I've just been diagnosed with Inflammatory Breast Cancer

NemosMum-You have a difficult journey, but stay strong there is so much that can be done now, have you been put in touch with a Macmillan nurse they are brilliant and can offer lots of help and good advice also the Breast Cancer forums offer lots of help comfort and support, also just somewhere to just let of steam when your feeling angry or upset
wishing you well and sending a BIG HUG
Jaxy

NemosMum - hoping that your treatment will be successful. What a nightmare, but with your positive outlook I'm sure you'll come out stronger.the other side. PG.
My mother's sister had a mastectomy, but this was in the late 1950s and she only had radiotherapy afterwards.

Hello, sorry to hear of your diagnosis. I was diagnosed with a different type of breast cancer 13 years ago (who knew there were so many different types of BC?). I gained a lot of support and information from Breast Cancer Care. They have a service called Someone Like Me where they can put you in touch with someone who has had a similar diagnosis. They also have a brilliant help line who I am sure would be able to answer any queries that you may have. Hope this helps.

Hello,
I discovered your message through my search on internet about IBC. I did have one IBC in April 2012, appeared in one night ! I had 6 rounds of chemo (TEC which is taxotere + epirubicin+cyclophosphamid) every 3 weeks. Mastectomy of right breast and also clearage of lymph nodes. 27 radiotherapies and then tamoxifen which I could not bear (a lot of pain and could not walk properly) replaced by letrozole. I had a complete response. And was declared NED at the end of December 2012. I am French, administrator of a French speaking group on Facebook for advanced and metastatic cancers such as IBC. If you need more information, please pm me. The treatments proposed to you make sense. I can provide information in English. Have a nice day.

So sorry, a terrible shock i know. Though being hormone receptive and being able to have tamoxifen is a good thing, i think. Well i hope so as it is seen as a positive in my daughters treatment . Good luck to you. We all wish you well.

nemosmum I am so sorry but I hope the treatment makes you strong and well again very soon xxx

The statistics that one in every eight women in the UK will develop breast cancer at some point in their life is very alarming and I guess this means it will eventually touch most of us either directly or indirectly.

I wish you well over the next weeks and months NemosMum . Stay strong and for goodness sake get well soon.

Sending you lots of for a bright future ahead.

nemosmum not your type of breast cancer so I can't help with anything sensible. I did have a form of breast cancer and can remember the utter panic I felt during the time between diagnosis and treatment. Once treatment starts though I felt that I was doing something positive towards getting rid if it and felt more in control somehow.

All the very best of luck especially through the next few gruelling months.

Bless youNemosMum I too have no experience of this, but I wish you all the luck in the world.

Having watched both my sisters and a cousin go through this, I would just like to send you all the very best as you go through this unwelcome part of your life.

Lots of love coming your way. Makes my worryang about a tooth extraction pale into insignificance.

Best wishes from me too - really hope all goes well for you, and hope you'll have some responses on here from people who've been there and can give you some reassurance

Best wishes

Sending good wishes to you - I am sure there will be people on here who can advise. They are a tough lot on here!

Best wishes from me as well, NemosMum

Good luck Nmum

I had different type of cancer had mastectomy and chemo it's a big shock isn't it once treatment starts you feel like you are doing something . If I can help you can pm me I joined breast cancer forum which helped best wishes take care ??

Me neither NemosMum but I just want to wish you well for your treatment and full recovery.

Same from me

No experience,but sending every good wish xx