My brain hurts!

Sending best wishes Lucky x

Luckygirl, that sounds frightening. I hope all the tests and scans happen on time and the results aren't so frightening and treatment will help you. Best wishes

PS. Acronyms intimidate me too. I use them sparingly to avoid embarrassement

Mawbroom.....
I did not realize that your DH Paw had passed such a short time ago. I admire your posts often with your ready wit and practical wisdom. Please accept my late condolences. I'm truly sorry for your loss.

Hugs Willa

I had an aortic dissection on the Thursday before Easter. Five years ago tomorrow, in fact. It was the weekend that the NHS changed to NHSE and all that entailed. I had MRI and CT scans but nobody knew what it was until on the Tuesday when someone arrived who could read the scans properly.
So if you are having the MRI on the Sunday, you should not have long to wait for the scan to be read. Good luck.

I am MawBroon and Paw was my darling DH whom I lost last November having just turned 70 .

Maw and Paw Broon

I couldn't swear to it but believe that Paw is MawBroon's husband/partner.

Being thick here, keep seeing references to PAW looked at the acronyms and can't see it there , what does it mean?

Luckygirl. How are you today? I. hope youve received a letter confirming yourEaster appointment date?
Not long to wait now.

oh my Lucky, just seen this. Be patient, but persistent too - only a few days to wait for scan - but do make a fuss about getting early read and interpretation, so you can begin treatment.

hugs xxx

Thanks for kind wishes.

I do have a lifeline (installed for OH for when I am out of the house) and during the day I wear it so that if I am in another room and cannot raise him before I lose consciousness I can use that.

Believe it or not we also have a walkie talkie system by the beds - he is in a hospital bed and I am in a super king size one so there is a bit of a distance between us! In fact it was this system that alerted him when it happened last - thank goodness he heard it!

I will be happy when I know what is going on - I do not know what the wait is between scan and results being sent to GP. I must learn to be patient!

Luckygirl can you get one of those alarm gadgets that go round your neck so if you become too ill to actually make a phone call, you can just trigger it? If you don't answer the phone, then they will call your emergency contact and, failing that, call an ambulance. I might help put your husband's mind at rest. I know how worried he must be for you and it must be a source of anxiety for you too.

Adding my good wishes as well, Luckygirl

Sending every good wish!

Lucky, I know what you must be going through. There's nothing worse than worrying, not knowing what's going on and having to wait patiently for answers.

So, as we say in the US.... just 'hang in there' and this too shall pass. In the meantime, I'm sending you healing thoughts and prayers for your complete recovery.

Hugs Willa

I can quite understand that Luckygirl. My Dd has learned to avoid some of the stuff that triggers an attack (like laughing too much) and also has an idea of what the signs are. At the grand old age of 33, I suspect the symptoms aren’t quite as terrible although still frightening but as there isn’t a cure, she might be looking forward to a similar fate.

I take solace from the fact that the NHS do seem to be taking this seriously by speeding up the MRI; but I plan to retain the private CT appointment till I know for sure that Easter Sunday is happening. I have not had anything in writing yet.

The problem with just staying at home when this happens icanhandthemback is that on neither occasion (particularly the second) was there any indication that I might come round on my own as my BP was so low; the paramedic was very worried - I heard what he was saying as I started to surface after he had pushed up my BP with lots of fluids. I do not want to acquire brain damage - age has provided enough of that!

My daughter suffers with a similar problem which has been labelled an autonomic disorder. The first few times she was rushed to A&E, hitched up to the heart machines and everyone was terribly worried. Now they’ve given her morphine to take away the pain and told her to get on with it. It’s just another thing to floor her like dislocating joints, eyes that stick to her eyelids so they tear and inexplicable vomiting/dizziness.
Hope you get sorted out.

Once you are in the hands of the hospital your GP isn't able to make decisions about your treatment. GPs are never involved in decisions about hospital tests.

You are out of his or her care now for this ailment.

The MRI results may be conclusive. If not then NHS will take the next step for you.

The fact that you are at home and being treated in outpatients is reassuring.
When the ambulance took you to hospital you were not rushed in for scan immediately and not admitted, take some solace from the positive.

I have had both types of scan many, many times, once on the same day in an emergency, sometimes within a few days of each other. (Numerous NHS inpatient stays).

I think your GP has made the wrong call and the consultant at the hospital has overided with a much more informed choice. GP's do not have the specialist knowledge in a chosen field.
Listen to the hospital. I'd cancel the private scan, NHS are stars when the illness is serious.

I'm pleased you've got these appointments, Lucky, and quite quickly too. Yes, I agree with others that you shouldn't cancel the private one, just in case. Here's hoping you'll get a clear diagnosis, and that whatever is causing these frightening episodes can be easily treated.
Sending positive vibes and good luck wishes x

Keep hold of the private one. Although I think it is great that the NHS have offered you Easter Sunday if could be a mistake. DH was sent an appointment for a bank holiday, followed a couple of weeks later by another letter saying that 'due to unforeseen circumstances' they had to change it!

Hope they find something nice and simple wrong.

Oh dear...what a frightening situation. I'm glad that appointments have been sorted but, as a doc, couldn't your OH pull a few strings to get you seen sooner?
Meantime, chin up and good luck.

Gosh ! I can't believe it ! I know the NHS has problems with funding ....I live in France (at the moment ...may go back to the UK or not ...depends on a lot of things !) BUT although the French HS is also in dire straits and complaining, like the UK, that there are too many elderly patients (well after all the health services everywhere are now able to keep us all alive longer than ever before, but seemingly never thought of the consequences !) I was taken by ambulance as an urgency last week, only had to wait in the local small hospital for around an hour, during which I was examined , blood tests taken, even a scan (6.00am) fitted with two drips and sent to a bigger hospital by ambulance, where I was given an MRI scan and operated on at 2.00pm for kidney stones and kept in overnight in a private room with tv etc ...the care was wonderful (as I have experienced often, unfortunately ...hospital is not somewhere I planned to be !!!) and discharged at 12.00 the next day by ambulance taxi, paid for , home. SOME, but only a few, of the nurses didn't like the fact that an English person was using their health care facilities, but then, the same applies in the UK with a lot of people !) we do pay a top up to the S1 which is around 200 euros a month ...not a private insurance but this ensures you can receive additional things such as physiotherapy etc if you need and which is not covered by the 100% reimbursement from the French state for any long term illness. WHY do people object to paying in the UK for a better service and more hospitals and staff ?? Yes, it is a big part of our monthly budget as UK pensionersm but it has really been worth it .....transpot is provided every time we need to go to Bordeaux (110 km away) and back, for specialist hospital treatment or appointments ....and yet friends in the UK say 'why should we pay > We paid all our lives into NI etc etc'.......well, so did we, and yes we do at the moment benefit from cover on a reciprocal basis (we still pay some taxes in the UK as well) .......and now read the government is proposing a further tax on the elderly to try to increase the availability of care !! France is in roughly the same boat re care for the elderly ....very very expensive in care homes, but families are encouraged, if they can, to care for their own elderly (not many do nowadays as of course, like the UK, the y need to work in full time jobs ....vicious circle .......

Glad you got your treatment and hope you are feeling better !