Thank you all for your lovely posts, and there are some very good suggestions which we can try. Also very interesting to read about other experiences with children and food likes/dislikes etc.
A bit of background – but I don’t want it to come across as though I have a problem with his mum, because I absolutely don’t. I think, bearing in mind that she is dealing with a challenging child on her own, 24 hours a day, she is doing the very best she can.
We meet halfway to handover at a service station. She will tell us what she’s been trying with foods and other things, so that we can continue it at our house. She’s also happy for us to try anything new whilst he’s with us, so that she can try it at home. Today, we were able to tell her about the Peppa Pig yogurt, which she was delighted about, and that we bought him a pair of wellies and went jumping up and down in muddy puddles, which she'd previously said he'd never do - so a little more progress there
We always give him a bit of everything that we have for dinner, but he will pick it up, sniff it, and nine times out of ten, just put it down again. We’ve tried dry cereal, but I think the ones we’ve tried have been too sweet. I think we'll try bran flakes next time. He’s not interested in sweet stuff – except, apparently, as mum told us today, he will occasionally eat Parma Violets! Last time we had him, we got him onto cheese straws, which he devoured. This time – not interested!
He will come to the supermarket with us, but all he wants to do is push the trolley and scan the items at the self service checkout. He can identify every fruit and vegetable going, but after the “sniff test” they have so far all been rejected.
When he has his French fries, we encourage him to “dip the chip” and he will just about let the chip touch the ketchup, but won’t dip it as such.
However, there are some issues at his home. I say we “think” there is a diagnosis of autism, because although when he was about four years old, he saw a paediatrician (my son went along to the appointment) it turns out that there is nothing on paper to say that the diagnosis was autism. Mum told my son that he is autistic, and he had no reason to disbelieve her, so we’ve always worked on the basis that he is autistic. She told him that she was discharged from the paediatrician, but has now said that no paperwork was sent, so there is nothing in writing.
Mum took him out of school 18 months ago, as she felt that the school was not meeting his needs. She is (allegedly) home schooling him.
He is still in pull-ups and won’t wee or poo on a potty or toilet. He comes to us every time with his bottom red raw, and we end up taking him to our doctor to get some cream to clear it up. He goes home with an almost cleared up bottom, and then when he’s next back . . . . there’s the “nappy” rash again.
Then there is the issue of the diet.
Anyway, she kept telling my son that she was trying to get help for their son, but that no one was doing anything. I work in Children’s Services in our area, so I knew what kind of help she would be getting if she lived here. With her agreement, I called their children’s services as a worried grandmother, as it seemed my grandson was being failed by their system.
Upshot is, she was allocated a worker from the early help team. We have now found out that she did not engage with that worker, and that worker had concerns around the little boy, the lack of engagement and the home conditions, and they have now been stepped up to social care, with an allocated social worker. My son found this out when the social worker called him to get his views on the current position.
The social worker is chasing up the referrals to the bladder and bowel team (to try and get the toileting sorted), the dietician, the Speech and Language Therapy team to try and improve his speech, and then the focus will be on trying to get him back into school.
Hopefully mum will engage with the process now and keep the appointments for the various clinics and professionals, and we can move a few steps forward with the little boy.
Sorry for the extraordinarily long post, but I thank everyone who has contributed to the thread. I'm definitely going to try a few of the suggestions - the tempura batter sounds like a great idea!