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DD will be discharged from hospital this afternoon.

(522 Posts)
merlotgran Fri 26-Apr-19 13:34:01

It will be for the last time as there is no further treatment possible other than pain relief. She wants to be at home with all of us so we will do everything we can to make whatever time she has left comfortable and stress free. We will have support from Macmillan and district nurses and should there come a time when we are no longer able to cope, DD has agreed to go into a hospice.

Family support has been wonderful but I have to admit I'm a little scared and very, very sad.

crazyH Tue 07-May-19 21:00:47

Thanks for the update Merlot.
Yes, we are all thinking of you and your family. You are all so brave.......a gentle, warm hug for your DD xx

Day6 Tue 07-May-19 20:52:05

Just popping in Merlot to wish you and your family the strength to endure such a sad time. Your dear daughter is surrounded and held in your love, and from the outside I know Gransnetters are with you in spirit, sending you gentle, loving and heartfelt vibrations through the ether.

annsixty Mon 29-Apr-19 14:19:41

Love and hugs to all your family.
The boys will love having their mum home as she will love being with them.
Courage and strength to you all .

Gonegirl Mon 29-Apr-19 13:27:14

Happy birthday for yesterday to DGS merlot.

You're doing good. x

Doodle Mon 29-Apr-19 13:24:04

Glad your DD was able to celebrate your DGS birthday. As others have said, more treasured memories. I hope your DD is not in pain merlot. Glad you are getting some help ??

Grandmashe43 Mon 29-Apr-19 10:09:10

Sending loving thoughts too you all xxx

rosiepop Mon 29-Apr-19 07:51:48

I am so very sorry that you and your family are facing such terrible sadness. You are in my thoughts and prayers.??

dinks13 Mon 29-Apr-19 06:54:25

Merlot, i have no words, mere words just don’t seem enough, but i am so so sorry. You are all in my thoughts and prayers. Xx

GinJeannie Sun 28-Apr-19 22:05:56

You and your family have such a heavy load to bear. Life is so unfair. I pray that you will be given the strength to cope with the coming days, weeks and months.

Nandalot Sun 28-Apr-19 21:25:36

You and your family are in my thoughts and prayers. flowers

jura2 Sun 28-Apr-19 21:16:14

Been travelling last couple of days, coming to UK to vist our DDs - I am so so sorry to hear. Can't even begin to imagine what you are all going through.

Warmest wishes

Urmstongran Sun 28-Apr-19 20:59:53

I’ve been thinking of you all from time to time today merlot as this situation must be incredibly sad for you all. x

Mamo Sun 28-Apr-19 20:57:35

Bless you all, Merlot, may the outpouring of understanding and support from all here be a source of strength and comfort for you over the coming difficult days. Sending you virtual hugs from across the Irish Sea also flowers

susieq3 Sun 28-Apr-19 20:13:58

Merlotgran.
Heartfelt thoughts to you and your daughter.
Flowers

kittylester Sun 28-Apr-19 19:25:19

Thanks for updating us Merlot. Still thinking of you often.

Bathsheba Sun 28-Apr-19 19:01:19

I'm glad to hear that merlot, good to know that your DD managed to join in the celebrations a little. You're making good memories in the midst of all the sadness, and creating little pockets of happiness for her.

Always in my thoughts xxx

dragonfly46 Sun 28-Apr-19 17:48:26

I am pleased to hear that Merlot anything to make it a little easier for you all is so welcome. You are in all our thoughts.

Luckygirl Sun 28-Apr-19 17:44:23

Good to hear that merlot - I am glad that you feel supported. You are in my thoughts.

merlotgran Sun 28-Apr-19 17:43:13

Today was DGS's 21st birthday so we had a little tea party - just Prosecco and cake. DD managed a little of each. She's very sleepy and not awake for very long but chatty when she is. We're making the most of these moments.

DGS celebrated last weekend when his lovely cousin stayed for Easter and they went out on the razz every night so it's good to know he hasn't missed out.

District nursing support is very good and will increase when needed. At the moment we're managing with one visit every morning and a nurse from the local hospice will also start visiting on Tuesday.

So far everything is going smoothly.

Bellanonna Sun 28-Apr-19 13:31:54

No words Merlot. Just thinking of you

Dillyduck Sun 28-Apr-19 13:31:53

Have you been told about NHS Continuing Healthcare? It can support your daughter at home for as long as it's needed.

Witzend Sun 28-Apr-19 13:26:57

Words seem so trite - so just sending heartfelt thoughts and flowers XX

janieuk Sun 28-Apr-19 13:07:38

Merlot my heartfelt thoughts go out to you and your family. It is the hardest thing you will ever go through, no one can prepare themselves for losing a child. I hope your remaining time with her can be special. Accept all the help you are offered, and I hope you are getting the support you all need. I work in a hospice - they are amazing places and so supportive to patients and their families; you can usually see people who are admitted start to relax almost immediately. Do consider it if circumstances become too difficult for you all. Wishing you all peace. Xxx

Chewbacca Sun 28-Apr-19 12:15:16

I can only echo what others have said Merlot; I'm thinking of you and your family. stdavids

Notjustagran Sun 28-Apr-19 12:05:01

Dear Merlotgran, this is my first ever post despite being a member for some time.
I just want to send you my deepest sympathy, a post like this puts everything else into perspective. I wish you strenght for the coming weeks my thoughts are with you and your family. flowers