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Someone's come for my dad.

(161 Posts)
rubylady Tue 22-Mar-16 03:16:16

My dad's in hospital, cancer now spread to lungs and spine, he has fractures on his spine, broken collerbone from a fall and urine and chest infection. I hadn't seen him since he wanted me to back off a bit but he has got in a state since even though he was being looked after by carers. He looks skin and bone, probably not even 6 stone now, he was a nice size all his life but his legs are like pins. It has been a shock because it has happened all at once.

I have had to try to get him a place in a nursing home for end of life care although it doesn't seem like he will be here long now although he is still eating small amounts of like custard and rice pudding. I have provisionally managed to get him a place, it's up to the ward staff now to sort out his discharge and finances.

I had gone to bed but it all keeps going round in my head and I started to get upset so I got back up.

My mum was on the same ward too last week. She was determined to go and see my dad (they divorced 14 years ago), even though he had vomiting and diarrhoea and was being barrier nursed, she still got to see him. Then when she was leaving for home, she kissed him and said goodbye. Very sad but someone lovely. They were married for over 40 years.

Some might know that he has dementia too, so one thing is that the dementia hasn't got that bad that he didn't recognise me or be too forgetful, if you know what I mean. Both terrible diseases. Poor guy couldn't win.

What are nursing homes like? Are they good on end of life care? Saying that, I used to work in one and that one was nice.

A lot of tears, work, mixed emotions, wondering what to do for the best telling people etc., organizing a funeral. Is it ok to inject a little humour into a funeral or should I keep it straight laced? He was always up for a laugh but I wouldn't like to be seen as disrespectful although he would get it.

Gosh, it sucks. No matter what age you are, you still want your parents to be shouting you in for tea and giving you a clip round the ear for being late. X

NanKate Fri 25-Mar-16 07:53:55

Ruby what a sad time for you my dear flowers

Families can be so hurtful at times. My sister who had a very bumpy relationship with my late mum is still making unnecessary comments about her 22 years later, so don't expect any improvement from your siblings.

Concentrate on yourself and be happy that you did your very best.

Lona Fri 25-Mar-16 07:45:58

rubyflowers Condolences on the death of your dad, and it's good that he had a peaceful ending.
Look after yourself now.

annsixty Fri 25-Mar-16 07:24:17

So sorry to hear your news ruby your dad is at peace and you know you did your best for him.
Look after yourself now and don't let others get to you and upset you.

whitewave Fri 25-Mar-16 07:14:27

ruby may your Dad rest in peace.

Alima Fri 25-Mar-16 06:59:40

Ruby I am so sorry for your loss flowers

kittylester Fri 25-Mar-16 06:48:41

Your dad is at peace now ruby and I'm sure that you helped to make his passing easier. Enjoy your son's company and rest until you can make plans. flowers

gilly, I hope you have time off over Easter and can gather some strength for the coming sadness. brew

Ga, I was wondering how your mum is doing. I hope you feel better soon. flowers

My mum is still with us too and seems to enjoy keeping us on our toes!

suzied Fri 25-Mar-16 02:12:12

?? thinking of those of you going through such a distressing time. Sad to hear about the loss of your Dad, Ruby, he isn't suffering any longer, you did your best for him . ??

WilmaKnickersfit Fri 25-Mar-16 00:19:26

grannyactivist and gilly and anyone else going through difficult times flowers

harrigran Fri 25-Mar-16 00:12:22

ruby sincere condolences on the loss of your father flowers

WilmaKnickersfit Fri 25-Mar-16 00:11:38

ruby I am so sorry to hear your news and how things are going with your brother and sister. The time until you can start making the arrangements is hard, but I hope you and your son can find some quiet time together over the holiday weekend. All you can do is take one day at a time and try to look after yourself so that you can get through the weeks to come. My heart goes out to you and your son. Gentle {{{HUGS}}} flowers

grannyactivist Thu 24-Mar-16 23:58:47

ruby I'm sorry for your loss. flowers

gilly I understand the need to keep things ticking over at work and that you want to be with your mum as much as possible, but it is beyond exhausting so I really do hope that someone is taking care of you. I've been ill ever since I got home from looking after my mum (who continues to linger on) and it's only now that I'm beginning to recover from the strain. flowers

rubylady Thu 24-Mar-16 23:47:15

The Black Prince was his nickname at work. A welder, he loved it. smile

rubylady Thu 24-Mar-16 23:46:07

"The Black Prince has left the building."

My dad died this afternoon, very peacefully and he looked like he was pain free. I was there with my sister and brother both yesterday and today, in the nursing home. They crawled out of the woodwork to come and see him at last. It's been years since both were bothered about him.

Today, I had nipped out but had asked staff to see if they could get a vicar to come and say a few words before he went. She came to see him when I wasn't there. My sister asked her "Do we really need to do this? It's my sister who has asked you, I'm not religious." The vicar replied that seeing as I had asked, she would say a prayer and then did so. She then placed her hand on his head and told him to go to God. He took another breath, a tear ran down his cheek and he stopped breathing. It is very strange that he died as she placed her hand on him and released him to God. I got back just after but didn't beat myself up about not being there. I have told him many times how I feel about him and appreciate what he has done for me, so I didn't feel guilty and he was ready. He didn't look like himself though.

For the last two day all I have got is how we need to pull together, be there for each other, not make the same mistakes our parents made, not concentrating on a dying man, their own father. I don't want to pull together with them. I have asked for help from them both for years and got nothing.

I will now concentrate on sorting the funeral out. I don't feel sad, just relieved that it was quick and a lovely death (if there is such a thing) and he hasn't suffered for any length of time.

My mum actually ended up on the same ward last week and last Wednesday they were having tea together, reminiscing about their wedding (divorced 14 years now) and telling each other that they loved each other. When she left she kissed him and said goodbye. It was very moving to hear about. But, today my sister has been obsessed about telling my mum how he is and then going to hers to tell her he had died. It was sweet how they were last week, but they are divorced. It could maybe have waited until he had died, have a bit of breathing space and then gone and told her. The focus should have been on him today, not her or whether we "pull together". I feel a bit robbed of the time I should have had just being with him quietly. I took my cd player in and some classical music but my sister was playing Dire Straits next to his bed. She wanted it for the funeral. I have got annoyed though tonight at the comments made, totally inappropriate and unfounded, and definately not for the side of a dying man's bed. I just kept quiet at the time to keep the peace but I have said my peace now.

Plus they wanted to go to his flat and look what they could take. Argh! Where do they get off from taking from a man they haven't seen for years and didn't give two hoots for? When he was going to Christies, no sign of them. But that's normal for them, only on the take, both of them. Get the funeral over with and then I never want to see them again. But I do feel robbed of my day with my own very special loving dad.

Gilly It is fine to add on to this thread, we are going through similar things although I hope that your relatives are better behaved than mine. I do feel for you, it wasn't nice to sit there and see him deteriorate, but he didn't seem to be in any pain after I got them to administer the morphine he was written up for but hadn't been given hmm. I hope that you find some peace in the next few days and weeks and try to look after yourself. As it is for me, he is now with the funeral director and seeing as it is a Bank Holiday weekend, I can't actually do anything more until Tuesday, which, in a way, is a good thing. I can concentrate on making plans, resting and enjoying Easter with my son. Nothing else can be done now. You take care and PM me if you need to or just want to chat.

Everyone else, thank you for all your lovely messages. Apologies this is a long one but I had to vent too over their terrible behaviour. I appreciate your support. I expect it will hit me sometime but for now I am just in a daze, feeling it has happened to someone else. Thanks my friends. Xxx

Regalo Thu 24-Mar-16 18:42:54

The nursing home where my father was for the ten days before he died was amazing. Prior to this he had been in hospital for 8 weeks and quite poorly cared for. Once at the home he was thoroughly washed, looked clean and tidy and was relaxed and comfortable. The staff were absolutely lovely and although sadly I was not with him when he died, one of the nursing staff was. This gave me great comfort as they were able to tell me that he just slipped quietly away. But, it is no easy thing finding the right home....

cornergran Thu 24-Mar-16 18:37:06

Sorry,*Gilly*, didn't realise about your work situation. Please take care of yourself as you can. X

hulahoop Wed 23-Mar-16 18:17:30

Best wishes to ruby and gilly its rubbish losing parents whatever their age keep strong x

annsixty Wed 23-Mar-16 17:09:47

I am in tears reading these posts. I am very emotional anyway at the moment and can only send you both the warmest wishes I can conjure up for the coming days.

Willow500 Wed 23-Mar-16 16:45:58

Heartbreaking situation Gilly - I don't know which is actually worse - when they're lucid and know exactly what is happening which was both my in laws or very confused with dementia which was my own parents. Both my in laws waited until they'd seen all their grandchildren. My FIL said to my son and DIL who had travelled 200 miles to see him 'goodbye and have a nice life' as we left - he passed away the next day sad It sounds as if you're mum is at peace with what is happening to her and I hope you all find the strength to get through what has to come.

Lona Wed 23-Mar-16 16:41:29

flowers For ruby and Gilly. What a rotten time you're both having, I wish we could help ((hugs))

kittylester Wed 23-Mar-16 16:28:37

Well said,*Alea*. I'd only add that we are here for both you gilly and ruby'flowers

Alea Wed 23-Mar-16 15:40:08

Gillybob you have had to bear much in this last year. Hold on to the thought that what you are doing for your mum is the most unselfish action of a loving daughter. For all your sakes, especially your Mum, I hope it will be peaceful and painfree. flowers

gillybob Wed 23-Mar-16 15:24:19

Sitting at my mums house now waiting for her ambulance to bring her home (my dad is with her) hospital bed delivered and in place although I have had a mad dash around to get single sheets and a stash of pillows ( what made me think they would provide them?) . Getting her home will be bitter sweet as I know she doesn't have long. sad
I only wish it were that easy Synonomous effectively I am my own "employer" . I agree with you if (in an ideal world) I worked for someone and could rely on someone else to do "my" workload as it stands it's me or no one .

Synonymous Wed 23-Mar-16 10:46:26

As anno says and more (((hugs))).

When my own DM was dying I allowed my employers to hustle me back to work well before I was able both physically and mentally and it was not good for me. Just thinking about this I have realised that I still have great resentment towards them for this and the resulting fallout. I would advise anyone in the position of ruby and gilly to take as much time or even a little more than you think you need since your head is always ready before your body is. Your body will just stop if you are not careful and it will take more recovery time of that happens.
flowers to all in this position.

harrigran Wed 23-Mar-16 10:35:56

There are no words that help in your situation, stay strong. I send my very best wishes to you and yours flowers

annodomini Wed 23-Mar-16 10:33:01

gilly, ((((hugs)))), what more can I say? Thinking of you and ruby as well. And anyone else in similar distressing circumstances.