This is a good & welcome move. Unless you've been through or alongside it, most have no idea of the impact of this disenfranchised grief. My DD experienced 3 distressing miscarriages from 2006-07. The care in the hospital after each one varied but wasn't the worst we've heard of. What was bad was the service in trying to find the cause of her miscarriages. She was passed from one hospital to another, notes & crucial test results were mislaid, staff were uncaring & rude. She was even on the verge of going down the IVF route at great expense which, as later we discovered, would have been a waste of time as the foetus would have miscarried. Eventually she was granted funding to see a consultant privately at the Recurrent Miscarriage Unit at St Mary's, Paddington by Benenden Health Care, a mutual society for anyone who has worked in the public sector & their families - it provides a safety net when the NHS fails in some way. It took one consultation & one test (I believe more sophisticated than one she'd had on the NHS) to be told the cause - Hughes syndrome. Once she knew the reason & treatment, her fear of another pregnancy subsided & she conceived very quickly. By taking daily heparin injections & aspirin, plus extra care during the delivery & just after, this & a subsequent pregnancy produced 2 lovely GCs.
Hughes Syndrome causes blood clots blocking supplies to the foetus. It was discovered by Dr Hughes at St Thomas's Hospital. It is one of the MOST COMMON causes of recurrent miscarriage yet few GPs, midwives & nurses have heard of it. I think this is shameful when you see what misery it causes. A cousin's wife had 15 miscarriages back in the 1980s & never did have a baby - she was told she was not 'meant to be a mother' by a consultant. I often wonder if she had Hughes syndrome.
My dad still cooks better than me and he's 71
Relatively new here so an introduction.
