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I just want to say thank you...

(29 Posts)
wildrose Sat 05-Nov-16 14:27:57

Hello. I posted a few weeks back about troublesome mornings due to my rheumatoid disease and fibromyalgia and want to update you on the changes I've made and to let you know how much your thougts and advice helped me.
Firstly, I am taking pain meds an hour before my planned start of the day and then taking a hottish shower despite the trouble I have getting to the bathroom. I find that the effort is worth it - even though the loosening effect takes a while I can, most times, manage things sooner that I was able.
I have sent for the compression gloves that someone recommended and plan to source the wax bath equipment as that sounds worthwhile too. My daughter is bringing me a gift today - an electric blanket :-) I am hoping this will have a good effect along with early meds and the hot shower.
One evening last week I had an early evening nap but didn't feel like going back downstairs when I woke and kept drifting in and out of sleep. My husband covered me up just as I was but next morning, having slept in the leggings I wear for lounging, my leg pain was much reduced! I bought myself three pairs of patterned ones to use as nightwear. The restrictive feeling takes some getting used to (and I never ever imagined sleeping in lycra leggings) but that's what I'm going to do!
My consultant increased my amitriptyline to 40mgs to help with the stiffness but I will see how it affects me after a week or so. It may be difficult to tell alongside these other measures I've implemented.
So, I am feeling a little brighter but much more positive and I have all of you who took time to read and post to thank for that flowers

nettyandmasey Sat 12-Nov-16 16:38:04

Hi Wildrose
I have fibromyalgia too plus de Quervains syndrome in hands and back problems , amitryptine helps me to. 35mg then can go up to 45mg any more than that and I'm useless in the morning. I take mine between 6&7 too. I have been toying with idea of electric blanket too. I definitely find a warm bed helps sleep always wear socks and pjs and take a hot bag or bottle to bed. Showers I hate as my hands and feet so cold it's horrid. Was good to hear about heated seat pad for car. I do have a heated waistcoat you blue it in it's heaven. X

pamhill4 Sat 12-Nov-16 21:40:47

Whilst it's wonderful to hear how amitriptylline has helped various people but can I add a note of caution. I've had Fibro for 20+ years and took it for about 15 years but have had to stop as I've got autoimmune hepatitis now, believed to be "caused" by taking amitryptilline and the high dose pain meds according to my liver specialist. Surprising how much you can manage on much lower/no meds though when you have too! Not suggesting anyone stops meds without speaking to GP/Specialist obviously but every medication has an effect on the liver and we're susceptible to further autoimmune diseases unfortunately.

seadragon Wed 16-Nov-16 11:51:30

Not entirely relevant but I find wearing leggings instead of tights and cotton socks under the trousers eliminates thrush! No more itch etc.........