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Adult diagnosis of aspergers/autism

(66 Posts)
mollie Wed 21-Oct-15 11:23:38

I know this has been discussed before but I can't find any reference to it (do they clear the archives?) so please forgive me asking again.

Has anyone here experience of an adult getting such a diagnosis? And if so, did it make much difference knowing for certain?

Nelliemoser Sat 31-Oct-15 09:38:13

Of course you need to understand the cause of any "condition" that can have major implications for a person's functioning if you ever want to be able to help that individual or find ways of helping them with the more difficult behaviour issues this condition raises.
Jane10 Said
Too much is made of the deficits caused by ASD and not nearly enough about the benefits we gain from having people among us with this style of thinking.

I do not see that having autism specially enhances anything, there are plenty of people out there who are capable of great things in arts, science, music etc, etc, who get there without any autistic tendencies.

Having encountered children with severe autism, life is not at all easy for that individual or their carers. It includes severe learning disabilty. This is a syndrome that covers a whole spectrum of behaviours and learning issues and it can be extremely disabling causing great distress to the individual. For those who are severely affected behaviour can be very challenging. Aggression, constant anxiety, and severe self harm.

There was a father talking on the Radio a few weeks ago about his teenage son who self mulitated to the point of biting off chunks of his own lip and was proving too difficult to manage at home. This can be a very nasty severe and serious condition.

The people who make it to adulthood without symptoms being obvious are the luckier ones, but many more or less functioning adults still suffer a lot of isolation because of their lack of social skills.

Ok! my context is an OH who recognises the symptoms. He has an MSc but he has been made redundant from several good IT jobs because of difficulties in getting on with his work due to anxiety. A sort of compulsve prevarication. So his confidence goes down, any valid criticism of his delayed projects lead to him shutting down and then yet another dismissal because he just did not produce the work he was being paid for within any reasonable time frame. He was a mathemetician and very musical all very much the same part of the brain wiring.

I just do not want to play down the potential difficulties this condition can cause.

alchemillamollis Sat 31-Oct-15 09:52:27

My dh manages in life because I look after him. I pay a very high price, however, to which he is entirely oblivious. He does not recognise my support of him, but believes himself completely my superior.

Jane10 Sat 31-Oct-15 09:56:19

There is no doubt that ASD causes significant problems for some. Its a great pity that employers don't appreciate the good points of people with ASD. We live in such a social culture that people with ASD can feel miserably excluded. The people I work with find that their main problem is other people! Some struggle on wearing a social 'mask' which is very wearing. Many enjoy time on their own yet can be made to feel bad for not 'joining' in socially. It helps to accept that they are literally wired to perceive the world differently from neurotypicals and it can be more useful to work from there rather than assume that 'our' take on the world is the only and best one.
This is a colossal subject and not easy to summarise in threads.
The Scottish Govt ASD strategy has produced a doc called "The Menu of Interventions". It lists concisely the actual challenges posed by ASD and states what should be provided. There is also an excellent training framework for NHS staff. Of course having these docs is one thing, implementing them is quite another!

alchemillamollis Sat 31-Oct-15 10:05:18

Yes, my dh would, and indeed does, say that he has no problems whatsoever and I am the one who has issues, because I want to talk, socialise, be valued, etc. That is par for the course.

mollie Sat 31-Oct-15 11:41:00

I wish I'd been more like your OH, alchimillamollis, because I've spent 58 years trying to fit into a NT world and feeling that I am the one who is weird. Only one person amongst my family has taken my needs into account, the rest have acted as though its their way or no way. Work has been a nightmare and i finally gave up when i just couldnt cope with office life and expectations any more even though i was good at my job. So, it may be par for YOUR course but not for everyone.

mollie Sat 31-Oct-15 12:07:42

Further to my earlier comment about people claiming/labelling people as Aspergers, there's a column in today's Guardian that is an interesting example of what I meant ...
www.theguardian.com/lifeandstyle/2015/oct/30/marriage-counsellor-husband-autistic-spectrum-wont-accept

ninathenana Sat 31-Oct-15 13:00:50

roses you mention autism Aspergers and ASD as if they are separate. Autistic Spectrum Disorder describes someone with those conditions. They are either on the perimeter of the ASD circle or at the most severe in the centre of the circle

rosesarered Sat 31-Oct-15 15:48:00

Not so Nina, my DGS has what is called high functioning autism, in no way does he have Aspergers.He is eleven now and we have seen enough specialists and experts over the years to know the difference.

rosesarered Sat 31-Oct-15 15:49:47

I wrote ASD because most people know that term. We know two Aspergers
Boys, and they are very different.

rosesarered Sat 31-Oct-15 15:52:19

So, to be clear, you can be on the spectrum, and you can have either autism or Aspergers, both forms of autism, but children/ adults present differently.

Jane10 Sat 31-Oct-15 16:08:10

The autism spectrum is most usefully looked at as a spectrum of cognitive ability. The fundamental problems apply to everyone on the spectrum but this constellation of difficulties manifests itself differently depending on the cognitive ability of each individual eg someone with a severe LD will present differently from someone with a high IQ who is aware of their problems and can try to compensate for them (although this is hard and tiring).
For simplicity's sake Asperger Syndrome could be said to be autism in people with average or above average IQ.
As I said before this is a massive subject and each individual is different. There is more to a person than their autism -cognitive ability, other genetic components and life experience all shape the person. Presentation may vary a great deal within an individual depending on current stress levels and/or sensory overload.

rosesarered Sat 31-Oct-15 16:10:55

Exactly, and their own character, personality as well.

Iam64 Sat 31-Oct-15 17:00:26

Yes along with childhood and life experiences that contribute to personality development.

ninathenana Sun 01-Nov-15 00:27:43

roses My son has high functioning autism. I know it's different to Aspergers. We thought Aspergers was what he had untill he was diagnosed by a psychologist. What I was trying to say, obviously not very well smile is that they are all part of Autistic Spectrum Disorder.
As you say in your post yesterday at 15.52.

rosesarered Sun 01-Nov-15 12:53:29

Misunderstanding Nina smile