My OH has Primary Progressive Multiple Sclerosis, diagnosed 9/10 years ago, Naively we didn't think he would qualify for any help, but 4 years ago his consultant was amazed he hadn't applied for PIP. So we did (wow, as demeaning and humiliating as people say) and the DWP awarded the lower daily living rate, not the lower mobility rate that we had hoped for. However the additional money does help with the cost of supportive therapies/aids he has to ease his symptoms.
In March this year we received the review paperwork once more. We completed and returned it. My OH's condition has worsened significantly. He does not have a consultant at this point, the position is vacant (when a new one is appointed he/she will be his 5th consultant!). His GP has talked to him about leaving work due to the severity of his symptoms.
No reply from the DWP, so on Friday i rang them, explaining i was concerned we hadn't heard from them. The nice lady cheerfully explained that our paperwork is with the review team who are working through a backlog. How long is it likely to take? I asked, given my OH's deterioration. 53 weeks she replied..............Huh????? I asked her to repeat that 'Yes' she said '53 weeks, at least and in the meantime if you OH improves you must let us know' Well.......I was a tad sarcastic 'ummmm, he has PPMS, the clue is in the name, he won't improve'
53 weeks, at least........i have no words.
WORD ASSOCIATION - 9th May 2026


