The book concerns a very sick child, Dylan, and his parents Pip and Max, and follows their journey as they decide what to do in his best interests, and the repercussions of their decisions.
The first section is very focused on the family unit and is easy to follow. The second section is disjointed, both in time, place and is interspersed with ‘What if’ scenarios, maybe a reflection on how their lives are disintegrating.
I can quite see it was written to make sense of the past, and with the hope of helping others in a similar situation, but I have reservations. To some one with no experience of such trauma, it might look like an intrusion into another’s grief. To someone involved with such a situation, it might be too raw. To someone who has moved on it might unearth past emotional stress and memories which haven’t quite healed. I found the media intrusion realistic, but very disturbing.
There are some universal truths in the book. The road not taken – everyone probably has had to choose a path/ make a decision even over trivial things, then wonders if it was the right decision. Emotional meltdown and depression are a common result of unbearable stress, what ever the cause. Then there is the concept of ‘reality’. Someone with an injured mind could well not appreciate that their reality is different from what others perceive as reality – but which reality is the most valid?
A couple of decades ago I faced a husband recovering from a stroke, a son with cancer, and a daughter with anorexia, all at the same time – a traumatic and isolating experience of being the top of the ‘carer chain’. I coped by becoming emotionally detached and following the mantra ‘ Endure what can’t be changed, have courage to change what can be changed, and have the wisdom to see the difference’; and ‘Time will eventually resolve and even heal’ . I can see how Pip and Max were changed by their experiences.
A question – Pip has the courage to move on with her life. Do you think that, in some way, she was lucky to be able to do that, instead of facing endurance and compromise?