesn't sound as though he had much of the diagnostic evidence at his finger tips anyway).
Let those who know what they are talking about have the final say and be believed.

I'm afraid it won't end there. Many of them won't read it, and will continue with their hate campaign. It's all so pointless and sad...

Every member of Charlie's army should have to read this statement, particularly those who sent death threats to GOSH.

Thanks Cold. Makes for sad reading, doesn't it? Maybe the people so critical of GOSH will back off now?

There is a statement online from GOSH regarding the timeline for the treatment. GOSH had originally decided to treat Charlie themselves with the new treatment unfortunately the believed that the seizures he suffered from Christmas onwards made it unsuitable. The US doctor, Dr Hirano, was invited by GOSH to assess Charlie back in January - but he declined to come until last week when the court requested he examine Charlie. The GOSH statement seems quite critical that Dr Hirano has continued to offer the parents (false) hope without actually examining the baby or looking at his records. It seems that the court ordered scans and tests that were done last week have shown that he cannot be helped.
www.gosh.nhs.uk/news/latest-press-releases/gosh-position-statement-issued-high-court-24-july-2017

Such a sad situation for the parents and I hope that they can be left alone to grieve now.

Yes, that was known earlier, Smithy, hence the recent posts on here.

Have just seen a headline that Charlie's parents are now ready to let him go now. I haven't gone into as yet.

....and probably coming to a hospital near you Tegan (sadly).

I can't believe the way some of the staff at GOS have been treated.

What concerns me a lot is that I know that the news media actively go out of their way to look for stories such as this one. Not sure of how much influence that has had on decisions made by the parents in this case .

Hasn't there always been a lot of litigation [is that the right word?]with regards health care in America. I seem to remember being told a long time ago that there were more caesarians because hospitals were afraid of being sued.

Brave parents. I applaud them for everything they have done and hope they can find some peace. I also hope Charlie can die in their arms with no more publicity until it is over. I look at my healthy grandbabies and weep for the random cruelty of life.

I think they seemed to have reached the assumption that if he had been allowed to go to the USA sooner then his chances could have/would have been better. Not sure if this is as a result of the American doctors report/evaluation though.

Will the American doctor be given access to the babies medical record and be honest in his appraisal of when his treatment could have helped? Total honesty is needed on all sides. This is a tragic situation caused by the moral dilemmas our lives now face.

So sad, poor little boy.
You may be right gillybob.
Also how many more cases will we now see where people hold such entrenched views they won't listen to or accept expert opinion? How can the hospital itself deal better with such issues?

Sadly I suspect another court case will be on the cards. This time they will be suing GOSH for not allowing him to go to the USA sooner.

Such a shame for all concerned. Poor baby boy.

Dear little soul. RIP

Edit - apologies, I typed brave decision

A brace decision by the parents. It's the last loving decision they can make for their baby. They must be emotionally exhausted. I hope the Charlie's Army lot pack up and leave this couple to deal with the death if their baby in peace

better for them if they can blame someone else ,living with guilt thinking it was their fault would be a lifetime living hell .Its common for mothers in particular to blame themselves when babies are miscarried or die shortly after birth.No matter how often they are told its not their fault they still believe it is .I know because I'm one of those mothers.I think the money was already earmarked for research into Charlies condition,I'm sure I read that fairly recently.Someone will correct me if I'm wrong.However I'm sure that money is the last thing they'll be thinking of today .I'll light a candle for Charlie and for them ,I hope they find some peace

"Grant Armstrong said Charlie's parents had made the decision after a US doctor said it was too late to give him nucleoside therapy." I suspect it would always have been too late, however soon they had started.

I hope the money they raised will be used to set up a research fund into this awful condition in memory of Charlie.

Thank goodness...but of course there'll be a backlash

They will always blame the doctors and the hospital I wonder what they ll do with the million pound

www.bbc.co.uk/news/uk-england-40708343