Belated happy birthday to Cocopops and Shirley. I didn't read everyday like I usually do so sorry I missed them .
Four glad you have given your life a boost by going back to things that give you joy. Well done with the loss and staying the same weight that's an achievement in its self.
I have stayed the same weight for 9 weeks. Proves I can maintain a weight just not the weight I want but hey ho it's been a few tough weeks.
Cocopops dual citizenship that's a big deal. Bet you had a lot of studying to do for it. My daughter in law has dual citizenship. Glad you can use zoom as I haven't a clue how that works. When I had a zoom appointment with my neurologist in January my daughter set it up on her tablet for me . I do everything on my smartphone. Hope you had a great celebration meal.
NanKate hope you and Mr N are fully recovered from Covid. 6lb over 6 months isn't that much to put on. If it was the old me it would have been 2-3 st. But you know you can lose it.
Christmas only 4 weeks away 😱. Good job I have written all my cards and presents are wrapped. Posted my cards as we are in for a lot more postal strikes. 2 days again this week. With all the strikes it's definitely the 70's all over again.
SachaMac last week it was heavy rain mixed with hail most days. Hope you had a great time at Chester Christmas market. My daughter took me in 2019. Here men and woman get a free bus/ local train pass when 60. So I can go as far as Chester free. Must make an effort to use the train more next year. But planning a journey for me is like a military operation. Because if my HPX I have to write down every bus stop or train stop and keep watching so I don't miss my stop. Even buses I use every week have to keep watch so I don't miss my stop. Because I can phase out only for a few seconds I forget if I am going out out or home. At least it's not me being weird but the HPX as all the others with it do it. When I go on long train journeys have always had travel assistance apart for once but it was only for a day out. Was sitting on the train when I asked a fellow passenger if the train was going to X you guess it I was on the wrong train good job there was 10 mins before it moved . Never went without travel assistance after that
Have learnt and still learning more about it because of our closed Facebook group. Like GN we help eachother . Think collectively we know more than most neurologists as we talk about everything and ask questions. Someone always answers. I have found 2 professors at the Neurological hospital in London one has 20 HPX patients and the other is a geneticist specialist in HPX. Seeing my neurologist in January and will give him their details.
My fight for PIP continues . My solicitor is writing the submission at the moment and giving her as much information about HPX as I can . The Brain Charity have been wonderful. In fact the lady I deal with phoned Friday just to check how I be was doing. Hav had to buy a pair of fingerless support/ compression gloves to help my hands and wrists. They are great but can't wear ordinary gloves on top because of the grip dots.
Found why I drop things daily it's not because I lose grip but my hands stiffen. Same as when I choke on my salvia or food it's not just me being an idiot but my thingy becomes with O can't think how it's spelt goes into spasm.
Spoke to my best friend on Monday and found out what happened with her husband. She found him collapsed over the bed phoned 999 and did CPR . 5 paramedics came with all their equipment so she had to wait in the next room . After 20 mins she heard are we all agreed and her beloved husband was dead. Because he had missed 3 appointments at the drs there was a possibility there may have to be an inquest but later in the week she let me know their GP signed the death certificate he died of an acute heart attack. So all the funeral and wake are arranged for the 14th my daughter is going with me. She has known them her whole life. It's a burial never been to a burial before. Had to tell my friend she couldn't control who attends the funeral as the church is a public place but the wake can be invite only. Which is what she has done. Luckily she has good friends near by luckily one is a neighbour who lives couple of doors away. She has no blood relatives but her husband has a brother and they have a niece and nephew. They couldn't have children. But we are the closest thing to a sister we can each have. Like I told her it's better than blood as we chose to love eachother. She and her husband knew my husband. In Fact because we met at college when we were 18 she knew my husband from then. We are both 64. At least I know exactly what she is going through. Hopefully I am helping her as I have helped others.
Anyway change the mood. I have The world of cross stitching mag and was reading the letters page and thought someone pinched my idea for 2 cushions then realised it was me🤦 . I had forgotten I sent the pictures in with text via email last year. So I am published . Life's my spirits. My youngest grandson was 2 last week. Went to theirs and there was a note from one of my exercise class. She knew where my daughter lived as her house is on the corner of the road she lives in. So I text her and been invited to a cheese and wine lunch on 9th the others will be there. Have missed them all. But still haven't found a class I can do that isn't 2 buses away. Hopefully in the new year a new one may start up I can go to.
Saturday going to see Santa with my daughter and boys then back to mine for them to decorate my tree for me. I will put it up on the 1st like I always . Just put on the lights and the bell decorations my brother and sister in law brought me from Belgium they are fragile so go on the top. However the tree gets decorated it stays that way. I spent a very long time doing the tree myself after my husband died. So it's lovely my grandson's do it.
Got some baking to do this week as it's the schools Christmas fair. But will start today and freeze things and just get the out on Thursday. Just do a couple of things a day as I get very wobbly standing for long so have developed short cuts for everything.
We'll have a great week everyone.
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