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Radiotherapy

(34 Posts)
mrsmopp Mon 02-Jul-18 00:28:08

I'm asking for any experiences of radiotherapy from you if you have experienced it. I am soon to undergo treatment for cancer and have no idea what I'm in for.
Please be honest. I'm a bit apprehensive. Thanks.

annsixty Mon 02-Jul-18 05:48:15

There is little to be fearful in having radiotherapy.
I had a treatment daily for five weeks.
Like you I was very worried the first time but it was fine and soon over.
It takes some time to get you in position but once placed the treatment takes no time at all.
You will feel tired after a couple of weeks but rest as much as you can.
Some people experienced slight burning but I had none at all, if you do you are given cream to use.
I haven't heard of burning recently so maybe that has been overcome.
I wish you well in your treatment and it's outcome.
After one session you will lose your apprehension.

nigglynellie Mon 02-Jul-18 06:29:37

Thank you for this info annesixty. My DH will be starting 7 weeks of radiotherapy in the near future. Naturally we are, like mrs mop, a bit apprehensive but your post has reassured us no end. Again, thank you

natnatroswell22 Mon 02-Jul-18 06:33:35

Nobody in the family has tried radiotherapy and as what annsixty said, it's normal for us to be afraid but you'll get used to it eventually. I hope for your fast recovery and God bless!

Auntieflo Mon 02-Jul-18 09:16:57

Mrsmopp, thank you for starting this thread. I have had a diagnosis of a small, breast cancer lump and radiotherapy is part of the treatment. I was told 6 weeks daily treatment, but thought perhaps I had misheard. Here's wishing all undergoing treatment the best for the future.

Panache Mon 02-Jul-18 09:37:31

Mrsmopp......I fully understand where you are coming from and first and foremost may I wish you well and a complete recovery.
Of course you are mid journey and all these treatments meted out are new to us at the onset, and I know well myself anything new which we do not understand can be highly traumatic.It is wise to get further views and learn all you can so that you enter this course of treatment with your head in the right frame of mind.

I have had several life saving cancers thus many operations and different courses of treatment.
Back in 1986 I had my third cancer,this was of a breast with operation followed by 6 weeks course of Radiotherapy.
I was totally unaware of all it meant,living back then in rather a remote area I did go blindly into it all.
However quite frankly I had nothing to worry about.

The worse parts for me was having to travel some 60 miles to the Specialist hospital,staying in an annexe with 8 others (male & female( from Mondays to Fridays......returning home for the weekend.
The treatment itself I found utterly pain free and takes only a few minutes daily........very much like an MRI scanner,you are in this one room alone with sand bags surrounding the areas that are not recieving treatment,whilst the treatment is delivered by machine controlled from outside.
You are then free to do your own thing until the next day............even travel in daily if close at hand.
The only real effects I found were tiredness as it progressed and at one stage my treated breast became highly inflamed for a little while.

Quite frankly in my case I met and made some beautiful lasting friendships and it was most cathartic being able to talk frankly to one another,voicing our own fears and foibles about the disease...............and everything else under the sun!!

It maybe worth while reading my blog "Is there life after cancer,You bet there is"...........because somewhere in it it gives quite an insight to my own personal walk with Radiotherapy.

I sincerely hope this helps and please feel free to P.M me if I can help further.
I was a counsellor in our own Cancer Centre (that a colleague and I actually planned and set in motion in the 90`s)
Good Luck.

dorcas1950 Mon 02-Jul-18 09:47:45

I had radiotherapy some years ago, completely painless, the only after effects were extreme fatigue. You will be fine ☺

JanaNana Mon 02-Jul-18 10:01:55

I finished a 15 day course of radiotherapy, done 5 days over three weeks in April following chemotherapy and surgery. It did,nt take very long to do at all. The radiotherapists put you into the exact position each time and you must not move until it's over. It did,nt take long to do in my case but I expect it depends on what you are having it for. The hospital I attend does,nt provide creams or lotions but gave me a list of suggested ones to buy. I found Simple Rich Moisturiser the best of all to use. Applied it 3 X daily. After about 10 days I did start to feel sleepy in the evenings and it did increase. I became much more tired after the RT finished and found I could not do much or walk very far without needing to rest in-between. Mine did peel like sunburn despite using the moisturiser as I had quite a large scar area to be treated, eventually it settled down. I saw the oncologist again recently and was told the combination of the chemo and RT can make you quite tired and lacking energy for quite a few months and it is normal as your body repairs itself. The radiotherapists were really reassuring and put you right at ease from the beginning.

Elrel Mon 02-Jul-18 10:02:13

Panache, your account is reassuring and good to read. We all dread the unknown in any medical procedure and it helps to hear from others who have been through it.

hulahoop Mon 02-Jul-18 10:05:38

I didn't have it myself but from what others have told me fatigue is one of the main problems regarding skin problems the staff will advise on what to use or you could go on McMillan site best wishes ??

Yorkshiregirl Mon 02-Jul-18 10:34:58

It can depend on where you are having the radiotherapy. Lots of men have it for protate cancer, which involves enemas (self applied) before every radiotherapy session.
My friend had it for anal cancer nd was left very sore.
I personally had it for breast cancer daily for 3 weeks, and it was very simple and painless. Travelling every day can be tiring.
All the best.

KatyK Mon 02-Jul-18 10:40:49

My DH had 37 consecutive days of radiotherapy for prostate cancer in 2015. He was told it could leave him a bit sore and was told to buy E45 cream. He had no side effects whatsover, no soreness and no other problems. I'm sure you will be fine.

Ellie Anne Mon 02-Jul-18 10:53:36

I’ve no experience myself but my husband had many weeks of it for prostrate cancer and had no problems

Mrsdof Mon 02-Jul-18 10:58:44

I also had 20 days of Radiotherapy following Breast Cancer 3 yrs ago. It was very easy, as others have said you just lie still in the position you are put in for approx. 10-15 minutes. There was a slide show on the ceiling which helped pass the time. Other than slight tiredness I had no other problems whatsoever. However 3yrs on I do still get the odd twinge in that particular area but generally no problem. Good luck and hang in there, I’m sure you’ll be fine. flowers

youngagain Mon 02-Jul-18 11:01:20

Mrs Mopp. I don't know much about radiotherapy because I had chemotherapy. However, when you are feeling up to it, ask about the nearest venue where the Look Good Feel Better workshops take place. I am the Regional Co-ordinator for the Portsmouth area, but we have workshops in 104 different venues throughout the UK.- Maggie's Centres, MacMillan Centres, Cancer Care Centres etc. We help ladies, teenagers, and now the men, deal with the visible side effects of cancer treatment. Anyone undergoing any form of cancer treatment is welcome to attend. Every attendee is given a wonderful goody bag from the Beauty Industry and we have a wonderful time at the workshops going through skincare, makeup and showing how to put eyebrows in the right place and give the illusion of eyelashes etc. Our workshops get very noisy with lots of laughter and chat and smiling faces at the end of the workshops. If anyone knows someone going through cancer treatment, please help us to raise awareness so that everyone can have the opportunity to attend a workshop. Our website is:

www.lgfb.co.uk

Hope all is well.

NemosMum Mon 02-Jul-18 11:05:08

You have asked for honesty. I have had 'the works', as my surgeon put it, for inflammatory breast cancer diagnosed last August. First 6 rounds of chemo, then mastectomy and partial clearance of axillary lymph nodes, then radiotherapy. Now I'm having Herceptin every 3 weeks until October. Chemo was predictably YUK, but it was very effective, as when I had the surgery, the tissues removed showed no live cancer cells. The mastectomy was done as day surgery and was straightforward. I had nothing but paracetamol, so I am not a wimp! The radiotherapy was just a preventative measure. I have not had such a positive experience as others on this thread. I asked the clinical oncologist what the marginal benefit of it was. He said he couldn't be sure, as too few women like me had gone through chemo and had a 'complete resolution', but on balance, he advised me to have it (the same is true of surgery, incidentally, in future, chemo might be all that is needed). I went ahead with radiotherapy scheduled for 15 sessions over 3 weeks, but stopped after session 10 because of a very painful swelling in the armpit the size of a golfball. I had read clinical literature available (having been a clinician myself) and the best available evidence for breast cancer was that radiotherapy only confers a 4 - 6 percent survival advantage over 20 years. The swelling in my armpit turned out to be inflamed tissue surrounding a haematoma left over from the surgery. Radiotherapy inflames all the tissues, and indeed, the whole of the irradiated area, which is a large area of my chest is still sore and hard 3 months after stopping. Fibrosis is a common long-term risk of RT. There are other long term risks. Given that the radiotherapy was never meant to be curative, but only preventative, I rather wish I had had the courage to say that I wouldn't bother, knowing that even without the clever chemo regimes there are today, there is only a small likelihood of it preventing recurrence. If the radiotherapy was curative, I would not hesitate, but if it is preventive, I would think carefully before agreeing. However, that was MY cancer, and MY choice. Everybody's cancer is different, and their attitude to risk is different. Good luck with your treatment, whatever you decide.

Nanny41 Mon 02-Jul-18 11:41:37

mrsmopp, good luck with your treatment,I am positive other readers have reassured you.

Topcat7 Mon 02-Jul-18 11:42:31

I had radiotherapy for breast cancer. It is painless procedure although some people do suffer skin burns, I did not. Also some people struggle with fatigue, again this did not affect me, although everyone is different. The only downside I experienced was sometimes having to wait 2 or more hours before being seen!

Rudgy Mon 02-Jul-18 12:22:40

Mrsmopp you will be fine .Its the unknown ,the staff will be so supportive.Please try not to worry .I had it after breast cancer.

NannaM Mon 02-Jul-18 14:43:09

Hi mrsmopp - I'm down to my last 6 radiotherapy treatments for Invasive Ductal Carcinoma. I go daily Monday to Friday - the travelling time is what cuts into the day for me. Travelling to and from the centre can be a bummer, so try to arrange rides. I have been using aloe gel on my skin, and apart from a slight burning on the nipple, so far so good. Unlike NemosMum, I was given to understand that a combination of surgery, radiation and 5 years of Tamoxifen increases the chance of post cancer survival by 25%. I'll take those odds! I have a precious 6 year old granddaughter to live for!

Voni Mon 02-Jul-18 14:58:53

DONT WORRY! It's really not that scary and there is no pain involved - I had 15 sessions daily for breast cancer and worked at the same time-I just planned my treatment to take place in my lunch hour. I got a little sore towards the end but cream helped that and although I was a little more tired than usual, I was still able to hold down a full time job.
Here's hoping you'll sail thro it easily

mrsmopp Mon 02-Jul-18 16:25:21

Thank you all for your very supportive comments. I had surgery earlier last month and attended my follow up expecting to be told all OK, so it was the shock of it that got to me.
I have been very interested in all your messages and I greatly appreciate you sharing your experiences. I've calmed down now and just waiting for the scan.
Get it over with!

Bijou Mon 02-Jul-18 17:17:36

I had five weeks radiotheraphy for anal cancer. It only takes 10 minutes but I had a 30 mile journey each way. Was red and sore but it cleared up and cured the cancer however because of my old bones have a hairline fracture at the base of the spine which is put down to the radiotheraphy. I am now in acute pain.
My niece had radiotheraphy for cerviacle cancer and no ill effects apart from tiredness.

amber22 Mon 02-Jul-18 20:19:14

I had chemo and radiotherapy about 20 years ago for breast cancer. I think treatment has improved since then, I was told I mustn't bathe or even wash the area to be treated (top quarter of torso) and use no creams, lotions etc on that area either, only baby powder.
As others have said the actual treatment wasn't painful, an interesting side effect was that it killed off all my armpit hair that side. Some women spend a fortune on electrolysis!
The main after effect was that it 'solidified' my shoulder joint, couldn't move my arm forward or back from the shoulder. This was a strange thing to have to explain eg in shops when I couldn't move that hand forward to take change. I started wearing a sling though the lower part of my arm worked perfectly well. I believe that this problem side effect has been dealt with now, I hope so for your sake. I finally cured it with Pilates but it took 2 classes a week for over a year, which was timeconsuming and expensive.
Anyway, all the best for your treatment, remember the specialists must think it's worth doing, I still think it was worthwhile and I'm still here

Floradora9 Mon 02-Jul-18 22:05:32

I had four weeks of radiotherapy. My advise would be if possible get an appointment early in the day otherwise your whole day is used up . I got a bit upset when I did not know what was happening so asked the radiotherapists to let me know when they were leaving me . You are flat out and do not see what is going on. I had felt tip markings on the affected breast and worried when I washed some off . This was silly because they just do them again. We made an effort to go and do something every day once the session was over ( and it is all very quick ) which meant we felt we had achieved something apart from the therapy even if it was just for a cup of tea somewhere. . I did get tired at the end of the 4 weeks and this lasted for a while .
I had a scare at Christmas this year after finding a lump and felt if I had to go through it all again it would not be too bad . Thankfully I did not need to do so .
Hope it all goes well.