How to explain M.E./C.F.S.

Must read when home. (in airport -very tiring place!). sounds interesting. And yes Squiffy. thats it exactly. You do something like going to arf claß. Everyone thinks "nothing much wrong with her" but they don't see you next day. I suppose really you should excuse people a bit for not understanding. Maybe we would be the same.

Good luck at the airport annep! I dread going there, overload of noise, lights, chemical smells perfumes, people and always miles to walk!

I dread it too Squiffy and fly as little as possible. I often sit down on the stairs or in the tunnel waiting to board, trying not to look odd. I try to book flights cheaply in case I have to cancel. Same with theatre tickets etc. M.E. fluctuates with little warning often and you find yourself unable to do more than exist. . So its either risk booking or never having things to look forward to.
But I'm really thankful for how I am now. So many people including here on GN are so much worse. Being bedbound for years or raising children must be awful. I do hope research moves fast and the public and doctors become better informed and more understanding. And if there are any campaigns being run its a good idea to support them.

Interesting article Squiffy. I think I'll copy this to some people and also to facebook.
So M.E. is real. What a revelation!
And the advice to ask for a double doctors appointment - pigs might fly lol!
But seriously it is good to read this. Fingers crossed for more.

Coming to this late as I realise it's an old thread, but totally sympathise ," invisible illness " is so isolating , and I know I personally try and push myself to do all the " normal" things rather than admit to needing a bit of space/understanding. It's worse when you have family members who are medical and don't recognise some illness as being real !!

I don't have ME but do have an illness which requires I need to be able to access a toilet quickly if necessary. It's hurtful when so called friends roll their eyes whenever you ask where the nearest one is .

I think awareness around invisible illness is increasing but there is still a lot more to be done. If our own families find it difficult to empathise how can we expect anyone else to understand ?

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