Dealight
You shouldn't just go on as you are and you definitely shouldn't sell your little refuge here.
I don't know how you have managed 18 months of living there already in this miserable way. You need to get your life back and wean everyone off your caring skills (including you, to an extent).
You say that it sounds so selfish of me to want to be someone in your own right, to have a chance to grieve, recover, live again. Would you say that of someone else if they were in your position?
I don't know how capable your mother is but as others have said she could have an assessment. I am not sure of the system in Ireland (presumably Southern Ireland?) but I'm certain it will be possible. That is something you can organise to get a level-headed evaluation of her needs.
Regarding your feelings of guilt. This, you must know in your heart is irrational. IF you were working as a team with your brothers and other carers you would feel so much better. The reason you feel so low (and guilty at the thought of stepping back) is because you are doing this job on your own.
So, what could you do?
I think if I were you I'd do this:
- I'd arrange a needs assessment.
- I'd spread out my visits so that the gaps between them grow longer and the visits shorter.
- I'd get involved in something for me even if it's just a distraction, and would seek out a little bit of joy if I could (when feeling low, small things really do help).
The weaning of your family should force the men in the family to be more useful. If you had never gone over, what would they have done? Certainly more than nothing.
Finally, if this all fails you could simply tell her the truth. You want to recover from the death of your son in the place you need to be. All your memories, good and bad are here and this is your home. If she is desperate for you, she can move back and then no doubt you'll pop in when you can.
My mother-in-law has recently moved two hundred miles to be near us. She is 95 and it is so much better. Admittedly she doesn't need the care your mother apparently does, but it's certainly an option. It is lots better for all of us actually and she now says she wished she had decided to do it sooner. If you think it might work, next time she goes on about you moving there say no without hesitation and (if you think it might work) say "why don't you move near me?".
Good luck with this tricky situation. It is because you have been overly generous with your time that this has developed in the first place. Bear that in mind. Pull yourself up and decide to make a start weaning yourself off this role you have partly created for yourself! Most of us know that the bonds that tie us to are family are real and firmly knotted but you are not cutting them. You are not ignoring her, simply finding a way for you all to survive. Maybe the apron-strings could be replaced with elastic so you have more independence - and actually, so does she.
Please look after yourself. Enjoy watching your grandson grow into a man. Recover.
You are in my thoughts.
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