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Do you care who sees your GP records?

(56 Posts)
RAF Sun 01-Sept-13 22:39:02

No, it won't be anonymous. Will be NHS Number, date of birth, postcode, and all your medical diagnoses, and will be linked with other data bases, so actually very easy to identify.

The point is, this data is being extracted without your permission, or even knowledge, which is a breach of the Data Protection Act. There will be a poster in your GP's surgery, and a leaflet on the counter, but that is all.

I'm all for the benefits of research, no problems with anonymised data, which will be taken anyway. It is the taking of identifiable data without consent that is wrong. Actually they don't need identifiable data, you can 'pseudonymise' it so that the actual identity isn't known, but so far they won't adopt this.

glammanana Sun 01-Sept-13 22:32:04

I had a quick peek ja and the membership fee's are varied to say the least, to be honest I don't care who see's any health records relating to any treatment I've ever had,if it helps people in the future then I'm all for it,there's nothing special about my treatment that needs to be under lock and key.

j08 Sun 01-Sept-13 22:11:39

But it will all be anonymous, won't it? Where is the harm? It may help universities with medical research.

janeainsworth Sun 01-Sept-13 22:03:56

We are rather a suspicious lot here on Gransnet RAF so I am posting a link to your organisation's website - I hadn't heard of you, but of course others may have done.

www.phcsg.org

I don't really understand what is being sold - is it anonymised data, or does it mean that the police or the local council can go to one of these companies and look at an individual's health record?
Thanks.

Ana Sun 01-Sept-13 22:02:33

No you're not - you managed to post on here....confused

RAF Sun 01-Sept-13 21:48:13

You may have seen small paragraphs in the newspapers about your medical records about to be sold to private companies. Does this worry you, or are you not too concerned who sees your diagnoses, results and discussions with your GP?

The data will be shared widely, and extracts from your GP records will start shortly.

This is not the Summary Care Record, which has been around for a while and is to do with looking after you if you fall ill away from home. These extractions are nothing to do with your direct care.

They will go to a National central database, called Care.data, it will be hosted by the Health and Social Care Information Centre. It will be processed and passed to the police, local councils, social services, insurance companies, drug and research companies, in fact anyone who asks for it and can make a case for using it.

See https://www.gov.uk/government/publications/council-access-to-health-care-data-from-the-nhs-letter-from-the-cko

and more about it medconfidential.org/

You do have the right to object, but this is not being widely publicised, hence this posting. The British Computer Society Primary Health Care Specialist Group, of which I am Chair, is doing its best to push for a much better public awareness campaign. Obviously this is a personal post of mine, I would be interested to know how many of you had actually heard of it?

If you are not worried by this, that is fine and you need do nothing. If you would rather keep personal confidential data under your control, then contact your GP and ask them to put the codes on your record to prevent your particular data being extracted.

You may want to make your children aware too, I am too old to post to Mumsnet! smile