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Borderline under active thyroid

(8 Posts)
Tippy22 Wed 11-Oct-17 10:02:46

For as long as I can remember I have always had a borderline underactive thyroid. My previous doctor wouldn't prescribe thyroxine as she said it wasn't bad enough and that once you started taking it you had to take it for the rest of your life. I fairly recently moved and my new doctor has also mentioned the underactive thyroid and said that if my blood test in 2 months time still shows it to be the same then she would like me to have a 3 month trial of thyroxine. When i mentioned what my previous doctor had said she just dismissed it. Now I know medical advances are happening every day but I already take quite a lot of medication so I'm a little bit concerned. Has anybody else done this trial and what were your experiences.

lemongrove Wed 11-Oct-17 10:11:41

Yes Tippy and I think quite a few of us on GN have this problem and take thyroxine.You would be started off on a low level, and if that is fine will stay on it.
Mine was ‘upped’ a little while ago, and I really didn’t feel well, so have come back down to taking a lower level which suits me.With this medication, getting the correct level is key, and higher doesn’t always mean better.

Nonnie Wed 11-Oct-17 10:45:56

Thyroid issues demonstrate how inexact medicine science is. I am convinced that the figures for 'normal' are based on insufficient evidence but don't know how it is possible to get them right.

If you were to see a Consultant, which you won't when it is borderline, they would ask you lots of questions relating to how your body functions and how you feel and would base the dosage on the whole picture.

When my thyroid gland was removed I was told that if one had to be on medication for the rest of your life then Thyroxin was the best with the least side-effects.

I don't think that you would be on them for life, I think that once the doc felt you were stable you would have an annual check and then a decision would be made about the dosage.

It is very important that you don't take too much because you would become hyper instead of hypo and that can cause heart problems and osteoporosis.

Good luck

TerriBull Wed 11-Oct-17 10:58:34

When I first went to the doctor in my mid 40s feeling very tired I was not aware of hypothyroidism or indeed the function of the thyroid. I was initially diagnosed with borderline under active thyroid, but over the years having started off on a relatively small does of thyroxine I am now on 150 mcg, and my doctor advised that after a recent blood test it could be increaased to 175mcg. I'm not keen to up it anymore as I believe high levels compromise bone density. I've never found upping doses does not make me feel more energetic. We have had numerous threads on under active thyroid and there has at times been a consensus among some that synthetic thyroxine doesn't do much to improve our condition. NICE won't approve Armour (derived from pig's thyroxine which is prescribed in America) as I believe it's too expensive. When Hillary Clinton made her medical notes available on the run up to the election, I see that's what she takes.

cornergran Wed 11-Oct-17 11:08:42

Tippy I also hae been told this for years. So far no GP will refer/suggest thyroxine. I really wish they would as I would like to try just to see if my extremely low energy levels could be improved. Its an individual choice. I think in your situation I would ask to see a consultant, let them offer advice and decide with them.

Tippy22 Wed 11-Oct-17 14:27:57

Thank you for all your responses. What I would like to know is if anybody has started taking thyroxine and then stopped because that is what my doctor said could happen if she feels it's not working for me. I was always under the impression that once you started taking thyroxine you had to continue because your body stopped producing it naturally.

maryeliza54 Wed 11-Oct-17 15:11:50

Tippy I’m not a doctor but I’m pretty sure that last sentence isn’t correct. As someone said upthread, getting the dosage right can take some time and you have to be on a certain dose for a certain amount of time before it’s worth having another blood test to see if that is the correct dose or not. Doctors will usually start you on a lowish dose - I started on 50, then went to 75 and have settled for last two years on 100,

maryeliza54 Wed 11-Oct-17 15:18:51

I have a blood test every 6 months and only my TSH is tested, Earlier on it was both TSH and T4 but never T3, what happens with others on here? There seems to be some variation in practice