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Lymphodema in legs

(11 Posts)
annsixty Sun 28-Jul-19 11:30:16

I have lymphodemia in my right arm.
Not the same cause as you, mine is because I had all my lymph nodes removed when I had BC.
I used to see a lymphodema nurse regularly and was fitted for compression sleeves ,they are good for keeping it under control.
Please investigate these and see if you can be prescribed stockings.

ElaineI Sun 28-Jul-19 10:31:55

Not usually caused by your heart as swelling of ankles, legs for cardiac reasons would be both legs. It's not a cosmetic problem and you are entitled to be assessed by a lymphoedema nurse/physio and the stockings/tights are very good quality and give some relief.
Enjoy your festival and hope it's not too wet x

Rowantree Sat 27-Jul-19 14:33:28

Thank you all with suggestions for what to wear at the wedding do - I am making notes so I can take them with me shopping next month :-)
I've never gone for metallic, beaded or embroidered as I never thought it was 'me' - more a linen type of gal - but I'll check it all out at a good John Lewis branch.
Shame that East have gone under as they had a lot of Indian-style clothing.

Elainel I have been overweight (actually I am in the obese category!) for decades - I struggled with depression and anxiety so that, plus the medication and lack of exercise, hasn't helped. I have lost a significant amount in the last couple of years but am still struggling to lose more. I do eat a mainly veg-based diet with some white meat and fish, but have a weakness for puds when we're out and wine ditto - on holiday we had wine every night which isn't a great idea. None of that helps.
I will definitely see my GP when I'm back from my festival and hope for a referral but it's unlikely they'll take it seriously as it will probably be seen as a cosmetic problem.
I'm worried it's something to do with my heart - could that be a factor? I don't have any reason to think that - just hypochondria!

ElaineI Fri 26-Jul-19 23:21:32

I used to deal with this before I retired. You can have primary lymphoedema from childhood which sounds like your description but being overweight can cause it as well so although difficult perhaps consult a dietician as the fluid can leak out the leg and cause leg ulcers.
You should ask your GP to refer you to a lymphoedema specialist (usually nurse or physiotherapist) who can fully assess the leg - do a doppler examination to check the arteries to the lower leg then prescribe stockings/tights to help control it. They are comfortable to wear and look much nicer than in the past. The company we used mostly was Jobst Compression Hosiery - the pharmacies in Scotland should be familiar with them. Not sure about rest of UK. It is a German manufacturer and they are well made. Pharmacies should be able to measure your legs and prescribe stockings as well. Again not sure about rest of UK but in Scotland the pharmacies have a minor ailments service. It might also be done by district nurses. Good luck.

MawBroonsback Fri 26-Jul-19 22:41:28

Look at well known women who have chosen Indian type clothing - Camilla,Judi Dench, Cherie Blair for instance. A coat or longish silk tunic top maybe beaded, and loose trousers can be dressed up for the most formal of occasions.
And cover a multitude of sins!
I hate my legs on a good day and on a bad, they are like tree trunks, so I never wear skirts.
I wore a silk coat and trousers to two of my DDs’ weddings and an Indian stitched coat and velvet trousers to the third (that was in December)
I am only 5’2” and I believe Dame Judi is also on the small side- a dare I say “dumpy”yet she looks fantastic !
Be bold with the jacket/coat, beading, a fabulous fabric, metallic embroidery and perhaps a stunning scarf over one shoulder.
For less formal occasions stick to trousers, loose linen or cotton, but not skinny or stretchy.

Tangerine Fri 26-Jul-19 22:37:59

What about palazzo trousers? I think they might be the solution.

Bubbe Fri 26-Jul-19 22:17:28

I agree that a long dress could be a solution. As I'm very short myself (5' 1" "), I do find that midi-dresses work out to be the right length for a long outfit. If its a less formal 'do', a long skirt and pretty top.

I don't ever wear long for everyday, but long and swishy for special gatherings works for me.

I've been very impressed with a personal shopper process at John Lewis (who'll guide you about colours, cuts, knecklines etc for no charge!). They were really very helpful for me some years ago.

Happy hunting. Maybe with a trusty friend?

Nannarose Fri 26-Jul-19 22:15:56

I am just dumpy with thick ankles!
I would wear trousers - acceptable for all but the most formal wedding (and if you must wear a dress, then wear support tights!)
I would either go:
straight cut linen type trousers, shell top, tunic-type jacket
or floaty trousers, shell top and billowy shirt / blouson

merlotgran Fri 26-Jul-19 21:35:55

Try cutting out gluten from your diet. It worked for a friend of mine who began to suffer from swollen legs and ankles about three years ago. Her legs are back to normal now.

It also helped her to lose weight.

Pittcity Fri 26-Jul-19 21:19:11

I'd wear a maxi dress that shows a bit of cleavage to draw attention elsewhere.

Rowantree Fri 26-Jul-19 20:53:06

I have always had 'big legs' even as a youngster, but as I have aged, my right leg in particular looks awful.
Where other women have ankles and slim lower legs, mine look like sausages - well, the right one does! My ankles and feet swell in hot weather too, but even when it's not hot, my right foot/ankle looks puffy. It's not pitting odema.
I can never wear dresses and tights because I'm so self-conscious. In recent years I've taken to wearing leggings, jeggings and tunics which I love - it's my everyday uniform! Previously it was baggy trousers - unflattering on a short, dumpy middle aged woman. However, in these tighter trousers, the odema is more apparent.
I'm going to my brother's wedding party at the end of September. I know I should be over this vanity thing and not care how I look but how can I go to a wedding in leggings or baggy trousers? I can't put my legs on show!

I'm also going to a festival next week with my daughters, grandchildren and some of DDs' friends. In the heat I'd love to wear cropped trousers but they'd look awful on me. DH says sod it, just wear what you want - it doesn't matter. But I'm increasingly feeling miserable about it.

There is no 'cure', I know, but symptoms can sometimes be managed. The GP isn't interested, but I plan to go again and persist. In the meantime, does anyone else suffer from this, and has anyone ever had lymphatic massage for their legs? Is it effective/painful/expensive?

I should add....I am very overweight for my height and I KNOW that doesn't help matters. I am trying really hard to address it and have lost quite a bit of weight (and regained some, but am back on it now).

Any advice or reassurance welcome! Sorry this post is so trivial amidst the real problems in this world!