I'm have to be very proactive, as I have multiple conditions.
At my scan yesterday, I saw a consultant rheumatologist, who hadn't even bothered to read my notes. ( My usual rheumatologist is a star, but this " bored" one was the antithesis of him.)
He did a cursory scan of my hands and dismissively said, " I don't see much wrong." When I pointed out that he had missed out my wrists, where the problems are, he changed his tune. The tendons were badly inflamed.
After scanning, he totally changed his tune, when realised that there had been no improvement since my op two years ago. I explained that I had already had lots of intervention, without any success.
Eventually, he started suggesting various "new" medications. I informed him that I had tried them all with various side effects. None were of any use.
I'll prescribe xxxxxxxxx, says he. I refused. He was annoyed, until I pointed out that due the various conditions I have, I have been already told, that I if take this medication, I will be dead in two months.??
Strange as it may seem, I'm not to keen on dying within two months. I've still a lot of GN posting to do.?
Thank goodness, I'm not a silly old lady, who just does as I'm told and doesn't question. ?
If we can, we all need to be active participants in our healthcare.