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Historic Retinal Detachment

(4 Posts)
Mercedes55 Thu 07-Jun-18 12:53:37

Back in 2011 I noticed that I was seeing bright flashes of light in the periphery of my left eye. I went to see the optician who referred me to my GP, who in turn referred me to our local Moorfields community clinic. It was never flagged up as being urgent and I guess it must have been about 6mths before I actually got an appointment through.

As I was concerned about my eye I made an appointment with an ophthalmologist at a local BUPA hospital and he diagnosed me with something called a Schisis, which is a thinning of the retina. He didn't seem unduly concerned about anything but suggested I see a retina specialist to confirm his diagnosis. At the time I couldn't afford to pay out another lot of money, so I waited till the appointment came through that the GP had arranged.

When I eventually got the appointment at the Moorfields community clinic I was told I had Posterior Vitreous Detachment and a Schisis and was discharged. I was told quite categorically that I didn't have a detached retina.

Fast forward to this year and I went for an eye test back in April and as I twice missed a lot of the dots on the visual field test I was once again referred. This time I had an urgent referral and was seen the next week.

I was seen by 2 specialists who both agreed there was no retinal detachment, but asked me to come back the next day to see the retinal specialist just to confirm. When I went back I was there for ages and the retinal specialist was concerned that I had what he called a historical Retinal Detachment and referred me to see the Retinal Surgeon from Moorfields.

I saw him yesterday and he confirmed that yes indeed I did have this historical Retinal Detachment, something I have never even heard of. He also seemed quite sure that it was already there back in 2011 and was probably historic by then.

It seems I now have so much scarring in my eye that surgery could make things worse as I could lose my central vision. Right now I can see okay, I just have a lot of flickering all around the periphery of my left eye and if it's bright outside I need to wear dark glasses as it's too annoying otherwise.

So right now the surgeon wants to just monitor things, he wants to see me in 6mths time and meanwhile I have to keep a close check on my visual field to see if it changes and go back sooner if it does.

I feel quite shocked and also upset and I just can't get my head round the fact that 4 ophthalmologists didn't diagnose me correctly and I don't seem to have any answers as to why or when this happened. Sorry for the long ramble but I just feel so stressed with it all confused

Luckygirl Thu 07-Jun-18 12:58:30

I had a small retinal tear many years ago and they could not get me to the eye hospital quickly enough, with instructions not to move my head! All mended with laser and all well.

Retina problems are not to be taken lightly.

M0nica Thu 07-Jun-18 20:18:58

Mercedes, that is very hard and very worrying. Have you spoken to Moorfields, or the trust that runs, or even your GP about your concerns?

Mercedes55 Thu 07-Jun-18 22:23:54

I haven't yet Monica, I thought I would wait until I know my GP has received a report from the surgeon I saw yesterday so that we can discuss it, although I'm not sure my GP will know that much about eye disorders.

I'm still just really confused as to how nothing was picked up earlier. As Luckygirl mentioned normally when something is wrong with your eyes you are seen pretty quickly. I don't know if things would have been any different if I had seen someone quickly back in 2011 as the surgeon said yesterday the damage was already there, but I don't know how he can be totally sure about that. All I know is that prior to 2011 I'd not had any symptoms that can be connected to a detached retina.