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No diagnosis

(14 Posts)
ninathenana Sat 08-Jun-19 16:42:29

A relative has been having neuro problems for about a year, stumbling/falling poor fine motor skills. I've just found out that the latest fall resulted in 3 fractured ribs.
Numerous neuro investigations have failed to give a definitive diagnosis.
My question to those that have had to deal with someone or indeed dealt with it themselves, (he has no tremors) could it be PD do you think ?

kittylester Sat 08-Jun-19 16:43:47

Sorry, nina, no answers but it must be a worry!

ninathenana Sat 08-Jun-19 16:51:33

Thanks kitty

annsixty Sat 08-Jun-19 16:57:55

Has he been referred to a falls clinic?
When my H started falling he was referred and Parkinson's and ME were the first things ruled out.
He had had stroke previously and it was diagnosed that that ,worsening, was the reason for his falls.
He was thoroughly investigated for most obvious illnesses.

Luckygirl Sat 08-Jun-19 16:58:17

Neurological disorders are sometimes hard to diagnose until (sadly) they get worse.

My OH has had PD for at least 10 years - he did not start with stumbling. He had an obvious tremor in his left hand.

One of his earliest symptoms was the inability to write clearly and this is often the first thing to appear - the poor writing is not to do with the tremor (he is right-handed) but something more complicated going on in the bit of the brain involved in this particular skill, which is of course related to fine motor skills. But writing seems to be something that gets clobbered early, even when other fine motor activities are OK.

Falling has not been the most obvious feature - he has only fallen about 4 times in all those years - unfortunately the last fall fractured his neck of femur and landed him in the helpless state in which he now is.

There are variants of PD and different people have different predominant symptoms. It is a complicated illness and has a lot of other problems associated with it rather than the easily recognised tremor, e.g. gut motility is also affected with severe constipation being common. Anxiety can also be a troublesome feature.

I am sure that the neuro bods will have had PD in mind as one of their possible diagnoses.

Has your relative asked if it might be early PD?

We had no problem with the diagnosis as OH is a doctor and he had known for ages what it was, and chose his moment to see GP at the point when he thought the benefits of treatment might outweigh the potential side effects.

What a worry for you. I hope that some diagnosis will be forthcoming soon.

fizzers Sat 08-Jun-19 16:59:23

howabout poor eyesight?

ninathenana Sat 08-Jun-19 17:17:31

Thanks Lucky an interesting post. I have been texting a friend who's brother was told as you say Lucky, there are many forms of PD which I didn't realise.
He does think his handwriting skills are diminished but I can't really see that his writing has changed.
Eyesight is fine with his glasses, the stumbling is apparently more a case of his legs/joints "giving out"

TwiceAsNice Sat 08-Jun-19 18:19:40

Is it possible it’s some form of MS . My friend was diagnosed several years ago and one of the symptoms was unexplained falling. I’m not a medical person of course and it could be a great many things.

BlueBelle Sat 08-Jun-19 18:26:23

My cousin started falling for no reason, it took a while to identify but it was a brain tumour

MiniMoon Sat 08-Jun-19 18:30:08

A friend of my late mother had vascular dementia, and unexplained falls were one of the earliest symptoms. She had a momentary loss of consciousness which caused the falls. She had no memory of losing consciousness at all.

crazyH Sat 08-Jun-19 18:40:59

Not meant to scare:
My brother had similar symptoms (at age 65)...stumbling, dragging his feet etc. After various tests, he was diagnosed with MND.
Since your relative has had all the necessary tests and nothing found, I would say it's probably age related (you didn't mention his age).

ninathenana Sun 09-Jun-19 13:37:29

His son has MS so I would assume they have looked into that.
He is 70, and has always been very fit. Cycling 10 miles a day as part of his fitness regime. Sadly that is no longer possible.
Thanks everyone for your imput.

EllanVannin Sun 09-Jun-19 13:44:09

Low blood pressure ? A lot of elderly suffer from this due mainly to not following a decent diet.

Has this man had a CT scan of his head ? As it could also be small trans-ischaemic attacks ( mini-strokes which go unnoticed except for imbalance in walking )

M0nica Mon 10-Jun-19 08:59:47

Someone I knew had arthritis and also a pacemaker for an irregular heartbeat. Pace maker or no pacemaker, his heart would still occasionally miss a beat and if he was standing up when this happened he would fall, because his arthritis made him unable to counter the slight loss of balance that went with the missed heart beat.