RLS 3rd really bad night of no/little sleep. I'm pacing in the garage in the wee hours.

I'm back in the house now and my fatigue would barely let me get up the stairs.My legs and body are dead weight.
I lie down. And symptoms are back.
I'm silently screaming.
Got to get up again......

Oh, what an awful night for you! I feel so sorry you are suffering. Hang in there, though, as soon this will ease up and you can rest. I'm sending lots of sympathy, and hope that last pill helped. P.S. I love gransnet but I don't post often because of the time difference.

How horrible. What is RLS?

Restless Legs Syndrome.

mariClaire Thanks. I think I have that in a minor way. I just sit up and read in the middle of the night with my legs waving in the air, but perhaps I have only minor symptoms.

Here's a link www.ninds.nih.gov/disorders/restless_legs/detail_restless_legs.htm
I suffer chronic debilitating pain from several sources myself. I can't imagine the terrible discomfort of RLS when medicine doesn't work. coolgran I hope you're sound asleep right now!

A dear friends OH suffers from LES causing them to have separate bedrooms.
I sympathise and hope tonight you have a peaceful sleep.

Flipping Kindle, changed that ! RLS

Coolgran I hope you don't read this just yet I hope you are in bed sleeping I feel so sorry for you,my neighbour suffers from the same and she claims it is sheer torture she has tried all sorts of treatment and also has to rely on sleeping tablets as a last resort.

I do hope you can at least catch up on some sleep today. This sounds literally like a form of torture which would be taken to the European Court of Human Rights. There must be some help available out there for you.

I agree with everyone else! This must be so awful for you! I do hope you are fast asleep now and ignoring us all.

coolgran what a dreadful experience. Do hope you are sleeping soundly now. Your post puts my own on/off sleep pattern firmly into perspective.

It sounds awful. I always assumed that it was something mild as I dont know anyone with it.

You have my sympathies, bad nights are one thing but the restless leg problem is awful. I had a short bout of this a few years ago and hope it never happens again. It stopped when I stopped some anti-depressants that I'd been taking for a while. My mum had something similar which stopped when she stopped taking statins. Hope you get some sleep and some relief from the RLS soon.

Hi cg - that sounds horrible. I don't know about RLS. Is it only a problem at night - are you able to catch up on sleep during the day? Or can it strike any time you lie down?

Coolgran65 I have a friend who has that. Your's sounds particulary severe. I hope you get some relief and rest soon. (((hugs)))

Coolgran - Hope you can get some rest today with a nice

I also didn't realise how severe it could be and can only send sympathy. Is there an RLS helpline as there seems to be with many conditions? Others experiences can be helpful.

I tried a magnesium spray. Much to my surprise it worked

Oh coolgran I feel so sorry for you, what a truly dreadful thing to have to put up with. I had bouts of RLS during both pregnancies, but not for prolonged periods. Even so it had me almost at screaming pitch at times, so I can only imagine what this must be doing to you.
I sleep very badly, have done for years. I wake up repeatedly and each time I wake I have to pee, so I'm in and out of bed all night. Two nights ago I had a particularly bad night - woke and visited the loo 8 times and each time it was difficult to drop off to sleep again with the result that yesterday I was exhausted all day. But at least I can lie in bed, at least I'm getting rest, no matter how broken my sleep is.
I do hope you eventually managed some sleep last night. and ((((hugs)))) for you.

If anyone here has never had this, let me tell you it is torture. Coolgran you have every ounce of my sympathy - that is perfectly dreadful.

I get it in response to the anti-depressant I take; and I then found the best time to take it in order to be fast asleep before RLS starts. I was offered an anti-seizure drug for it, but decided that as the RLS was drug-induced I would do better to try and jiggle the timing than to add in another drug. Has you GP offered you this? - carbamezapine (?sp) I think it was.

If it does start I take one quarter of a sleeper and it takes the edge off it sufficiently to make it bearable.

Also it is worth looking into any other drugs you are taking in case one of those might be causing it.

Boy, do you have my sympathy - it is miserable in the extreme.

Well, I dropped off and got about one hour's sleep.
You'll never guess what woke me.... I'd been thrashing around the bed so much I didn't know where I was in the bed...And fell out of bed.
66 years old and 'fell out of bed'. !!
DH heard the thud and came to help. Felt such a fool.

RLS is Restless Legs Syndrome, a neurological movement disorder, where horrible sensations present themselves when you try to relax. Most commonly in the legs, I also have it in the arms. It can be anywhere in the body. The sensation is usually one of something creeping under the skin and the sensation builds up until ....you just have to get up and move.
So, car travel,air travel, theatre, movies,....All of these become very difficult.

Also a tiny dose of equip (which is an anti-Parkinsons drug) might help - you should discuss this with your GP. It is the drug of choice for your problem.

Also it can be caused by iron deficiency so that is worth looking into.

Coolgran It sounds truly horrible.