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Question for you ladies who've had a hysterectomy

(111 Posts)
MaggieTulliver Sun 05-Aug-18 08:29:19

I'm nearly 61 and am considering having one. I have recurrent postmenopausal bleeding and am fed up with having to be investigated for possible uterine cancer every time I have a bleed - the stress is horrendous and I want to be done with it.

I know it's major surgery and not a decision to be taken lightly and I've read about long-term problems such as increased risk of pelvic organ prolapse and urinary incontinence. It would be very helpful to hear about your experiences and how long ago you had the surgery. Is it a decision you're happy you made or do you regret it?

NfkDumpling Tue 07-Aug-18 21:30:42

Good Luck!

MaggieTulliver Tue 07-Aug-18 21:11:33

Hi Jobey, I hope you've recovered fully from your breast cancer and your menopause is around the corner so the periods stop! I am anticipating resistance, will update towards the end of next week!

Jobey68 Tue 07-Aug-18 21:00:29

I would love a hysterectomy, I'm 50 and have had breast cancer , still have regular heavy periods unfortunately but the still won't give me one even though I argue that I'm better off without the ovaries after having cancer but they are having none of it as we have oestrogen in other places including our fat. Good luck with convincing the powers that be!

NannaM Tue 07-Aug-18 15:45:31

(as opposed to a Family Sedan)!

NannaM Tue 07-Aug-18 15:44:48

I became a Sports Model over 40 years ago. Best.Decision.Ever!

MaggieTulliver Tue 07-Aug-18 09:37:06

I don't think I need to worry about the long-term effects of having a hysterectomy as so many of you had them years ago and haven't reported anything negative!

I'm hoping that if I get offered one, it will be laparascopic as it has the shortest recovery time. Not something that was available when so many of you had yours but abdominal hysterectomies seem to be relatively trouble-free too.

Bend1x Tue 07-Aug-18 06:47:32

I'm like Sleepygran because I too had a Hysterectomy at 37 due to my having a Bladder Prolapse Repair and my uterus descended into my vagina and turned a horrible shade of blue-black. After I had my Hysterectomy the Surgeon said the uterus had become gangrenous so just as well it was removed. I never regretted it and because my ovaries were intact I am now Menopausal but that's fine at age 65.

Sleepygran Tue 07-Aug-18 00:33:02

I had a hysterectomy aged 37. I'm in my 60 s now and have never once regretted it.
My mum had a vaginal hysterectomy when she was in her 60 s and recovered very quickly,and she never regretted it either.She was like you and kept getting intermittent bleeding.she didn't get a prolapse or urinary incontinence and was better than she had been in years.

notgoneyet Mon 06-Aug-18 22:41:11

If you're worried about having it because you're 'nearly 61' MaggieTulliver - I had a vaginal hysterectomy and pelvic floor repair because of a bladder prolapse two years ago at 69. Ovaries were left in. It took me longer to get completely back to normal than I thought it would, but didn't really impact too much on day to day activities other than my being really careful not to lift anything heavy and feeling more tired than usual. Your body will tell you what you can and can't do. Well worth having if it stops those symptoms with all they entail

JoJo58 Mon 06-Aug-18 21:18:52

I had a hysterectomy 25 years ago (aged 35 )due to endometriosis and fibroids (constant bleeding and severe pain) it was the best decision I made it gave me a new lease of life, never had any problems, side effects etc, not so daunting as people make it just make sure you take it easy do as you are told and give yourself healing time and you will feel better for it, it takes time but you will feel better for it, good luck with your decision.

PennyQ Mon 06-Aug-18 20:08:46

I had fibroids and endometriosis and very heavy painful periods. At aged 55 I had total abdominal hysterectomy. Never regretted it for one minute despite the instant menopause and hot flushes. The freedom of not having 12-15 days of heavy bleeding overid all other considerations

Marydoll Mon 06-Aug-18 19:50:48

I meant to say, I kept my ovaries, but had hardly any menopausal symptoms, nor did I need HRT..
The advantages of my hysterectomy, definitely outweighed the disadvantages,

Morgie52 Mon 06-Aug-18 19:40:05

I am 65 and only had a total hysterectomy 3 months ago. After six months of problems and many hospital visits I was finally diagnosed with womb cancer and was petrified at the thought of surgery. Luckily I was able to have keyhole surgery and received excellent care from all this involved. I have now had the all clear for the cancer and have been surprised at the quick recovery rate. I did find that no one quite prepares you for the excessive wind problem which last two or three weeks and that a lot of people get a urine infection shortly after. I also found it hard to deal with the DVT injections which I had to have for four weeks and was unable to do them myself so my husband had the job of injecting me. Sorry don’t want to sound negative I just wish someone had explained these things before. I have to say the actual operations was not as bad as I had dreaded!

Chicklette Mon 06-Aug-18 17:32:10

I had a hysterectomy at 35. I had an abdominal cut and kept my ovaries due to my age. I had 3 young children, the youngest of whom was 2 at the time, so I had to be careful while recuperating, but it was a good decision. No more flooding every 3 weeks, the small carcinoma they found didn't grow into anything sinister and I felt so free. TBH my recovery time felt like a very special holiday! I managed to accept help from friends so time with my daughters was just spent having fun, not doing housework or rushing around. It was 22 years ago now. I assume I've gone through menopause but had no symptoms at all. Just do it!!

nellgwin Mon 06-Aug-18 17:30:25

Total hysterectomy aged 40 years due to excessive bleeding every three weeks as I had had this problem since my teenage years and three pregnancy's
O what a transformation I had a life again, took HRT till my 60s.
Doctor also advised me to have my ovaries removed, as there was research to suggest that ovarian cancer was a silent killer, hard to diagnose in the early stages.
Gave me peace of mind, never regretted it. Go for it.

MaggieTulliver Mon 06-Aug-18 16:39:42

It certainly is redundant Fflaurie! My beautiful daughter is all growed up and I won't miss my womb one bit! I do like the idea of having 3 potential cancer sites removed as well. I really have no idea how the consultant next week is going to respond to my request but I can be quite forceful when I want to!

Fflaurie Mon 06-Aug-18 16:29:25

I had a total hysterectomy and bilaratel oophorectomy, I have NEVER looked back. No pain, no bleeding, no mood swings. and of course, the removal of at least three cancer sites. I went into hospital knowing I would feel better, I was up within 48 hours, in the shower with my drip, I walked around the ward several times a day to get going, I walked when I got home, to the end of the road and back, then again half way so on. Your womb is redundant now, get rid and move forward with a light heart.

Grammaretto Mon 06-Aug-18 16:15:58

I had one 10 yrs ago for prolapse. I was 58. It was vaginal and I kept my ovaries but lost my cervix. No more smear tests.

My surgeon told me I was not to lift anything heavier than a kettle for 6 weeks as I would damage his careful stitching and a repair would never be as good!
Luckily I had help at the start and my DH and DD were great and allowed me to rest.
I have never regretted it. I exercise to prevent further prolapse but I am quite well.
I wonder with curiosity and admiration how all 4 gt grandmothers had at least 8 children. One had 13!
Hope it goes well for you.

Esspee Mon 06-Aug-18 15:25:19

I had my hysterectomy almost 30 years ago. The surgeon went in via my Caesarean section scar so I still have the smiley face down there. It took a month or two to rebuild my strength afterwards but I never regretted it. I am now close to 70, still on HRT and apparently look and act like I am in my fifties. I do have a little bladder weakness but every one of my friends are the same. I would say go for it, and good luck.

Bagatelle Mon 06-Aug-18 14:56:27

I had a hysterectomy when I was 30. I'd nearly died giving birth and was still having so much trouble a year later that it had to come out. It look me another year to get over it, but I did have small children and not much help. I kept my ovaries because of my age, although I was warned that I might hit the menopause by the time I was 36. I didn't.

The decision re ovaries at that time was made entirely due to age, but I think that now there are thoughts that they do continue to have a positive input after the menopause.
www.nhs.uk/conditions/hysterectomy/considerations

sluttygran Mon 06-Aug-18 14:17:28

I had a total hysterectomy and ovaries removed age 48 for heavy bleeding and ovarian cysts.
I was terrified, but it was a doddle. I was a bit groggy the day after, but very little pain or discomfort and I was home and cautiously energetic on the third day.
I felt as though I had been reborn, life was worth living again, and now age 70 I can honestly say that it was a great blessing.
I’ve had no menopausal symptoms whatsoever except an occasional warm spell ( quite welcome in the winter months!)
I guess I’m one of the lucky ones, but the surgery itself is really nothing to worry about. Taking care of yourself after the op is necessary of course - no driving for six weeks, and no heavy lifting for three months, but I was able to exercise gently as much as I wished, and that really helped.
Good luck with whatever you decide to do, and best wishes for a return to full health!

MaggieTulliver Mon 06-Aug-18 14:10:24

Overwhelmed at all the continuing positive stories, thank you so much! GrandmaSueUK, I'm interested in your reason for the hysterectomy. Did the doctors recommend it or did you ask for it? Obviously they didn't find anything, which is great! Did you have scans and hysteroscopies (which I've had) but were unable to get enough tissue for biopsy?

Beejo Mon 06-Aug-18 13:40:23

Yes, here's another positive story.
I had a total hysterectomy 14 years ago (when I was 55) because of extremely heavy bleeding caused by fibroids, and have not looked back, no regrets. The operation was key hole and I recovered fairly quickly, though, to be honest, it was quite painful for a short while.
You mentioned the possibility of pelvic organ prolapse and I have recently had a minor problem with that.
I had an accident last year when I suffered a fractured spine and the resulting muscle weakness combined with the constipation caused by pain killers resulted in what my GP described as a "perfect storm" for a prolapsed bowel.
However I was referred to a brilliant gynae physio who taught me exercises which have totally solved the problem.
One thing that may or may not be mentioned and which I was not prepared for (and it's probably very individual) is that it was like a switch was thrown on my libido. Since the day I had my operation, sex has become something I am totally ambivalent about.

JanT8 Mon 06-Aug-18 13:36:59

I also had my hysterectomy 20 years ago, and yes, best thing I ever did.
I was also advised by my G.P. to have my ovaries removed as ‘ it’s one less place for cancer to strike’. I took her advice and then had oestrogen patches for several years. All good!

Barmeyoldbat Mon 06-Aug-18 13:15:27

I had my ovaries removed due to a small lump on one that could be cancer. Decided to have them out rather than the stress of being monitored every 3 months. No regrets or side effects whatsoever in the two years since it was done.