CarlyD7
I must say sorry - I have only just read the page with your message - I can't explain why I missed it!
I am so sorry to hear of your condition and the effect it has on your life. I have severe migraines so you have my heartfelt empathy. I was deeply moved by your saying:
"Healthy people can adapt; disabled/ill people cannot" I will look at that YouTube as I have been diagnosed with M.E. but it was years ago.
Sadly, having been on this debate a while now, I am so disillusioned by a big group of GNet responders. It is so painful to be faced with the horrible truth that so many people just do not want to know about the suffering of others. It makes it worse when they use members of their own family, who are clearly robust and do not have this condition, as "proof" that no disability measures are required. They have no idea what we are talking about here, it is obvious. Repeatedly, people get the place and circumstances for which the measures have been adopted wrong and extrapolate it to the Theatre, and repeatedly use completely wrong examples of "sufferers" to "prove" that such measures are not needed.
I do feel very upset for you and for all people who have such invisible and terribly tormenting conditions. I admire you very much for bravely keeping going and trying to engage in as many activities as you can, while adapting how you go about them to minimise the effect the condition has on you. I wish you much good luck and happiness. ?
I did say earlier, I did research into Tinnitus and Autism and this brought me into contact with many people with these kind of terrible hearing problems. Such problems are not necessarily due to Autism. They can happen for a lot of reasons. I treated somebody who had terrible hearing distortion which had strangely begun after a heart operation. Many people I met filled me with admiration and humility by the way they kept going, suffering what is used as a torture in wicked régimes, loud and very unpleasant unbearable noises, sudden ones at that, yet nobody else knowing they were going through this.
I know people here do not know about these hearing conditions or understand them. If they did they would surely not be so cocky about deriding people. But why can they not accept that they exist? These conditions are like torture. Why do they scorn people who are trying to enable those disabled by this kind of problem to participate as fully as possible in the life of, in this situation, the Students' Union?
As for saying they should not be allowed in a hall or auditorium!! I think that comment really does say a lot about the writer!! Would she/he say people from a certain race should not be allowed in a certain public room? Or maybe people who are in a wheelchair should not be allowed in a Concert Hall?
You disgust me!
I am so depressed today, because so many GNet people here are so cruel and so sneering about people with a very bad disability. If they have never heard of it why can't they accept that, instead of making assumptions? Yet one after another they have written disparaging remarks and 'clever' put-downs on sufferers and those who recognise their condition- people whose lives are bad enough as it is and for whom entering University is laudable. To pick on these brave young people, for both the helping group and the disabled group are very brave, these older people have demonstrated they are callous, ignorant bullies, no more, no less. Bullies in the latter years of their lives! They should know so much better!!
As for the sneering remarks of Dogsjj about the "quiet hour for shy people" the Students gave at the beginning of the Welcome Fair of Clubs and Societies in Freshers' Week at Falmouth University, has she no idea how big University looks when you first go there and don't know your way around, how you don't know anyone and it's your first time away from home? It is daunting for new Students! How can people be so cruel? Our generation at that! I am appalled.
I am so glad the young people are not this nasty. At least when our nasty generation have died off, the young ones will create a kinder world. Thank God!