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GP meltdown.

(34 Posts)
Disgruntled Wed 23-Nov-16 10:05:02

Oh, Rubylady how awful! I am so sorry you're having to use your precious energy to try to get some attention, get things moving! Good luck with it all. flowers

Persistentdonor Wed 23-Nov-16 09:51:21

I am afraid I only have staunch support to offer, flowers but also, I would make the observation that it seems a real crying shame a patient has to insist on a different GP, AND go into melt down before anything gets done. sad

sue1169 Wed 23-Nov-16 09:46:50

My Dad had that operation and his quality of life improved 100%?

DaphneBroon Wed 23-Nov-16 08:26:40

This may be entirely unconnected rubylady but DH had a replacement aortic valve 9 years ago . He had the option of tissue or metal but given his other problems including being on immunosuppressants, the tissue valve was considered the better option. Nobody said anything about it only lasting 10 years!! His heart valve seems to be one of the few bits of him which is working without problems, so PLEASE don't let anything about "10years shelf life" scare you unnecessarily

rubylady Wed 23-Nov-16 06:52:56

f77ms Aw, I do feel for you. It's not easy if they are finding out what is wrong and then being told there is no treatment. Life sucks at times, but we do have to look for the positive. I have just watched Would I Lie To You and had a half hour of pain free laughs. What sort of things do you manage to do for some happiness? I have some craft things to do for Christmas and bought a new colouring book today. I also bought some battery fairy lights, but can't get the battery cover off! I really need to get some muscles. grin

My cardiologist has said that they will break ribs, they did when I had my last operation. Like you said, it will be worth it. The only problem is, that the new valves only last 10 years and then they need to be done again. hmm

f77ms Wed 23-Nov-16 06:35:50

Ruby It sounds very scary to have ribs broken but I had 2 ribs removed because I had compression of the blood vessels in my neck . They did it from under my arms , God knows how , but it really wasn`t too bad as operations go . They won`t brake them but go through the softer tissue where they join onto the sternum , It sounds really violent to think of having your ribs broken !! If it sorts your problem out then it will be all worth it . I get fobbed off all the time btw , investigations which show up what the problems are then to be told that there is no treatment. I am very much like you , struggling on and trying to cope with some very unpleasant symptoms and putting on a brave face . I am just grateful for the things I do have and try to concentrate on the good things but it is not always easy . flowers

rubylady Wed 23-Nov-16 04:21:56

Hilltopgran They will have to break ribs! shock

Hilltopgran Wed 23-Nov-16 04:19:25

I can not answer your questions, but hope you will get the treatment you need to help you. After going through such major surgery as a child it must be worrying for you, I do have friends who have had major heart surgery and come through really well with a better quality of life afterwards. I do hope that with a different GP you that you get the treatment you need.

rubylady Wed 23-Nov-16 02:26:49

I had a meltdown today when visiting my doctor. Not my usual doctor as I keep getting fobbed off with the same prescription and nothing changes, certainly not how well I feel. So today I went to see a different one.

I actually went to see him about my ear feeling blocked. Given ear drops. But, as I went in, breathless and hardly being able to talk, he wanted to know why I was so bad. I told him that I keep being given medication and nothing is being investigated. I asked him to be referred to a specialist, anyone, ended up in tears.

He upped my Qvar inhaler to 100mcg, gave me a spacer to take my inhalers and ordered chest X ray and a BNP blood test to see if my symptoms were to do with my aortic stenosis getting worse. I have to go back for the blood test later today (Wednesday).

*Has anyone else had a BNP blood test?

How long before you got the results?

What did the treatment involve and what were the cause of your condition?*

I have had aortic stenosis since birth and have always known that I would need surgery, a replacement valve, at some point but it is still very scary. I have had two open heart operations already, one as a baby and the other at 9 years old, both for a hole in my heart, leaving me with the aortic stenosis.