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How to support my child when their child has had a brain tumour

(22 Posts)
Cossy Wed 25-Sept-24 18:05:35

No advice.

Just sending very best wishes and a hug flowers

silverlining48 Wed 25-Sept-24 16:43:59

Corleone flowers keep doing what you are doing, we all want to take away the pains of our children, if we can, but your daughter will know you are there for her and your grandchild, , as are we here on gransnet.

Babs03 Wed 25-Sept-24 15:52:10

So very sorry to hear this, a very difficult time for all of you.
My little grandson was diagnosed with a condition that meant his skull had fused before his brain had stopped growing, he has already had surgery at GOSH, it took many hours to insert springs in his skull so that any cranial pressure is relieved. He was just under 6 months. Soon he will need to have more surgery to remove the springs but still cranial pressure could occur so he will need to be checked until he is 8 years old.
Is hard to know what to do in these circumstances but you are there for your daughter and granddaughter, as we are for our daughter and grandson. You will be a shoulder to lean on and cry on, but make sure you keep well in order to stay strong for the days ahead.
We have a family WhatsApp group called ‘team *grandson’s name’ and we can all offer help or positive thoughts.
Wishing you and your daughter and granddaughter all the luck in the world 🙏🏾

rafichagran Mon 23-Sept-24 22:51:36

flowers

Luckygirl3 Mon 23-Sept-24 22:32:01

I am sure you will do the right things - you know your DD best. She just needs you to be there and to know you care.

crazyH Mon 23-Sept-24 22:23:30

Corleone - just be there for them. Batch cook, babysit, anything they need. I have gone through the same with my family - Daughter had a thyroid tumour (benign), middle son a bone tumour (benign), youngest son septic tonsils, one grandson, neck growth (benign) - so many scares. Thinking of everyone going through difficult health issues. This too shall pass. You will get there and btw, your granddaughter is just gorgeous .
flowers

Norah Mon 23-Sept-24 22:11:09

Corleone

Thanks all, I will take on board what you have said, really appreciate it. Not the news we were hoping for, it has started to grow back. I’m really close by so will do a little batch cooking tomorrow and take it round and see what more I can do to be of help

flowers

LOUISA1523 Mon 23-Sept-24 22:05:58

💐

Doodle Mon 23-Sept-24 20:14:56

So sorry. The news must have been so upsetting. I hope they are able to offer some treatment or intervention that will help.
Thinking of you,

Hithere Mon 23-Sept-24 20:04:04

These, not this

Hithere Mon 23-Sept-24 20:01:48

Enjoy life and do not concentrate on the condition.

Living a normal life is the best in this situations

MissInterpreted Mon 23-Sept-24 18:19:55

I don't have much to add to what has already been said, but I thinking of you and the wee one. I'm sorry the news wasn't what you had been hoping for. 💐

Shelflife Mon 23-Sept-24 18:17:42

Corleone, I have no experience experience to offer you . I am so sorry today's scan was not as good as you had hoped . Your DD knows you love her and she is lucky to have you. My thoughts are with you and your family, I can only imagine how this must feel. It is good you live so close to your DD and I agree that asking her what you can do to help is the best course of action. Sending very good wishes and my thoughts are with you. 💐

MissAdventure Mon 23-Sept-24 18:08:18

Oh no, I'm sorry, I'd not seen your update.

MissAdventure Mon 23-Sept-24 18:07:34

I do hope your little girl has brilliant results, but I just wanted to check that you realise gransnet is an open forum.

Anything you post here can be seen on the internet.

Corleone Mon 23-Sept-24 18:04:08

Thanks all, I will take on board what you have said, really appreciate it. Not the news we were hoping for, it has started to grow back. I’m really close by so will do a little batch cooking tomorrow and take it round and see what more I can do to be of help

Oreo Mon 23-Sept-24 17:59:11

All lovely good advice here, good luck for the future 💐

Nannarose Mon 23-Sept-24 17:00:46

Thanks for asking - I have dealt with this as a nurse.
Keep your worries to yourself - the family have enough to deal with
Don't reassure or offer advice, ask what you can do to help
Tell DGD that you are proud of her for being sensible during these procedures - this will help her to face them
If near enough, take food or something practical, if you can make a favourite dish or cake, that shows caring without overwhelming.
Good luck to you all

tanith Mon 23-Sept-24 17:00:06

I have been in your position when 4yrs ago my grandson was diagnosed, my son was distraught and because they live abroad all I could do was be at the end of the phone and listen as he sobbed down the phone but he was able to let it out to me whilst being strong for his partner. Just be there to listen and give hugs when needed.
My grandsons tumour was cancerous after 2 surgeries they got it all he has no ill effects although his recovery took 6mths. He’s been all clear for 4yrs now and has just started high school he has scans every 6mths for the foreseeable but so far so good. 🤞

I wish granddaughter well I’m sorry you are all going through this. Fingers crossed for everything to turnout well.

merlotgran Mon 23-Sept-24 16:31:51

My best wishes to you and your family. Just be there whenever she needs you. You can’t know everything will always be OK but you can be positive whenever she has moments of doubt and worry.

Baggs Mon 23-Sept-24 16:27:15

Give her a hug if she is near enough, or send a card/whatsapp with "Hope all goes well ❤️".

I'm glad your granddaughter seems well so far and that the surgery seems to have been successful. All the best for the long haul.

Corleone Mon 23-Sept-24 16:12:02

Hi, I am brand new here and really don’t want to join with a morbid start. So from the outset I will say, my grandaughter was diagnosed with a brain tumour in June - it was a horrible time but she had very successful surgery and her recovery has been amazing. It was none cancerous and the amazing surgeon believed he had got it all. However, today is her first follow up MRI - and I don’t know how to support my daughter and say I am sure it will be fine, when I don’t and can’t know that it will be. Has anyone had a similar situation that can offer any advise as I am at a loss as to how to help my child and these mri scans will be for the next 7 years so I need a way confused