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The List of the clinically extremely vulnerabble

(66 Posts)
Beachwriter Thu 09-Apr-20 10:03:22

Inspite of having Lupus, diabetes and lung disease which requires hydroxychloroquine and immunosuppressive medication, I am not on the government's list. The GP says I should be. But I am not. I feel vulnerable. Other Gransnetters?

KathrynP Sun 12-Apr-20 13:27:55

I heard about the register through the Sainsburys site and clicked on the link and filled in the form from there. It asked if you were able to get food yourself and I clicked Yes. If you click No then you get a food hamper. I don't think you need to click for a free food hamper if you can get a delivery spot as well.They then check your details against a Government list. A week later I received an email to say I was on their list.

If you are on immunosuppressants etc for chronic arthritis there is a very good website called www.versusarthritis.org which has a sort of checklist of conditions and drugs which tells you if you are extremely vulnerable and what to do if you are and other very good advice, so I knew two weeks ago that I would be on the shielded list but the letter only arrived yesterday. There is always a positive and mine is that I have gone from walking at snails pace in great pain two months ago to leaping around like a 40 yr old with no pain and able to use my hands and walk upstairs and sleep all because of a biologic drug so at least I'm able to do all those jobs I have been unable to do for the past 4 years so as you can image I'm keeping busy and happy.

Marydoll Sun 12-Apr-20 13:21:28

Thanks Daddima, as I was about to do that, but dozing in the sunny conservatory! Saved me fishing it out.
We are not going to ask for a box, as we have people shopping forus.

Have you registered by using the text message service? I did it as soon as I got the letter, but heard nothing so far?

Daddima Sun 12-Apr-20 12:40:29

Here’s what’s in the Scottish one -

Granny23 Sun 12-Apr-20 08:17:19

Just being nosey but what do you get in a free box?

Grammaretto Sun 12-Apr-20 08:09:58

Dragonfly we won't take up the offer either because we are lucky to have friends who deliver (almost daily) to our doorstep. They carry a letter of identity.

But it's good to know that support is available.

dragonfly46 Sun 12-Apr-20 07:56:00

I was offered a box by the government but turned it down. I have been very lucky getting deliveries from Sainsbury. I am shielding but DH takes the dog out for a short walk every day.

Grammaretto Sun 12-Apr-20 07:28:31

Helennonotion
Did you get any joy? The letter DH received yesterday was also addressed to his carer, which is me. We have to shield together. There's a phone number as well as the website and your local council should be able to help.
The boxes are free but there is a week's delay before the delivery system can be set up. Presumably emergency supplies are available.

Teacheranne Sun 12-Apr-20 00:03:44

I had to smile reading these posts about getting emails re delivery slots. My mother has received a letter telling her to shield herself but it wouldn't matter if supermarkets used the Gvt list to contact her - she doesn't have a computer, Internet or mobile phone! We've been doing her shopping for years.

Actually, she has dementia and is currently in hospital waiting for discharge to a nursing home after a fall. It is no longer safe for her to live alone as she would not stop going out several times a day for shopping or walks. Hence the bed blocking!

CraftyGranny Sat 11-Apr-20 13:42:56

Beechwriter, Be patient. I only received my letter from the NHS this morning, identifying me as extremely vulnerable. However, I was on the Government list sent to major supermarkets and have had emails from Sainsburys and Asda confirming this

I went onto the Gov.uk site a couple of weeks ago and completed a form on there which helped.

Daddima Sat 11-Apr-20 13:29:15

This is from the Scottish Government.

Helennonotion Sat 11-Apr-20 11:11:07

Does anyone know if the government food box for vulnerable people are still being given out if there is another member of the household NOT on the list? I'm referring to my parents, both in their mid-80s, Dad with underlying health conditions but Mum is fine. I've had a bit of a google but can't find anything out. Dad says he filled in the form online correctly, but I'm now wondering if he ticked the box - I don't need any help! (which would be typical of him!)

Pikachu Sat 11-Apr-20 06:54:44

Wonder if the OP will come back?

Coolio007 Sat 11-Apr-20 06:40:03

My husband has COPD. I had pneumonia in 2011. We both had lifelong pneumonia jabs 8 years ago, we had these in Portugal where lung problems in people are prevelant.

Grammaretto Fri 10-Apr-20 14:01:06

That sounds good Marydoll. At least you know you are on their radar.

Having just had a surprise, hand delivered parcel on my doorstep containing 2 bottles of wine, Easter eggs, the Guardian, and other goodies I feel overwhelmed.
At least I think it was meant for me grin

Marydoll Fri 10-Apr-20 13:10:35

I have just received a second updated sheilding letter from NHS Scotland, ten minutes later I got a phone call from my GP surgery, checking that I had received my first letter and was following all the instructions.
Apparently some people have not received letters, who should have. sad
I was also asked how I was feeling healthwise and the practice nurse wanted to update my details with the contact details of my next of kin! ?
It was actually helpful as she is runs the asthma clinic and was able to offer advice about my cough.

Callistemon Thu 09-Apr-20 18:22:13

My letter was from the Welsh Government and I just received an email from Tesco to say that I am entitled to a delivery slot.
At last.
However, I do know other people, in England, who have not heard anything despite having health problems and being over 70.

Grammaretto Thu 09-Apr-20 18:05:39

Bitter sweet news for you morethan2 flowers

morethan2 Thu 09-Apr-20 17:49:54

Yesterday my son had an email from Tesco saying he was entitled to a priority food delivery. He received the delivery today. It’s such a load off our minds because there’s been nothing from any of the agencies up until now. His wife is at the end of her terminal illness is blind and bedridden and he’s trying to keep her, himself and their three children fed. The plus side is It’ll mean less trips to the supermarkets for me. I’m relieved to know that the wheels for helping the most vulnerable in society are starting to turn. To be fair although it feels as if this as been going on for an age it’s less than three weeks. I hope those of you in a similar vulnerable position are contacted soon.

Daddima Thu 09-Apr-20 17:18:14

Marydoll, I’d given up on Sainsbury’s, but got another number ( 0800 052 5500) from Fernbergien on here. Despite the ‘ lines very busy’ message, it was answered in two minutes. I was asked if I’d had ‘ the letter’, my date of birth (1952), and a previous order number. She said it might take a couple of days to process, but after a couple of hours there were slots available for the next day. Mind you, some of them were £6/£6.50, which I’ve never seen before.

And this is the list of vulnerables from Gov.uk.

Iam64 Thu 09-Apr-20 15:32:38

I thought I was 'vulnerable' as I'm on immune suppressant biological treatment for RA. I have AF and stage 3 chronic kidney disease and I'm over 70. According to the government web site, subsequently confirmed by my specialist nurse at Rheumatology, I only scored 2 (over 70 and biologics). The AF isn't a serious heart condition and to qualify, chronic kidney disease has to be stage 4. I'm relieved not to qualify , even using the word 'vulnerable ' made me feel vulnerable and I did not appreciate that,
However- I wish I could get on line shopping. We try to keep actual shop visiting to a minimum because otherwise, we don't mix with anyone. On our daily walk, we keep the required distance. Still these are unprecedented times and we can't all have our essentials delivered.

Marydoll Thu 09-Apr-20 15:02:34

Teetime, if you are in England, at least the supermarkets are given the list of vulnerable people by the Govt., so it should be easier to access vulnerable people slots.

However, in Scotland, you need to register with each supermarket individually. After waiting for over 40 minutes each time to register, I just gave up!
Not heard a word from my loca!l authority either.

Thank goodness, I have family and good neighbours to help. Not heard a word from anyone.

Grammaretto Thu 09-Apr-20 15:00:39

Callistemon grin come to think of it, I have been missing tomatoes.

We felt most vulnerable yesterday driving to the hospital for his scan and noticing how many people were probably breaking the rules.

Callistemon Thu 09-Apr-20 14:49:19

We on The Lockdown Thread could get bored, though, and start throwing rotten tomatoes at anyone we see outside breaking the rules.
That is, if we could get hold of any tomatoes. Or eggs.

Beachwriter, I have had The Letter telling me to self-isolate and anyone who lives with me too and today received a letter from the hospital asking me to go to a clinic and then to another hospital a week later, 40 miles away, to collect my medication.
Quite contradictory.

Grammaretto Thu 09-Apr-20 14:43:17

DH is on the list so 12 weeks shielding. He was isolating before that for a couple of weeks but now I am shielding with him. He has stage 4 kidney cancer.

As Marydoll says it makes not a lot of difference apart from accessing the government food box if you needed it.

We are lucky to still have able bodied friends to shop for us and hope you have too.

The worst for me was trying to get my antibiotics from the chemist when I was suffering from a gum abscess.
and of course not being able to buy and send parcels to my DGC. There were 3 birthdays last weekend.

But these are tiny problems. Join the Lock-down thread. Join the prisoners!

Teetime Thu 09-Apr-20 14:25:13

DH got the letter today but he doesn't qualify for food deliveries so we are a bit confused. I think he has been included as he doesn't have a spleen and is 74 but its never caused any problems so far. I was hoping we would get a delivery slot.