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Care & carers

Frustrated with mum refusing help.

(134 Posts)
Jane10 Sat 10-Feb-18 12:33:43

It's a very sweeping statement to say that 'she'll know' when she needs support! She patently doesn't know that she needs help right now. If the OP and her brothers and family withdrew all that they did for her she'd really be in trouble. Currently, it feels like she's just not letting herself acknowledge the truth of the situation. Yes she could be left to get dirty and unkempt but that would be neglectful by a caring family. How would they feel if she was just found dead one morning? Telling themselves it's what she would have wanted wouldn't let me sleep at night. She needs help. The problem is how to do this.

Washerwoman Sat 10-Feb-18 12:20:19

In my defence constant inspections and fussing is harsh Mollie.And indeed mostly we just leave her to get on with it. We call in and chat and turn a blind eye.Rarely said anything until recently. Grubiness is one thing but when you go to make a cuppa and the fridge is in a terrible state with spilt and mouldy food ans door seals encrusted its only reasonable to want to try -very diplomatically- to suggest some cleaning .She genuienly can't see well enough.As my brother said her mmune system must be good !Oh well.

Christinefrance Sat 10-Feb-18 12:19:10

In agree with mollie. I had the same situation with an Aunt some years ago. She had very limited vision and colon cancer and had lived alone all her adult life. My Aunt refused all offers of help and would not pay anyone to clean although she could afford to do so. In the end she died in an accident at home. People are entitled to make their own decisions even if others think they are wrong. I realise this does not stop you worrying or feeling guilty as I did. Perhaps you could set up a Rota so you have more of a break and accept what your Mum wants.

mollie Sat 10-Feb-18 11:55:20

Playing devils advocate here, your mum is very independent and has managed for 95 years. It sounds to me that while you and your family are lovingly concerned and caring, it is clearly seen by her as intereferring and criticism in what is her life lived her way. She’s entitled to let things get a little grubby if it doesn’t matter to her and I’m sure she’d rather see you all without the constant inspection and fussing. I’m sure she will know when she needs help and will ask for it but until then let her live her own life. She’s earned that. Back off a bit and give yourselves a break too.

Washerwoman Sat 10-Feb-18 10:46:59

Thanks for prompt replies. I'm very lucky in the DH has the patience of a saint,and will call in instead of me some days. He's even said she could live with us if things got bad-im not sure on that score for either her or us!Aso for a family conference I have suggested that ,but one or other of my brothers is either away or has had a much more well let's wait until there's a crisis,or if that's what's she wants mentality.That's changing with one brother now though,and he's proposing after his next holiday to install a new kitchen that's easier to keep clean,and some practical changes to the cottage so that feels a step in the right direction.And both brothers can ,and will do the work so they are good in many ways,.It's just the lack of simple communication.ie.don't worry about mum today I will go/ take her shopping that also frustrates.I guess that's men for you.
Frustratingly also last year a friend told me how happy and settled her DMIL was in sheltered accomodation, some of the nicest available.2 flats were available.Bright,spacious ,lovely view a, modern kitchen and completely independent with warden and shuttle bus to shops etc.Plus coffee mornings and mum has always been gregarious.Initially both brothers attitude was yes good idea ,you sort it.Surprisingly mum was intrigued enough to want to go to a coffee morning and meet the lovely warden.In steps SIL ,who I get on well enough but as a retired social worker and kind ,but in an airy fairy kind of way compared to practical me and vetoed the idea. DB is very under the thumb and decided not to pursue the idea.I know if we'd all got behind the idea she would have at least considered it.SIL had some valid points about her moving at this stage ,but I nearly lost it with her when she pointed out the village where the accomodation is also full of 'millionaires'?!Ironic as her mum lived in one of the most affluent parts of the country,and totally irrelevant!It's not it as a council estate and a real mixed community with a lovely accessible centre.Other SIL is great,but has had major issues with her own mum,but is a good listening ear and does practical stuff like wash mums bins out and some gardening.So it could worse I know. Out for the day now,but thanks for listening.

Freemind Sat 10-Feb-18 10:19:13

I feel for you and understand the need to vent. I don't live near my mother, nor do my siblings and although she is increasingly frail and disabled, she refuses to let a cleaner or carer into her house. We spend hours travelling to help and care for her as we do love her, but she won't compromise at all to make it easier! Who would have expected things to be so tricky at this stage of life?

Jane10 Sat 10-Feb-18 10:10:02

Oh boy! A tough one. Have you discussed with her the advantages of choosing help now or just waiting for a crisis to take everything out of her hands? Maybe a serious family meeting involving all your siblings and her to spell out your concerns? Horrible prospect I know. However, the alternative is more of the same with her and the house slipping into neglect and further deterioration. Good luck!

MissAdventure Sat 10-Feb-18 10:09:10

I haven't got any advice, but I can certainly sympathise! My own mum was the same, and it affected everyone's quality of life.
She ended up having carers, after being in hospital, but that didn't make a great deal of difference, apart from the fact that they made more mess!

Washerwoman Sat 10-Feb-18 09:37:04

Firstly to say compared to situations many of you are coping or struggling with I'm in relative clover so far.But I'm becoming increasingly frustrated with my 95 year old mum.She still lives alone, and has managed remarkably ,especially since our dad died several years ago.She had a really tough time caring for him in the last few years,and refused all help -to the point of stupidity my siblings and I felt.But that was her choice, and she's a fiercely independant ,and intelligent- or so I thought !- woman.But it wore her out physically and emotionally.She thought she was doing us all a favour, and her favourite mantra is 'you don't have to worry about me 'Easier said than done mum!
Fortunately we all live locally and so one of us ,sometimes all of us pop in most days if not everyday.If I can't I ring .Realistically it's either me or one brother,our older brother is retired and very often away on holiday,or helping his with grandchildren out of town.That in itself has been frustrating ,because lovely and good as he is despite repeatedly asking him to let me know if he is not around,or more helpfully if he is going to mums he never does.I still work,and a quick text,or I've suggested a WhatsApp group between us has fallen on deaf ears.It would be so good just to know he was planning to visit as I still work,and often call in between clients or on my way home often when I'm cold,wet and tired.He stays as longer ,as he doesn't go as often,is very kind and actually more patient than me and other brother.But as other brother says that's because he doesn't see her as often!
Anyway,The upshot is her mobility is worsening and her sight is deteriorating.She has macula degeneration and only has one functioning eye anyway.Her hearing is also failing. No big surprise at her age.But the state of her home,and her clothes is worsening.I did bring her washing home to dry as she has no drier and I have a really good one.And when I collected it we changed her bed.But she's even shoving me away from doing that now.We persuaded her to have a cleaner last year.She grudgingly agreed to an hour a week but pointing out no cleaner would come for just one hour,she finally agree to two. All well and good to start with.Then it turned out she was either asking the cleaner to take her to the shops.We do that regularly. Or following her everywhere and preventing her from actually getting on.She then found a reason to fall out with her and we reluctantly told the cleaner to come no more.
Things have deteriorated again.Her fridge is frequently in a terrible state.And I'm bracing myself to go round next week and do some cleaning,but tbh feel pretty resentful as she has enough money to pay for a few hours help.Even 2/3 hours a week would keep on top of things,and she could still potter with a duster.
Any ideas ?She wants to stay in her own home,we accept that,but just want her to work with us to make that possible.Her other favourite saying is 'oh well you won't have to worry about me much longer .I won't be here.Really mum?I know she hates the idea but she could live to be 100+.I've pointed out DHs aunt happily has some help.As do my friends elderly parents.To no avail.So frustrating,and instead of being a caring DD she makes me feel like a bossy control freak.My bother lost his temper the other day when he fixed her vac because it wasn't connected, and instead of saying thank you told him off for interfering. I must add so far she's shown no obvious signs of dementia,but we are aware she could be developing something,if only small ischaemic changes.Also to add she's been 'fighting ' the idea of getting old for absolutely years.I call it 'competitive ageing' as she has taken great pride in comparing herself with poor old Mrs so and so,how stooped/wrinkled/dependant etc she is -and she's 10 years younger than me you know!Not always very charitable and empathetic, and generally lovely as she can be not a trait I admire.She is terrified of being labelled old.I get that.But at 95 it's time for some common sense to prevail .Thanks if you've read this Rambling post.Just needed to vent !