Feeling rubbish! Help please.

DM'd you *MissAdventure

I'll look that up, thank you.

I don't know much about any of this stuff.

Meant to say the Thyroid is NOT the parathyroid in a person's system.

MissAdventure

I have blood tests regularly, and they always include thyroid.
I presume they'd pick up problems?

Thyroid is NOT Parathyroid.

Totally different, seems a bit like some symptoms listed.

I have blood tests regularly, and they always include thyroid.
I presume they'd pick up problems?

Sorry to hear about your daughter and your health problems MadeInYorkshire. You have a lot to put up with and life must seem like an uphill struggle. I hope for better days ahead for you.

Have you considered asking to Parathyroid disease?

I have sjogrens, too.
Hair falling out, teeth almost gone.
Eyes all red and blurry, toenails have fallen off.

Sending you a big hug - I am in the same boat, diagnosed with FMS, CFS/ME many years ago after trauma from multiple surgeries - I have now had 24. I became unable to work at 48 and have had to live on the state since. There are things that would make me feel better like massage etc but I just cannot afford it. The pain ended up being so bad that I did take the analgesia and anti-depressants and of course naturally I am well addicted.

I never really thought that I had Fibro though, and in 2017 I started to have very bad dental problems, and my Fibro eventually turned out to be a nasty auto-immune disease called Sjogrens Syndrome. I have 3 teeth left and 3 roots all of which need to be taken out so that I can try a denture. (Fingers crossed the 13th Feb, followed by a colonoscopy on the 15th - what a fun week that will be!), but am not holding my breath as my mouth is so severely dry it may be that I am not able to keep it in. Add all the other medical issues I have plus the death of my daughter; the dreadful pain and the awful social anxiety, life is an existence really, and I hate it ...

I have (apparently) undifferentiated connective tissue disease.
Never heard of it, and still feel sceptical, because I feel so poorly all of the time.

It means I have symptoms of lots of the autoimmune conditions, but not enough of any one to categorise it as M.E or Lupus etc

Sending sympathy and a hug. You seem to be getting some support and help not sure what else you can do. Rest is important but with some form of exercise and fresh air. Try a short walk daily to start with - and if you can spend time in the garden. Keep in touch with friends/ family - short meetings/ calls so you don't overtire yourself to avoid loneliness. Take care

You might like to join the Facebook page Tell Me About Your Pain - A Mind Body PRT based approach to healing. Fibromyalgia is often mentioned on there. You may find it interesting and it’s free.
I’d also recommend the book ‘The Way Out’ by Alan Gordon. You can buy a hard copy or listen to it on Amazon audible.
Both of the above have helped me greatly with my chronic pain and anxiety.

there is an excellent book 'how to be sick' by toni bernhard a law professor who contracted M.E it comes from a buddhist perspective but i see little wrong with self compassion.

Hi Cossy, my son had ME between the ages of 10 - 14. He was very angry and anxious because nobody could tell him when, or if, he would get better. He managed his energy so that he was able to do some things he really wanted to do. If he overdid things, it was like a battery going flat - there was no chance of him powering his way through things, he could only do so much before his energy went. He managed his energy by ‘pacing’, where you learn to stop just before the energy runs out. Of course, it’s very difficult to insist on resting if people around you want you to be fit and active!

I’ve had a lot of illnesses and hospital admissions over the last ten years, and I now have many of the symptoms of fibromyalgia, though I haven’t yet been able to get a diagnosis. The rheumatologist I saw diagnosed me as having ‘chronic pain disorder’, which doesn’t really mean anything! I know, from looking after my son, that if I can’t summon up the energy to do things, I have to say ‘No’ to them. The brain fog has been the most difficult thing to deal with. At one point I had to get a memory test from the GP, because I kept mixing up dates and times, and getting the day wrong.

So I don’t really have any helpful tips, except try to be as compassionate to yourself as you would be to anyone else who had a life-changing condition. Get all the help you can - Occupatioal Health came to look at the house and put in an extra stair rail, which has made it much easier to go up and down the stairs. I’ve learnt to sit down as soon as I get tired of I’m cooking - even a short rest can get me to the end of what I’m doing!

I’ve suffered with anxiety issues for most of my life. My lovely Mum always told me to write it all down . It’s very cathartic . I still do it either as my daily diary or writing stories of my childhood and my family. Paintings of memories of events and places can operate in a similar manor. It doesn’t matter if you think that you can’t draw. ( Beryl Cook started late). When I’m stressed a or feeling unwell / ( I have PPS) I write or paint. I think it must have something to do with neural pathways. Wishing you well. Hugs. Xxx

Zen82

Thanks x I too have a great massage therapist and when the sun is shining and the weather is warm (not too hot) I feel so much better.

In 1962 i was diagnosed by my doctor with fibrositis , now called fibromyalgia . The pains were not to bad then . In 1964 I emigrated to Australia, Darwin NT , tropical climate which made the fibro worse , a nurse from the hospital visited me at home for weekly light massage , which helped . Two years later moved to Perth WA , and was advised to go to Hydrotherapy , warm water pool , twice a week, what a difference that made and also a massage once a fortnight , was very cheap back then . I was also advised to cut down on meat , and eat pleny of veg and non acid fruit , apples , pears, bananas, and light exercise . Fibro was very mild and only has a few minor flre ups . Then in 2001 moved back to UK to look after husbands father , and decided to stay in England . I was lucky as they had a hydrotherapy pool in that area and visited there once a week £5.00 a visit , stuck by my healthy eating all organic , but two years later the hydrotherapy pool shut down . The cold weather brought my fibro back , visited a GP and all they could recommend were pain meds or anti depressant meds , no way was i taking them . So found a good massage therapist who works lightly on the body , also started taking granovita an organic flaxeed oil, from sainsbury's £5 .42 a bottle , you add about a tablespoon to your cearel or on food every day , nice flavour , and it helps . Hope you find some relief , as when it flares up the pain is horrible .

Good advice from everyone,hope things improve,be kind to yourself 💐💐💐💐💐

Thank you all so much. Especially those who speak of grieving the life I used to have! Really struck a note! I’m lucky, as I do having amazingly supportive friends, and somewhat supportive family (depending on their “mood”!)

Thanks for the advice and support and thank you for making me feel less useless!

Cossy be kind to yourself. In 1980 I was housebound and often bedbound for 3 months. The GP turned up every Monday morning (those were the days!) and took more blood and told me the results of the previous tests were all negative. Eventually a friend rang and suggested acupuncture. I'd hardly even heard of it. I had one session and walked out feeling better. Looking back I think it was M.E./CFS. It was the start of my exploration of complementary therapies. They all work. Good luck hugs

I think you have done so well to have coped with all of these illnesses whilst the challenges of life never end, and you've worked through it until retirement.
AC are a worry, it's not being able to sort their problem out as we did when they were small I find difficult, no matter how old they get, they'll always be your children.
Be kinder to yourself, no guilt.
Good you have seen your doctor and they are being helpful, go ahead with anything they suggest.
Wish I could be more helpful, wishing you the best x

I have also had ME/CFS/Fibromyalgia for over 20 yrs now due to chronic stress and anxiety and PTSD. My advice is to pace yourself, listen to your body, when you feel tired -STOP! and acceptance is the key, I grieved for ages about the life and good health I USED to have, taking all that energy and mobility for granted, once I accepted this is the new me, the weight of anxiety just lifted, this is my life now and I do the best I can, mindfulness really helped with that , being in the here and now, focus on the positives and little wins every day eg today I managed to load the dishwasher YAY! we are often our own worst enemy. I have also found having a routine really helps when housebound 24/7, so get up same time every day, meals same time, bed time etc etc it helps keep a healthy balance and state of mind.

I have Fibromyalgia and other chronic health issues bought on by intense chemo and have had it about the same length of time. Any stress overloads me and i understand how you feel and it feels truly horrid. Sending a hug from me . I try to cope with things on a daily basis and i let those close to me know how i’m feeling as sometimes I know i try to pretend i’m ok as I know others are dealing with their own battles. I’m here if you ever want to message me and chat or via this forum. Afternoons and evenings i’m definitely not at my best but will always reply as soon as able. Maybe we could set up a sub forum on this

Hi Cossy, Just be kind to yourself. Gentle steps. Pace yourself and most importantly if you feel you can't do something then just don't.
I hope you have supportive family and friends around you.

Cossy, ME is such a debilitating condition and my heart goes out to you. I have no experience of ME but do know how difficult it must be to live with, it is not fully understood but thankfully the powers that be seem to be working on research combat it. You have had some comforting advice here and I sincerely hope that goes some way to ensuring you feel happier. It must be awful to feel so demoralized and feel ' like rubbish' Please know that people here are ' with you ' and sending strength and positive thoughts your way. 💐💐