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Myoclonic jerks

(34 Posts)
Sallywally1 Mon 14-Oct-19 20:32:16

I know every gets occasional myoclonic jerks when falling asleep and this is perfectly normal.

However for quite a while, but not every day, I will be especially prone to them, usually when tired and when I close my eyes (when not asleep). They can be quite violent and are very upsetting. I have seen a neurologist, had an mri. The neurologist could not a reason. I do have a pinched nerve in my neck and top of the spine, but the neurologist said this would not cause it. Any ideas anyone. Some nights it is terrible as they can jerk me awake when I am about to fall asleep and this can happen multiple times. I do have problems with insomnia, so do get tired and also work full time.

Nonnie Wed 30-Oct-19 10:12:09

M0nica Thu 24-Oct-19 19:09:59 thank you, you saved me saying it. Anyone not understanding those posts must be doing it just to be difficult or not very bright. Don't know why anyone would come on this thread unless they wanted to help.

As a fellow sufferer I had simply accepted it but now we have been told it is caused by stress it makes sense to me. It even happens in the evening when I'm lolling watching TV.

I doubt it is sleep apnoea (sp?) if it happens before we go to sleep, as in my case. Is there anything to be done about it?

Chestnut Wed 30-Oct-19 10:36:24

Nonnie as I said in a previous post I think you have to be honest with yourself about what might be causing you to bottle up your stress or anxiety. If there is someone in your life who is making you feel anxious then face up to it. You also need to feel relaxed about going to bed, not anxious. If you share a bed then maybe switch to separate beds which will make you feel more relaxed. Double beds are well known to cause sleeping problems. Worrying about the jerks will stop you crossing the line into sleep, so you may also need some kind of sleeping pill to push you across that line.

janeainsworth Wed 30-Oct-19 12:32:30

Why so? If he is in contact with his sister then he is in the ideal position to act as mediator between the two
Mediation between two parties can only be done when both are happy with the choice of mediator and the mediator has no personal interest in the situation.
You have no idea of the family dynamics or what has gone before between these siblings. His sister may well resent what she sees as interference.
Even if Sallys son has a warm relationship with his sister, it is still a heavy burden if responsibility to place on him.

Nonnie Wed 30-Oct-19 13:24:24

Chestnut Wed 30-Oct-19 10:36:24 Oh I wish it were that easy! It really isn't, there is absolutely nothing I can do to reduce the stress, it is not in my power or I would have done it.

Yes, I share a bed but don't sleep when DH is not there, he is definitely not my problem.

Thanks for trying to help

watermeadow Wed 30-Oct-19 20:07:05

As this must be neurological I wonder if it is akin to epilepsy?
I had an epileptic dog who had massive myoclonic jerks. He once turned a complete somersault between cluster fits.

Sallywally1 Thu 31-Oct-19 16:48:11

My son has met up with his sister, both he and his other sister are all good friends. He has encouraged me to write, but everything I have done, letters, birthday cards, Christmas presents both for her and her son have met with a wall of silence. My son has really had enough with the situation now and has his own family to think about.

Thank you for all your replies and good wishes. I think I just have to carry this burden of grief for the rest of my life and to try to put a good face on things.

Sallywally1 Thu 31-Oct-19 18:13:09

In a more general way I read that these myoclonic jerks can be brought on by PTSD, which is interesting and possibly relevant to myself and the others on this thread who suffer from them.

Chestnut Thu 31-Oct-19 23:19:15

everything I have done, letters, birthday cards, Christmas presents both for her and her son have met with a wall of silence
I know a man who was estranged from his son for some years in the same way but they are now back together. Never give up, it will happen one day. Just stay open to it, don't give up writing, and make sure you sound loving and welcoming. You could also add 'if there's anything I can ever do for you just let me know'. If you do meet don't have a scowl, meet with a smile. These things are all important in making her feel you are a good person who does not hold grudges. Nothing would be more offputting than a grump.