Gransnet forums

Gransnet cafe

Page 2 of 2 | First | Previous | Next | Last
| Flip | Customise |

Welcome to the *Gransnet Café. This is a non-judgemental space for you to pop in for a cuppa with some virtual friends, seek out advice for a particular problem, or share an update on your life - important or trivial. Feel free to have your say and chat about your day, but please leave any arguments at the door. If you're struggling to find someone to talk to in real life, or are simply looking for a bit of a chat, this is the place for you.

Death of child with mitochondrial disease

(35 Posts)
Add comment | Report
Midnightblue Mon 13-Nov-23 11:00:53

I completely understand the parents clinging to hope, and I hope they can find comfort in their family and friends.

Christian Care’s involvement must have prolonged suffering.

Thanks for the Wiki link MOnica.

Add comment | Report
kittylester Mon 13-Nov-23 10:56:33

I think it would be very natural to cling on to any hope available.

Add comment | Report
M0nica Mon 13-Nov-23 10:50:41

This organisation is a Christian extremist evangelical organisation. They are to main stream Christianity. what the Taliban or regime in Iran are to mainstream Islam. (I am not suggesting Christian Concern is violent in the way the other two are).

Here is a link to the Wikipedia entry on them en.wikipedia.org/wiki/Christian_Concern It makes nteresting reading.

Add comment | Report
eazybee Mon 13-Nov-23 10:43:32

There is nothing good about prolonging the suffering, but I think if I was that parent I would cling to every hope and not be capable of rational thought.

Add comment | Report
Germanshepherdsmum Mon 13-Nov-23 10:08:38

There is nothing Christian about prolonging the suffering of a child.

Add comment | Report
Aveline Mon 13-Nov-23 09:40:42

Very very sad. Poor little thing.

Add comment | Report
silverlining48 Mon 13-Nov-23 09:40:25

We know of a family whose toddler died of this same condition, it was heartbreaking.

Add comment | Report
maddyone Mon 13-Nov-23 09:35:55

Poor little poppet.
I can’t imagine what the parents are going through today.
What a very sad case.

Add comment | Report
BlueBelle Mon 13-Nov-23 09:30:49

The child is at peace and out of pain Thank God for that

Add comment | Report
Midnightblue Mon 13-Nov-23 09:26:03

I’ve just heard of the death of this poor little girl on the news.
After 3 months of life support it was withdrawn this morning and she died in her parents arms.

Her medical team had told her parents that she was distressed and in pain since September, and advised life support should be withdrawn, as there was no further treatment for her. Then Christian Concern got involved and presumably influenced the distressed parents into taking the case to every available court to request treatment be continued.

Apparently, emergency Italian citizenship was granted to the child so treatment could be sought in Italy.

If Christian Concern had so much concern, I believe that should have led them to believe it would be kinder to let the little girl die in peace, instead of dragging out the suffering of the child and parents.

The parents have hung onto every thread of hope encouraged by this group, and I feel so sorry for them, the child, and the medical team.

The judge involved criticised the way the case had been brought.

Page 2 of 2 | First | Previous | Next | Last
| Flip | Customise |