Thank you for letting me moan!
He has his care overseen by the hospice - he has had music therapy and mindfulness (because of his severe anxiety) - but the last two sessions he has not wanted to go and I have had to cancel.
He has been offered day care (No), respite care (No), bath and hair cut (No).
I feel so low just now that I think I am going to have to be more insistent about these things. He will hate me, but what else can I do? I will try and talk to him later about these things, as even he can notice that I am not at my best today.
What is he doing right now? - reading through his district nurse notes (again!) and agonising over every detail.
I know he feels rough, but I need for him to just talk about something else - anything else - some of the time.
I usually go to the St David's Festival in May as I love the place and the music. I have found a ground floor B&B and thought he could stay there while I go to the concerts - but I am beginning to feel it might be better if I tried to persuade him to agree to respite care at the hospice that week. I would know he was well looked-after and could just enjoy the concerts and the seaside and hopefully come back refreshed.
But I do not want him to feel rejected; although I know the girls will visit him.