Apologies for the long post.
I attended a fatigue management group for people with rheumatoid arthritis. It comprised six two hour sessions and was managed by health professionals.
Initially I was a bit wary, but I was in so much pain that I decided to give it a go.
There were no confidentiality problems, no-one in the group knew each other, as the members of the group attended different hospitals.
It was so good to share how I was feeling. Rather than worry my husband and family , I kept how awful I was suffering to myself.
We were given strategies to help manage pain and fatigue, disturbed sleep due to high pain levels, and explanations of why we were experiencing various symptoms. Also we received information on how to work with our employers to manage our conditions.
It was so enlightening One of the worst symptoms of RA is brain fog. I thought I was going mad, as sometimes I just couldn't focus and was constantly forgetting things. It turned out, the other eleven participants had experienced the same thing. I had no idea that brain fog was part of having RA.
We were all able to support each other. There was a young teacher who was struggling, but didn't want to tell her HT how unwell she was, so would put "viral infection" on her sick line, every time she was off.
At that time I was in the process of being medically retired from teaching and I was able to show her how covering up in my own situation had been detrimental to my own health and mental wellbeing.
She found the courage to "come clean", which resulted in a meeting with occupational health, who organised lots of support for her.
It certainly isn't a substitute for a one to one sessions with a Dr, but its a sensible way to disseminate information and offer support to people suffering the same condition, who may be finding it difficult to access a medical professional on a regular basis.
I had been in a very dark place and I definitely benefitted from the sessions, knowing I could contact someone, when an appointment with my consultant was difficult to obtain.