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How to explain M.E./C.F.S.

(33 Posts)
MissAdventure Sat 15-Dec-18 22:13:29

Sleep well, annp
Sweet dreams. thanks

etheltbags1 Sat 15-Dec-18 22:03:18

I suffer from tiredness and next day exhaution but i dont have a mame for it but you have my sympathy. Its horrid being so exhausted. Im in bed now from 8 pm most nights

annep Sat 15-Dec-18 21:58:43

Good point MissAdventure. Would be easy to research.
I've thought of printing or sharing online information* Lollin* but I would have to be careful how I do it for fear of offending.
Lemongrove thank you for your sympathy but I don't see her very often. I am visiting. Perhaps if she saw me more she would understand
although I think many people including some doctors are still sceptical.
I empathise with your daughter *
mcem
Thanks everyone. It helped just to tell you.
must rest now.

lemongrove Sat 15-Dec-18 21:31:59

Am sorry that you have a DD with so little sympathy or understanding annep
If I were you I would be doing very much less for her in the future.Put your health first.
Like mcem I have a DD with fibromyalgia (and another DD with M.E.) but these conditions are well known about not rare, so everyone should realise how debilitating they
are.

Lollin Sat 15-Dec-18 21:25:35

So sorry to hear that your own daughter cannot understand what you are experiencing. No idea how you can get her to see. It must make it even harder for you. I wonder if there is any literature available that you can print out with a list of the symptoms highlighted in basic clear terms?

mcem Sat 15-Dec-18 21:22:48

It's fibromyalgia with my DD but she gets similar reactions and "advice".

MissAdventure Sat 15-Dec-18 21:12:43

With all the wealth of information available, I would have thought your daughter would educate herself.

annep Sat 15-Dec-18 21:08:06

In daughters, exhausted. went to bed 8.30. Daughter says if you forced yourself to stay up you would sleep better. How do I explain I can't physically stay up? I can't actually chat any linger. I have barely energy to brush my teeth. If I stay up I will be in bed tomorrow instead of playing with gc. Why do people not believe you? They think you're exaggerating, imagining it. She actually laughed at my "funny tired walk".
What can you do except feel sad that you have a condition that is so debilitating and gets no understanding.