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We call on every government in the world to formally recognize ME and sufficiently fund research at the levels needed to treat and, ultimately, find a cure
Sorry to be awkward, but CFS/ME is already recognised by the NHS
www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/
Whether the NHS offers any effective treatment is another question.
But just demanding that governments allocate resources is a simplistic request.
Funding for medical research doesn’t just come from ‘the government’. It comes from drug companies and also comes out of funding for research within universities as opposed to clinical departments. There is overlap between the two as well.
Then of course charities fund a great deal of research.
Given that budgets are not unlimited, if more funding for research into ME was allocated it would be at the expense of research into other conditions.
Would it be fair if the government allocated fewer resources to research into cancer, for example, because a very active charity raises millions for that cause?
I think that what is needed, rather than a petition which in my view won’t achieve anything because the funding issue is so complex, and the allocations are decided by scientists and clinicians, is a campaign to raise awareness in the condition in the hope of stimulating interest from potential researchers who might then apply pressure for more resources.
