Gransnet forums


Medication supplies

(117 Posts)
GrandmainOz Fri 22-Mar-19 01:46:20

This is NOT a Brexit thread. I'm not giving my opinion on Brexit. I'm only questioning its effects. Please don't tell me your opinions. I'm not interested in arguments.
I'd just like to ask people a factual question: if their medical treatment/medication is being affected?
I'm worried about my very close friend.
He was diagnosed with a significant, at that time life limiting, condition 20 years ago (he's now 60).
After many years of worry, a new medication was trialled and it works. Jubilatation!
It got to the point where he only needed to see his GP every 3 months, and his consultant every 6 months.
He was given 6 months medication at a time and was at last free to travel and had peace of mind as the condition became virtually undetectable.
He moved out of London but found a GP with knowledge of his condition. All was well.
Fast forward to 4 mths ago. GP (Portuguese) goes back to Portugal. 3 mths ago consultant (Spanish) went back to Spain.
The only GP he could find was on the exact opposite end of his (very busy, populous) county. This journey is bad enough but could be made impossible if speculated motorway closure occurs.
He was told he could only have 1 month supply of medication from February. At his March appointment this week, that's been further cut to only 2 weeks' supply at a time.
After 10 years of getting 6 month prescriptions.
My friend's condition would quickly flare up and become potentially very serious without these drugs.
Is anyone else having problems? Have you lost your doctor, or had your supply of medication cut?
I'm so worried for my dear friend who has already been through so much.

GrandmainOz Fri 22-Mar-19 01:50:20

P.S. I didn't mean to sound rude "not interested in others' opinions" sounds very brusque. Please don't misunderstand me. All I mean is I'm asking a practical question as to whether people are having medical worries recently.
Not a political one questioning people's Brexit vote!!

janeainsworth Fri 22-Mar-19 02:53:49

Grandma I think GPs generally are under pressure from their Clinical Commissioning groups (or whatever the correct term is) to prescribe only one month's supply of drugs at a time, presumably to stop patients stockpiling expensive drugs.
If your friend's drugs are expensive, it could be something to do with the practice not exceeding its budget for this financial year, given that this happened in March.
I spend months at a time in the US but when I asked if I could have 4 months' supply of medication instead of 1 month, there was no problem getting my prescription changed.
Perhaps your friend could explain to his GP that he would like to travel and ask for enough medication to cover his travels.

GrandmainOz Fri 22-Mar-19 03:34:39

Thanks jane my friend did enquire about why he couldn't at least have a month's worth, but was told quite sharply that he couldn't. His partner has had to go back to Spain as their job was no longer guaranteed by the UK agency they worked for, so it's a very difficult situation. Thanks for your response

TwiceAsNice Fri 22-Mar-19 08:57:01

My prescription for the year is sent from the surgery to my local pharmacy of choice. They then hold the prescription ( so no need to see GP for another until review appt) If I need extra medication because of being away I just put in my repeat prescription to the surgery and pick up the extra at the chemist a few days later. It’s never a problem. Could you discuss it with the pharmacist and see if they can suggest something?

FlexibleFriend Fri 22-Mar-19 09:34:06

I've only ever been able to get a months supply of drugs at a time so doubt that's anything new. My pharmacy drives me mad I put in a script a week ago for fragmin a daily injection needed to prevent my blood from clotting, they knew it was urgent and I've just been told they should have it by monday. I have to keep a secret supply otherwise I'm left with none and have to see a particular nurse at the anticoagulation clinic at the hospital who will bail me out. Great if she's on duty not so great if she's on holiday. I have a problem every month.

Urmstongran Fri 22-Mar-19 10:00:32

I’m with TwiceAsNice over the 4 years since we’ve retired my pharmacist has allowed me to take 2 months supply of my anti hypertension tablets, with my GP’s approval for when we go to our little place in Malaga. Never a problem.

Marieeliz Fri 22-Mar-19 11:03:43

Only allowed a month at a time. Think it is about stockpiling. If I need them earlier than during date I have to explain to Receptionist why like holiday.

Caro57 Fri 22-Mar-19 11:04:07

It depends a lot on the medication - regulations are changing for many reasons. As suggested a friendly chat with your dispensing pharmacist may shed some light and provide some solutions

Marieeliz Fri 22-Mar-19 11:04:24

Due date!

NanaMacGeek Fri 22-Mar-19 11:06:59

I have had serious health problems for nearly 20 years. My specialists and their teams have been great. Over the years my treatment has been refined and last year, new medication and a new regime gave me the best year healthwise and hope that I could start to plan ahead.

However, my current medication is in such short supply that I was switched to an older product last week. I don't know how effective it is yet and I still haven't heard if I can continue taking that. I run out tomorrow and I can't get any information.

GrandmainOz, I understand what your friend is going through.

jaylucy Fri 22-Mar-19 11:07:07

It may well come down to money and nothing to do with Brexit. Or maybe that particular GP may only prescribe that particular drug that way. Suggest that he sees another GP in the practice?
As far as the consultant and previous GP - they will have been under contract - either annual or 6 monthly and due to leave anyway.
Suggest he sees another GP in the practise (there must be one!) and explain the problem and hopefully will get a month at a time - or has he tried one of the companies that deliver to his home address?
My local surgery will only give out 1 month at a time and you have to give at least 4 days notice for next months supply. Very unusual to be given a 6 month supply unless you are going out of the country!

evianers Fri 22-Mar-19 11:09:12

We sympathise. You are, however, not alone here. At the end of December, our GP retired and has not been replaced. My OH's excellent urological-oncologist has been head-hunted by the Swiss [just across the lake from us], and our lovely opthalmologist also retired at the end of last year. This in an area which is considered "upmarket" and which has absolutely nothing to do with Brexit. Seems as though it is simply a sign of the times Europe-wide.

spabbygirl Fri 22-Mar-19 11:15:29

I think this gov't have been running down the health service to force us to go private because they believe the NHS is too expensive & many NHS staff have left because of it, I'm one of them. Vote Labour next time, they want a flourishing health service for everyone.

Charleygirl5 Fri 22-Mar-19 11:15:53

I must be very fortunate, I have 3 months supply of each drug I am prescribed.

NotSpaghetti Fri 22-Mar-19 11:16:51

Is it an expensive drug? If not, can he get a back-up private prescription?
I know this is sometimes possible.

inishowen Fri 22-Mar-19 11:21:01

I am on blood pressure tablets and was only allowed to get one months supply at a time. After putting in a request they've upped it to 2 months at a time. I'm also on a three monthly B12 injection. They used to give me 2 years supply at once, now it's one phial at a time. I was told it was because the injections can go out of date. I'm on an NHS waiting list to get a mole removed. I've been told it'll be about a year. I just hope it's not cancerous. Whether this is because of Brexit or lack of funds I don't know.

madmum38 Fri 22-Mar-19 11:25:31

I know how it feels, a diabetic magazine said that it was going to be hard getting my particular insulin, I have been on it for 40+ years apart from when I was tried on something else and reacted badly. I asked if this was true and was assured by my doctor there would be no problem.
Last month I had my diabetic review at the hospital and was told my animal insulin was stopping being produced and I had to go on to the human one, no other choice, seems a big coincidence though.
I am so worried as if it goes wrong again there is no going back this time

icanhandthemback Fri 22-Mar-19 11:31:38

I'm not sure how much this is to do with Brexit but to do with a lack of funds and over prescribing. My daughter is in bits as she has a condition that many GP's don't really understand but means that the way she metabolises the standard medication has no effect on pain levels. She has to have Morphine and Diclofenac, the former heavily regulated and the latter no longer prescribed because of the side effects. As she has moved house, the Dr has said she has to move surgeries and she is terrified that the new GP won't understand her condition so won't prescribe what is necessary for her to live a reasonably pain free life. It has taken so long to get to a place where she is able to do things, the thought that she might go backwards is just unthinkable.

GabriellaG54 Fri 22-Mar-19 11:31:54

I think people expect too much.
1 months supply is commonplace.
Be thankful that you have relatively easy access to pharma. Many people don't know what clean water is.

MawBroon Fri 22-Mar-19 11:32:12

From my experience it is a question of economy triggered by the quantities of drugs most people especially the chronically sick keep at home usually for very good reason I hasten to add.
BUT on that persons death all the drugs held must be returned and are destroyed
We ecperienced this with paw whose life limiting illnesses involved a vast raft of drugs which were essential on a daily basis and occasionally compromised by glitches in.the productipn/supply chain.
After his death we returned 2 big plastic boxes of meds - many of them very expensive such as immunosuppressants.
So prescribing 6 months supply as a matter of course is bad practice from the point of potential waste

ReadyMeals Fri 22-Mar-19 11:42:15

The government have made it clear that contingency plans for medication were one of their first priorities and arrangements for that are already in place. Please don't worry x

Phoebes Fri 22-Mar-19 11:49:42

Very helpful, Gabriella, not!

B9exchange Fri 22-Mar-19 11:51:54

I don't think the political situation will affect supplies, but shortages of drugs seem part of life now, recently it was Naproxen, which now seems to be available again. CCGs are cutting down on the amount you can have at one time, I used to be able to get one year's supply of scripts, for drugs I will be on for the rest of my life, sent to the pharmacy so I just rang them up when I needed another two months' supply. (Repeat Dispensing) I am told that is now being stopped, and I will have to go back to the surgery every two months, which is a waste of everyone's time.

BazingaGranny Fri 22-Mar-19 11:58:16

It must cost more in pharmacy time, GP prescription writing time, nurse time and certainly MY time to have my one daily tablet (bp) prescribed for two months at a time, rather than three monthly or six monthsly, as prescribed previously.

GrandmainOz - it might be that a consultant can prescribe medication for six months at a time, and a GP can’t.

Do hope it’s sorted out for your friend soon.

Legs55 Fri 22-Mar-19 12:09:03

I am on medication for Type 2 Diabetes which is only prescribed 28 days at a time. I had a phone call from the Surgery this morning to say that a medication I take for Peripheral Neuropathy (not Diabetes related) is to be regulated to 28 days in future as it is now a Controlled Drug. All my other medications are for longer periods.

I don't think this has anything to do with the Government or NHS rationing. Pharmacists are often best people to discuss medications with, mine does my Annual review not GP. Although they cannot prescribe they have a greater awareness of medications due to their training. A good Pharmacist will always advise if you need to discuss any problems with your GP.

I am very surprised any-one could get more than 2 months supply of medication except in unusual circumstances.

maryeliza54 Fri 22-Mar-19 12:10:26

Our GP surgery does 8 weeks at a time. This is efficient in terms of time and resources. It would irritate me to have to reorder every 4 weeks and I’m sure the surgery has better things to do - both admin staff and doctors.

Granny1London Fri 22-Mar-19 12:39:59

It is estimated that unused medication costs the NHS and therefore the taxpayer about £300 million a year. That is one good reason for monthly prescriptions.
Also pharmacists need to be paid for their work and get a fee tor each prescription dispensed.

maryeliza54 Fri 22-Mar-19 12:50:24

If a GP thinks that a patient is wasting medicines, they should tackle them individually, not make sensible compliant patients like myself and DH have to keep reordering every 4 weeks the medicines we need to keep alive. It's also more work for the surgery staff

maryeliza54 Fri 22-Mar-19 12:52:10

And if you are the type of irresponsible patient who doesn't take their medicines, then how often you can reorder them will hardly turn you into someone sensible will it?

omega1 Fri 22-Mar-19 12:53:08

I've just been diagnosed with pernicious anemia. Does anyone else have it. I don't know how else to post it as a heading

DotMH1901 Fri 22-Mar-19 13:09:41

I don't think it has anything to do with Brexit as such - GP's and other skilled people move back and forth all the time. My daughter needs Durogesic patches to help manage the pain she is in - her prognosis is that she will, most likely, need them for the rest of her life yet her GP will only issue a one month prescription for them at a time. During the Summer the patches often fail to stick for the required 3 days so she uses more than her normal prescription but it is hard work getting the surgery to authorise a further prescription. I think it is more down to the fact that GP's control their own budgets now and they don't want the expense of issuing prescriptions that might not get used. They really should be able to see where that will cause problems though and make an exception, especially for people like your friend.

Anniel Fri 22-Mar-19 13:11:24

Warfarin is limited to one month here in NWLondon because of safety concerns. There has been over prescribing of meds and as Maw pointed outbwhen someone dies all meds are thrown out. Prescribing only fortnightly seems harsh to me. See the pharmacist about it. I also travel but i can get the doctor overseas to prescribe thise which are available but for one thatbis not avaisblevmy gp here gives me a prescription. It is not due to Brexit. You could just as likely said there is moe demand as medicine advsnces and a growing population plus msny oldiesvliving longer. I do hope your friend gets hrlp.

Sueki44 Fri 22-Mar-19 13:13:19

I’m on medication and so is my husband, but similarly we only get a months at a time. Mine doesn’t really change but his does. Once a prescription leaves the surgery it cannot be returned, even if it’s never been just has to be binned. I’ve been in the surgery several times when bags and bags of unused prescriptions have been returned, either due to death or a change in medication. I think that it is this waste that doctors are trying to eliminate. This summer my husband was in intensive care for several weeks, during this time his prescription needed picking up but I told the pharmacist I wouldn’t take it. He was being medicated in hospital and I knew when he left his drugs would change and his old prescription for some fairly expensive drugs would be superfluous and ,if I’d taken them home they would be wasted.

Anniel Fri 22-Mar-19 13:13:20

Apologies for all mistakes. Typing on my phone is not my forte!

maryeliza54 Fri 22-Mar-19 13:25:58

I suppose that surgeries have different systems but my prescriptions can only be reordered by me - not automatically. So if I didn't reorder, then the prescription wouldn't be dispensed and wasted .

Redrobin51 Fri 22-Mar-19 13:35:52

I have just been old a drug I have been on a long time has now become a "restricted drug" meaning I can only have one month's at a time. Instead of being printed out the go has to handwrite the script and I have to collect and sign for it instead of collecting it from the chemist. This is because it is being used as a top up drug by people who have a drug habit to supposedly enhance their experience so is being sold on the black market for a couple of pounds a tablet which would mean my normal prescription would be worth £230 so I can see the NHS point of view even though it is going to be a pain in the proverbial for me.x

maryeliza54 Fri 22-Mar-19 13:42:25

yes Red I agree in an example like this absolutely.

Direne3 Fri 22-Mar-19 13:45:32

I appreciate the reasoning but still find it disturbing that all returned medication is destroyed when some items could be donated to struggling third world countries.

maryeliza54 Fri 22-Mar-19 13:50:37

Direne when medicine is donated to a developing country, we should respect them enough to make sure what is provided is fit for purpose and hasn't been contaminated in any way or stored improperly

diamondsgirl Fri 22-Mar-19 13:55:08

I must fall into the lucky category..I recently moved house and while giving me a full check up my GP suggested I have a three month supply of my medications, as in the GP’s words, it would save me having to keep asking for repeats. These are then sent to my local Boots chemist where I pick up my medication and can have a chat with them if there are any problems. Maybe you could have a ask your Dr’s receptionist or secretary about the problems.

Direne3 Fri 22-Mar-19 13:59:39

What you say is quite right maryeliza54 and you're totally correct in saying that we should have respect but surely some items could be salvaged without risk.

devongranny Fri 22-Mar-19 14:00:14

Yes I have had difficulty obtaining my usual scripts as they cannot source 2 of them but are trying. Likewise my husband is having difficulty with his usual medications and has been given substitutes as his can’t be sourced either. Hope your friend will be ok.

Riggie Fri 22-Mar-19 14:21:57

For the last couple of years our area has been having a drive on cutting prescription waste. Nothing to do with Brexit!! So I am still getting my regular items on the same 2 monthly basis, but can't order them more than 7 days ahead of running out. The date we can order from comes up on the computer. They will do them earlier if going on a holiday but only with a lot of persuasion!

maryeliza54 Fri 22-Mar-19 14:25:50

Riggie our online system is very similar except we can order two weeks before. All surgeries could do this - its standard software. If you need to order earlier, e.g. going on holiday, theres a free text box you type the reason into

Jalima1108 Fri 22-Mar-19 15:09:30

I was told that, although in some countries, 12 months' worth of the medication I am on can be prescribed, the hospital pharmacist here has said no - on the grounds that a patient could be 'run over by a bus the next day and all those drugs would be wasted'!

Sussexborn Fri 22-Mar-19 15:09:48

The US has had a big crackdown on pain meds and we seem to be following their lead.

Having worked in a GP surgery the amount of wasted medication and paraphernalia is shocking.

Many people just don’t blindly trust GPs any more and some with good reason. Newly qualified GPS and even locums would just refuse to renew prescriptions in a cavalier fashion with no regard to the patient at all. The receptionist then gets verbally abused by the anxious and fearful patients. One of the reasons I left a job I previously loved!

muffinthemoo Fri 22-Mar-19 15:17:36

I got an extended repeat prescription a month ago after discussion with GP because I take a particular branded preparation of a medicine (the generic which is usually prescribed makes me very nauseous for some reason, probably the carrying agent?) and he wanted to make sure I wasn't scrabbling about post-29 March trying to get it.

Van-Nan Fri 22-Mar-19 15:21:26

Hello (first post!)

If I understand it, your friend still lives in the UK? With the move to electronic prescriptions, I would've thought he could have his 'sent' from his GP practice to any dispensing chemist. So, I haven't quite understood why he would need to travel in order to fetch monthly, or fortnightly prescriptions.

I am part of a community of people with a lifelong condition and I know of many students who collect their scripts locally when they are away from home, at university for instance.

Of course, your friend needs to be seen for his reviews, but I would fully expect for him to have his repeat scripts electronically dealt with. Unless I have misinterpreted the situation.

muffinthemoo Fri 22-Mar-19 15:25:47

The other big reason GPs are being strongly urged to cut down on prescribing big lumps of medication at a time is to try and cut down on suicides attempting/completed using prescription medications.

You give someone six months' worth of co-codamol in one go, and they have the wherewithal to complete suicide at any time. The imposition of volume limits on non-prescriptions painkillers such as paracetamol to some extent has to be accompanied by limiting the stocks the NHS will prescribe at once, too.

25Avalon Fri 22-Mar-19 15:26:40

When you are on drugs for any length of time it is important that your general health be monitored for any side effects. I find it concerning that a 6 month supply of drugs can be issued at once and that repeat prescriptions such as my dh has monthly are just doled out year on year without the doctor seeing the patient. These drugs are very strong and taking them over a long period of time can eventually be detrimental. Plus drugs are very expensive and do have a limited shelf life.
There must be someone else at your friend's practice that he can see and get a full explanation of what is happening.

FlexibleFriend Fri 22-Mar-19 15:30:00

Our surgery only issue repeats a maximum of 8 times before you have to see a Doctor so that would be a maximum of 8 months and certainly not year after year.

maryeliza54 Fri 22-Mar-19 15:30:20

But patients are supposed to have regular medication reviews and GP systems should be set up to achieve this

maryeliza54 Fri 22-Mar-19 15:31:13

Yes agree FF that’s what should happen

TrazzerMc Fri 22-Mar-19 15:31:51

I used to get my prescriptions every 2 months then new rules say I can only have 1 months supply at a time . I pointed out to the surgery that I had purchased a pre payment certificate so it doesn’t matter how often I have it the cost remains the same. Might be worth your friend doing the same , the cost is about £100 per year

TrazzerMc Fri 22-Mar-19 15:35:31

Sorry should also have said I can ask for extra if I’m going away. Twice a year have to have blood test to make sure everything is ok , hope this helps x

Faballie Fri 22-Mar-19 15:36:53

I am on medication for several life limiting illnesses and only prescribed one month supply at a time. If I am going on holiday U out in repeat prescription and more the reason it is earlt. I have not had a problem so far. GPs are asked to ensure patients don't stockpile medication as if the worst happens they cannot be used. Morbid I know, but the cost to the NHS is huge.

Chrishappy Fri 22-Mar-19 16:00:25

If this would be a life limiting condition without the medication prescribed, therefore essential I would probably contact either a consultant who may have originally prescribed or maybe there is a hospital clinic for said illness. Otherwise write to the local clinical commissioning body and request larger scripts.

Sussexborn Fri 22-Mar-19 16:12:50

Just occurred to me! Is your friend overdue for a check up? If patients ignored requests to see the doctor or nurse they would limit the amount of medication until they complied.

FlexibleFriend Fri 22-Mar-19 16:31:46

I've just received my monthly prescription of fragmin which is usually 1 injection per day but due to shortages with the supply my dose is unavailable so I've now got 3 injections of a smaller dose every day. I'll be like a pin cushion but hey it's better than being dead.

Luckygirl Fri 22-Mar-19 16:49:08

I get a month's supply; but we have a problem every month with the surgery's pharmacy not being able to get soluble Madopar (for PD) and sometimes they can only get tablets with a smaller dose in, so he finishes up having to take four of them four times a day - on top of many other tablets - but then they suddenly get the right ones and he just has to take 2 four times a day. You have no idea how this confuses him, and I have to use up a lot of time reminding him the dose has changed - and indeed trying to convince him that I am telling the truth!

4allweknow Fri 22-Mar-19 16:53:31

Most GPs only issue repeat prescriptions for about 4 months and that will depend on what the drug is eg for depression, kidney disease. Then they will want a review visit. They are also encouraged to limit the amount on each prescription to prevent waste and patients stockpiling. Drugs/suppliers are always being reviewed for cost and effectiveness so there may well be hiccups now and again in obtaining usual prescriptions. Sometimes something like that enforces a full review of condition and treatment which can be a good thing.

Magrithea Fri 22-Mar-19 17:48:01

Someone else has probably said it but all GPs now can only prescribe one month's medication at a time. DH used to get 6 months worth but now can only get one as can I. It's to do with so much going to waste if either not needed any more or if the patient dies. Even if unopened and in its original packaging all medicine returned must be destroyed!

Saggi Fri 22-Mar-19 17:54:11

We’ve only been able to get 1 months supply at a time....and of course a month in surgery speak is just 28 days. My husband has 7 pills to pop every day....half of them unecessary if he’d only get some exercise...and I have to sort his prescription wonder I pop only one pill a day , and that’s for an ulcer! No change so far at our surgery.

Elles28 Fri 22-Mar-19 18:15:20

For the past two months my pharmacist has not been able to get hold of enough Ropinerole. I have several conditions, I can only ever have a month at a time but this month in addition to not enough Ropinerole my Lidocaine patches have been stopped which gave me enough pain relief to walk. A combination I think of hoarding in other areas and cost cutting by our HA. A sign of things we are going to have to live with.

Jalima1108 Fri 22-Mar-19 18:19:28

If I understand it, your friend still lives in the UK? With the move to electronic prescriptions, I would've thought he could have his 'sent' from his GP practice to any dispensing chemist.

Van-Nan Our GP surgery has just issued DH with a year's prescription for the medication he now has to take. However, this is held at the local pharmacy and he can only pick up 1 month's supply at a time; however, they have assured him that if we are away for longer then he can have extra supplies.

GrandmainOz - has your friend got a new consultant or does he not have to have regular hospital check-ups? He must have had to register with a new GP practice and the local Health Board would surely find him one nearer than having to travel right across the county? That does not seem right.
A sympathetic GP should issue a prescription for longer than one month in exceptional circumstances.

Hollydoilly10 Fri 22-Mar-19 18:39:34

I have been told by a lot of my patients that their Doctor has told them there is no budget for them. It could be his age. He just needs to be a bit more demanding or ask for a consultant appointment
It makes me so cross

icanhandthemback Fri 22-Mar-19 19:17:24

Most medications for chronic illness are on repeat prescription so trips to Dr's are only usually necessary for a review (which the pharmacy can often do). If you use a pharmacy such as Pilltime you can have the prescriptions delivered to your door and some local pharmacies will offer the same service. I am hopelessly scatty so Pilltime put every morning, lunch and evening dose in separate sachets so I can see at a glance what medication I need to take.

Jalima1108 Fri 22-Mar-19 19:37:48

I don't understand, Hollydoilly10 - are you a practice nurse or are you talking about a specific patient who cannot obtain medication because of age?
That is, in fact, something I have never encountered.

Daisyboots Fri 22-Mar-19 20:07:22

It could be that the drug the man is taking is in very short supply so in order for everyone who takes this drug to continue taking it he has been restricted to two weeks at a time. I would suggest he goes across county to see the new specialist and see what he has to say.

We dont live in the UK but there have recently been drugs that are unavailable due to problems at the manufacturers. I went to the pharmacy to get my prescription based glucosamine tablets to be told that there aren't any at the wholesalers and its not known when it will be available. So I have ordered some from my vitamin supplier in England. Also some brands of blood pressure medication have been withdrawn making that in short supply.

GrandmainOz Fri 22-Mar-19 22:17:22

Hello all. Thankyou for your many and varied responses. Much food for thought. Wishing everyone with health conditions all the very best

llizzie2 Sat 23-Mar-19 02:05:39

There are people who want to remain and will say and do anything that they think might stop it happening. They are stupid and wrong to interfere with a democratic vote and all they succeed in doing is fill people with worry. I do not think any of the scare tactics will happen. Some surgeries do not want to dispense large amounts of drugs in advance. I have only ever had a month supply at a time. Some medicines can deteriorate if not kept in the same temperature and there is a real risk of someone breaking in and stealing drugs in the homes of people who pick up large quantities at a time.

NanaMacGeek Sat 23-Mar-19 03:38:28

My prescriptions are written by a hospital specialists and their team arrange for equipment and the blood products I need to be delivered to my home for me to self administer on a regular basis. I am monitored and have to keep careful records which I email to the team looking after me on a monthly basis. These products are incredibly expensive but, without them, I am likely to end up in intensive care, which my nurses assure me would cost a great deal more than my current regime.

I still haven't heard when I will get these products again after I run out tomorrow. After a year of relative stability, I'm pretty depressed, but I'm obviously one of the stupid remainers carrying out scare tactics and trying to stop the democratic process by telling you how I am being affected.

GrandmainOz Sat 23-Mar-19 05:37:11

nanamacgeek I sympathize. My friend fears a similar situation. It seems a great coincidence that a successful treatment regime of a decade has been thrown out of the window at this precise time. And it is definitely not for medical or safety reasons. My friend is a very confident and articulate person. He asked all the hard questions of his specialist consultant and his GP's both the old one and his new one.
No point me posting the answers he received as I'll be pounced on for scare mongering.
But I know what he was told. And he IS scared as a result. Furious too. And I don't bloody blame him.
We watched dear friends die horribly of his condition in the 80's and 90's and the sweet relief of these new drugs given in monitored, lengthy prescriptions to sensible, compliant patients was manna from heaven. Normal life became an achievable goal. And now he, and others, are plunged back into fear and uncertainty.

blue60 Sat 23-Mar-19 07:26:12

My DH is type 1 diabetic and is very concerned about medicine supplies being restricted, or for there to be a shortage.

He first rang the chemist to ask whether they expect supplies to be disrupted and, although they couldn't be sure, they said they are expecting disruption and possible rationing (his supplies come from Germany in the main). Quite how rationing will work when you rely on medicine to stay alive is disturbing to say the least.

He then rang the GP surgery asking the same, and the practice manager said DH was the first person to have asked this question. They are to have a meeting and get back to him...we shall see if they do.

maryeliza54 Sat 23-Mar-19 08:38:54

My husband is T1 also. I tell myself that the Government just can’t not ensure the supply of life saving drugs like insulin. I also tell myself that other countries will ensure we get our supplies as it is a logistics not production issue. I tell myself all this because partly I believe it but also because I haven’t the emotional space in my head to not believe it. I know some drugs are much more problematic and some posts above demonstrate this. I am so sorry for everyone that is being or is frightened of being affected by drug supply and I’m full of contempt for anyone who rubbishes these understandable fears.

GabriellaG54 Sat 23-Mar-19 09:56:02

I appear to be one of the few or the only on here who are not on any meds whatsoever and never have been nor any ops.
Pure luck, outlook?...who knows.

GabriellaG54 Sat 23-Mar-19 09:57:10

Should read 'only one'.

Jalima1108 Sat 23-Mar-19 10:05:32

It's genetic Gabriella

Jalima1108 Sat 23-Mar-19 10:06:06

And luck

Lazigirl Sat 23-Mar-19 10:14:53

I have noticed that medicines we buy over the counter have been in short supply lately, but not sure whether down to Brexit because this does occur periodically, and internationally when drugs in short supply. However I do think Brexit has caused much worry for those who depend on medication which they could not manage without, or even cope with switching to a similar drug. I know at least two people who are stable on anti psychotic meds who are very worried about this. As far as I know for years GPs have only given a month's supply because they are audited on practice drug spending.

GabriellaG54 Sat 23-Mar-19 10:16:02

Father died aged 45 (atherosclerosis)
Mother died aged 75, after 3 ops over 10 years from long-sitting standing bowel cancer, so genetics plays no part as paternal GF died aged 44 and maternal GPs died in their 60s/70s after short illnesses.

Jalima1108 Sat 23-Mar-19 10:21:00

Genetics do play a part but perhaps you inherited the best genes from each side of the family.
Luck, then?
Although some illnesses can be exacerbated by lifestyle, much cannot be explained about why one person does not develop illness yet another living a seemingly perfect lifestyle does.

maryeliza54 Sat 23-Mar-19 10:25:32

Your post is unbelievable GG but what a shame there isn’t a drug people can take to develop compassion

Chewbacca Sat 23-Mar-19 10:28:06


icanhandthemback Sat 23-Mar-19 11:15:50

I appear to be one of the few or the only on here who are not on any meds whatsoever and never have been nor any ops.
Pure luck, outlook?...who knows.

You're right, who knows! Just thank your lucky stars or pat yourself on the back for getting it right GG. grin

MawBroon Sat 23-Mar-19 11:39:52

I appear to be one of the few or the only on here who are not on any meds whatsoever and never have been nor any ops

Likewise, not counting 4 C-sections
Luck not “healthy living” and anyway I reckon Paw more than used up my “share” of the NHS as well as his own sad

Lazigirl Sat 23-Mar-19 11:50:38

More than 90% of those of us over 70 are on prescribed meds. Definitely mostly genetic (evidence based) with some lifestyle and luck thrown in. We can't choose our fore bearers.

maryeliza54 Sat 23-Mar-19 11:52:45

This thread has posts from people concerned about the supply of life saving medicines. I don’t care whether their need springs from genetics, bad luck, lifestyle or outlook ( whatever that might mean). What I do care about is that someone thinks it’s OK to post on here about being the only one not on meds. It’s akin to going on a bereavement thread and asking if you’re the only one on the thread who hadn’t been bereaved.

Gonegirl Sat 23-Mar-19 12:02:47

GabriellaG you say, "Mother died aged 75, after 3 ops over 10 years from long sitting standing bowel cancer".

What does that mean?

maryeliza54 Sat 23-Mar-19 12:05:47

Gone I rather think she thought it was amusing which is what strike throughs are usually used for. If so she was wrong. But then what do I know, only a family whose lives were devastated by bowel cancer.

icanhandthemback Sat 23-Mar-19 12:29:18

I wonder at what point your health woes are your own fault. Is it once you become an adult, when you reach your 50's, 70's? My very active, healthy eating son has managed to damage his back quite significantly. He is congenitally disposed to this type of thing and ironically the key to wellness is by keeping as fit as possible. However, once damaged, repair takes much longer than the norm and IF he can't, he will be forced to take a much more sedentary lifestyle. If he gets bowel cancer, will it be his fault? Now I am starting to worry that he has been completely feckless. confused

Lazigirl Sat 23-Mar-19 15:43:20

I am quite feckless also. I drink alcohol, in moderation, but I know statistically it can increase my risk of breast cancer. I take HRT, another BC risk. I don't take enough exercise, but do some. I sometimes eat cake.......oh dear! I don't have 5 a day, perhaps 3 or 4. I suppose I will die hmm

NoddingGanGan Sun 24-Mar-19 14:23:17

Just to say that diclofenac is still available. My GP tried to move me to Naproxen citing the side effects but it just didn't work for me and my Rheumatologist put me back on Diclofenac and sent a letter to my GP to say that I had to to remain on Diclofenac. That notwithstanding I still get the "Diclofenac side effects talk" from my GP every time I go for a review for my routine blood tests, it's bordering on bullying scaremongering now. Last time I saw my Rheumatologist he said Naproxen also had potentially serious side effects but added that the fact that it's a tenth of the price of Diclofenac might also have something to do with it. hmm

Jalima1108 Sun 24-Mar-19 14:41:31

Our GP practice refuses to prescribe either diclofenac or Naproxen except under extreme circumstances and then for only 2 weeks.

Jalima1108 Sun 24-Mar-19 14:43:36

maryeliza I agree with you.
Smugness sometimes comes before a fall.

Jalima1108 Sun 24-Mar-19 14:49:29

I wonder at what point your health woes are your own fault
Generally not icanhandthemback
Someone who smokes and refuses to give up, knowing the risks, may develop lung cancer - or may not in fact. However, the chances are higher than for someone else who may develop lung cancer having never smoked.

Obesity can cause diabetes - but not everyone will become diabetic and other people develop it who have remained slim and fit.

Someone could have every contra-indication to developing a certain type of cancer but still get it.

Much is arbitrary, due to working conditions, location, genetics and many other factors.

I hope your son's back improves soon; my DC is nursing a self-inflicted (sports) injury!

icanhandthemback Sun 24-Mar-19 16:22:26

This is why my daughter is so worried, Jalima1108 and NoddingGanGan. Each surgery has different approaches. She can’t take anything by mouth if it is for anti-inflammatory purposes. I suspect Naproxen suppositories will be as expensive as the other alternative.

GabriellaG54 Mon 25-Mar-19 17:25:20

Mother, apart from going to work (very local to her) led a very sedentary life after my dad died.
She rarely went out and, apart from walking my youngest brother to school (which was where she worked) she preferred to stay in as much as possible. That became more evident when he left home to travel.
Bowel/colon cancer can be exacerbated by not getting enough exercise. Mum also neglected to eat a varied diet.
That is why I called it 'long 'sitting' in place of 'long standing'. Long standing means something that has been going on for a long time. Mum had been sitting far too much.

As for Maryeliza54 having her 2 cents worth about my family situation.
I can say what I like.

Gonegirl Mon 25-Mar-19 17:45:11

Seems a little bit mean to blame your mum for her bowel cancer. You can't be sure that her not going out much, caused the disease.

Just surprised you would put that on a forum tbh.