Aka Sun 15-Jun-14 20:27:46
Thanks AAA
The fact that NICE thinks this can dramatically improve the quality of life makes it even worse that it can't be funded.
Whilst it's NICE ;-)) to get your thanks, I can't see where NICE even suggests that this procedure can provide a dramatic improvement.
These are the words used:
What has NICE said?
The evidence shows that the procedure is effective but that
complications can be serious.
However, I do agree that if the Clinicians, other professionals and the parents all agree that on a 'cost / benefit' type analysis the 'risk' is worth taking, then the procedure should go ahead - any other decision seems perverse.
In the days of PCTs, one could lobby the Board at its meetings held in Public. But since control of OUR £65 000 000 000 NHS cash to pay for such treatments has been transferred into the [private] hands of the GPs who form the CCGs, one does NOT have the right to attend Board meetings.
In addition, the Lay 'Representatives' of the Public and Patients who serve on the CCG Boards are chosen by the CCGs to occupy those £15 000 a year posts.
If any readers of this are not members of the Patients; Association, an effective national lobby group, please do consider joining. If you don't want, or can't afford, to become a Full member, you can be an eMail member and contribute to the activities - FREE.
The Patients Association <[email protected]
Churchill to be axed from British banknotes in the name of diversity.
Another abuse of women and girls
Good Morning Saturday 6th June 2026



Aka, that's for making me 
