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My daughter died ten days ago

(501 Posts)
AlieOxon Fri 15-May-15 15:04:21

Of acute pulmonary oedema, we have just heard.
She hadn't seen her consultant for four years for her kidney condition
She probably wasn't taking her potassium pills.
We didn't know she was risking her life. She probably didn't.
.....and I am really angry.

There is a black hole in the middle of our family.

But what I really want to say is that although the condition she had is very rare (Gitelman's Syndrome, if you want to look it up) that I have found there is a similar risk in people with heart conditions who are taking some diuretics.

We should have known that she was at risk. From what I find, this is only recently realised by the medical profession about GS patients - there may be only 1500 in Britain. I don't know if heart patients are warned.
I feel this should be better known.

dustyangel Tue 21-Jul-15 09:46:10

Happy Birthday AlieO. I hope you are feeling well enough to go out. flowers sunshine

whitewave Tue 21-Jul-15 09:23:00

Happy birthday to you
Happy birthday to you
Happy birthday dear Alie
Happy birthday to you smile

Alea Tue 21-Jul-15 09:14:01

flowersflowers * Alie*, and birthday wishes , perhaps you can remember past birthdays with joy and gratitude for happier times x

Marmight Tue 21-Jul-15 09:12:16

Happy Birthday Allie. Hope you are beginning to feel a little better? Enjoy your lunch flowers

kittylester Tue 21-Jul-15 09:11:34

Have a really good day Alie! wine

Lona Tue 21-Jul-15 08:31:54

I hope you have a happy birthday Alie flowerscupcake
I've put you on the birthday thread too!

NfkDumpling Tue 21-Jul-15 08:23:58

Birthday Greetings Allie. cupcake. I hope you're feeling well enough to enjoy your birthday lunch. You deserve a wonderful day!

MiniMouse Mon 20-Jul-15 22:55:15

Happy Birthday for Tuesday AlieO Hope you'll be feeling well enough to enjoy your day sunshine cupcake flowers

soop Mon 20-Jul-15 16:40:09

AlieO You are always welcome to join us lot in the kitchen. I am so pleased that you have the well deserved comforting support of Gransnetters. sunshine

AlieOxon Sun 19-Jul-15 20:20:01

Thanks all.
And soop - I know I haven't visited lately - didn't want to take over your kitchen with this and I knew it would be a lot. Thanks for yours.

soop Sun 19-Jul-15 18:32:22

AlieO ...and I also send you my very best wishes for a speedy recovery. Tuesday's celebration is a treat that you richly deserve. flowers

loopylou Sun 19-Jul-15 17:48:06

An early Happy Birthday from me AllieO, I do hope you enjoy your lunch flowers x

AlieOxon Sun 19-Jul-15 17:10:04

Don't feel good when I wake up, as I am still waking with a temperature. Gets better through the day though.
I have to spend time in the morning getting four different lots of pills down me! And the antibiotics are still making me dizzy.....

Slightly better. Hoping that I will be well enough to get taken out for lunch on my birthday, Tuesday!

Jomarie Sun 19-Jul-15 15:17:13

Hi Alie - how are you feeling now - have the antibiotics done their job? I hope so and that you are well and truly on the mend. Be kind to yourself. flowers

AlieOxon Fri 17-Jul-15 21:19:15

moon night folks, thanks for thoughts....XX

Luckygirl Fri 17-Jul-15 20:17:59

I do hope that the antibiotics do their thing and that you will soon be bug-free. So many people here rooting for you.

Lona Fri 17-Jul-15 19:34:03

Take it easy Alie you obviously need to rest and recuperate for a while flowers

AshTree Fri 17-Jul-15 19:02:28

Alie, poor you sad. You can't possibly deserve all the horrible things that have landed at your doorstep, one thing after another. Unbelievable. Sending you lots of (((((hugs))))) and flowers, and really hoping that you do manage to get through this latest onslaught as soon as possible.

annodomini Fri 17-Jul-15 18:52:57

What a horrible time you've been having, Alie. Your resistance must be at rock bottom. In the old days you'd have been given a bottle of tonic - presumably a placebo! I hope you are getting plenty of sleep while you are laid out. flowers

whitewave Fri 17-Jul-15 18:23:29

Good to hear from you Ali. Antibiotics always me feel grotty but the will hopefully do the trick. All being well you will be on the road to recovery and the enforced rest is probably a good thing after the past weeks.

jinglbellsfrocks Fri 17-Jul-15 18:20:14

Hope you are better soon Alie, and things start to look up a bit for you. flowers

AlieOxon Fri 17-Jul-15 18:14:32

Thanks for thoughts now.

Stansgran Fri 17-Jul-15 17:43:34

But relieved to see youflowers

AlieOxon Fri 17-Jul-15 17:08:13

The cold went on my chest and turned into tracheitis....now on antibiotic on top of everything else. Makes me feel dizzy, but I have slept better and not coughed so much the last two nights. No energy though.

I have been lurking but not feeling like posting....sorry.

whitewave Fri 17-Jul-15 07:38:36

I keep looking Alie?hmm Hope you are OK