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Diagnosis.

(83 Posts)
rubylady Thu 03-Dec-15 05:47:42

My dad has been diagnosed today (well, Wednesday) with cancer. We don't know the stage yet. He is being operated on on Friday and will follow with CT scan and further treatment. He has vascular dementia too. I am his LPA.

I just came on for some hugs as I have to stay strong for him and keep him going through this. I do have my son, as some of you know, and he has been great recently but teens only do so much although he has listened to my worries and concerns and made endless cups of tea.

I do have one concern. Does he go through months of treatment for the cancer only for the dementia to be worse at the end of the treatment? I am thinking more of his quality of life other than length now really, not knowing if this is the right thing or not but thinking how I would like it. I can and do talk to him but he says one thing one day and another another day. I only want to do what is best for him, obviously.

I am glad I have sorted Christmas out as we are back and forth to the hospital at the moment and resting up inbetween. (Been to bed last night and now back up). smile

soop Fri 11-Dec-15 16:07:50

harrigran and rubylady I am truly sorry and shocked to learn of your news. flowers

Bijou Fri 11-Dec-15 00:08:36

I had bowel cancer twelve years ago which fortunately was cured by the operation and didn't have to have chemo. Two weeks ago found something and was very worried until yesterday after colonoscopy was declared clear. Before that I had decided that at the age of nearly 93 if it had returned I would refuse chemo having seen my husband and sister both suffer the effects only to pass away after a few miserable months.

Faye Thu 10-Dec-15 20:44:22

harrigran this must be a difficult time for you, sending you lots of hugs and best wishes.

ruby I think your dad forgetting what is going on is a blessing, otherwise he is only going to worry.

Katek Thu 10-Dec-15 20:41:17

Ruby lady and Harrigran-hugs and flowers for you both. You are in my thoughts.

harrigran Thu 10-Dec-15 18:50:51

I am trying to do the normal things like the GC's school concerts. Yesterday we had to leave the house at 8.15 to drive 45 minutes, until 8.10 I wasn't sure I would make it, I did and it was worth the effort. DD returns to the UK, for two weeks, next week. It was awful having to give her that news on Skype.

kittylester Thu 10-Dec-15 17:03:16

I have also just caught up with this thread and am sending lots of love healing thoughts for both of you.

ruby, I'm sure you are being a huge help to your father and it is maybe a blessing that he forgetting as he may not remember enough to worry.

Harri, I can't think of anything to say except to send you (((hugs)) and ask you to remember that we are here if you want to offload to us rather than DH or your DC. Keep talking to us.

thatbags Thu 10-Dec-15 16:46:27

rubylady and harrigran, I've only just come upon this thread. So sorry to hear such bad news flowers

KatyK Thu 10-Dec-15 16:17:57

flowers for all who are struggling. My DH was diagnosed with cancer last year and thankfully is now in remission. I totally understand all that this terrible diagnosis brings with it.

grannyactivist Thu 10-Dec-15 14:11:47

Dear harrigran and rubylady sending you both very best wishes. flowers
My mum (also in Manchester ruby) had a very successful operation to treat cancer of the pelvic girdle earlier this year, so there is always hope of a full recovery. As a family we also found the MacMillan nurses are a great source of support and advice.

Marmight Thu 10-Dec-15 13:32:15

Harri I have only just read this thread. I am so sorry to hear your awful news and send my love and flowers To be supported by a loving family and friends after a devastating diagnosis is half the battle. Keep positive....

shysal Thu 10-Dec-15 12:40:00

Thinking of you Rubylady and Harrigan. (((hugs))) flowersflowers

hulahoop Thu 10-Dec-15 12:14:20

Hi harrigran hi went through same diagnosis last year I felt better once plan for treatment was in place I have finished treatment had my first haircut since hair returned take care of yourself and if you want to rant and rave I am here ??

Lona Thu 10-Dec-15 12:11:23

ruby being positive and making him smile is the best thing you could do at the moment flowers

harri I'm so sorry to hear about your diagnosis. Keep your chin up and think positive until those results are through.
((((Hugs)))) flowers

harrigran Thu 10-Dec-15 11:33:05

Thinking of you rubylady. I am having a full body CT scan on Friday night and an MRI next Thursday. The waiting is awful, you have the diagnosis but they won't talk to you until all the test results are back sad

rubylady Thu 10-Dec-15 02:42:53

We're back at The Christie on Friday for a full CT scan to see it the cancer has spread further than his groin.

I've done nothing but sleep all day today, I'm really shattered. I know my dad is a bit sore after his surgery last Friday but he seems in good spirits, which I'm happy about at least. He does keep thinking though that when he comes home, he doesn't have to go back again until I tell him that he does, that's not good, but I soon have him joking about again. smile

Nelliemoser Sat 05-Dec-15 11:27:45

Harrigran (((hugs))) for you as well.

Nelliemoser Sat 05-Dec-15 11:25:13

Very difficult times Rubylady ((((hugs)))) A lot will depend on how far the cancer has gone and how much his dementia my affect his ability to make informed decisions about his treatment.

I would suggest talking to the Macmillan nurses as well.

Luckygirl Sat 05-Dec-15 10:53:14

Harrigran - I am glad that DH is there beside you - you must both be going through such a difficult time. Good luck with the scan. I think the waiting for these things is so difficult to deal with. flowers

rubylady Sat 05-Dec-15 01:22:52

Harrigan One step at a time, eh? That's how I'm doing things. It's too much to think about going further than the next appointment really. I am glad to hear that your husband is supporting you, giving you the hugs you need, along with your children and all the good wishes from everyone on here. My dad is due his body scan within next two weeks too, he thought today that once he had had his operation it was all over and he didn't need to go back. He was sad when I said that wasn't the case, until I had him smiling again. I'm not blowing my own trumpet saying that, it's hard to keep coming up with corny jokes to make him smile but I do try. Keep posting on here, let me know how you are doing and I will send good thoughts your way. flowers

We had to be there this morning for 7 am, my dad up at 1am as he has no alarm clock and didn't want to overlie (I have bought him one now) and I was up at 3.30 am to get my tablets etc before picking him up in a taxi. Luckily he was first on the list at 9 am so it was soon done, the waiting was for his discharge and medication. As it was done under local, we could go home soon as these were sorted. We arrived back at 2pm just in time for coffee and mince pies and seeing the Christmas tree being finished decorated and everyone there in the sheltered accommodation where he lives. It was nice, songs playing, people chatting, being supportive but looking forward to Christmas too and the events which they put on in next couple of weeks which I will join in on to make some memories, a choir coming and a brass band.

I think it is important to share other times too and not just be seeing him at hospital times as this will alter our relationship. We need to have some fun too. It's his first Christmas living in the accommodation, last year he was in his other flat with no one around so I want him to have a good time this year. Everyone has been so kind to us both, which at Christmas gives it the true meaning, giving of yourself and your love. X

MariClaire Fri 04-Dec-15 05:22:48

I'm thinking positive thoughts harrigran and sending hugs. I'm sure your lovely DH will give you strength and be there to shoulder your worries. It's a blessing to have your son nearby as well. Children seem to be remarkably able and comforting in these situations. I'll keep you in my prayers through these trying days. flowers

harrigran Thu 03-Dec-15 23:15:09

rubylady, I have a very loving DH who is supporting me. DS lives 45 minutes away but DD lives abroad. Although I saw a consultant privately I will now have to revert to NHS so that treatment can be coordinated. it will be 10 days before I have a full body scan and then they will discuss what treatment I will have. I am in the north east and I will probably be just treated at the local hospital.

Charleygirl Thu 03-Dec-15 22:39:44

Ruby will he remember to be nil by mouth?

Deedaa Thu 03-Dec-15 22:25:46

Judging by our experience Rubylady you should find that the hospital take quality of life very seriously and won't want to use any treatment just for the sake of it. Such a worrying time for you though flowers

cornergran Thu 03-Dec-15 21:32:41

Harrigran and ruby sending flowers and hugs to you both. Always a hand to hold here.

loopylou Thu 03-Dec-15 21:02:52

flowers & {{hugs}} harrigran, I'm so sorry to hear this, you must be reeling.
My thoughts are with you x