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OH now on end-of-life care.

(520 Posts)
Luckygirl Fri 24-Jan-20 17:10:07

OH in nursing hone with end-stage PD, and he has been in terrible mental stress with paranoia on top of his total physical helplessness. He shot a temperature yesterday and clearly has some sort of infection - probably chest. I opted for him not to go to hospital, as I know this is what he wants. They are trying (and failing) to get oral antibiotics down, and have scratched all meds non-essential for his comfort . We just want him to go in peace now. But he is intermittently awake and in distress that he cannot articulate. They have all the necessary drugs for palliative care.

I am torn between wanting to keep him and wanting him to just go now so his distress is over. It is a torment

kittylester Sun 02-Feb-20 11:55:43

So sad to hear this Lucky but pleased too that his suffering is over. The sadness for your whole family will get better over time but as lots of people have said, it will take time.

Be very gentle with yourself - you have had a stressful time over the past few years! flowers

Madgran77 Sun 02-Feb-20 11:54:06

Luckygirl flowers Take care

TwiceAsNice Sun 02-Feb-20 11:53:48

So sorry Lucky I send you condolences and will keep you in my thoughts. Just a day at a time for you and your family be glad for all you did for him

lavenderzen Sun 02-Feb-20 11:52:53

Deepest condolences Lucky thinking of you all flowers Those happy memories will come back to you eventually, you did your very best by him xx

cornergran Sun 02-Feb-20 11:47:48

Thinking of you and your family luckygirl, my sincere condolences. flowers x

jura2 Sun 02-Feb-20 11:45:50

Dear Lucky- I am so sorry- and yet, happy that he is at peace now <3

happy too that your massive effort by you and the whole family for his last trip to Switzerland- will provide you with beautiful memories. Much love and hugs, jura

emmasnan Sun 02-Feb-20 11:43:58

So very sorry. My condolences to you and your family x

morethan2 Sun 02-Feb-20 11:43:49

Oh Luckygirl I am so sorry to hear your sad news. I send my sincere condolences to you and your family. Please look after yourself. You have been in and remain in my thoughts.

rafichagran Sun 02-Feb-20 11:42:16

Condolences. I am very sorry about your loss.x

merlotgran Sun 02-Feb-20 11:40:44

So sorry to hear your news, Luckygirl but also relieved for you, your DH and your family.

Don't expect happy memories to sustain you just yet. You have far too much too cope with. They are lingering - waiting to come back when you are ready.

Sending love xx

dragonfly46 Sun 02-Feb-20 11:40:03

Sincere condolences Luckygirl my thought are with you and your family xx

Alygran Sun 02-Feb-20 11:39:03

Luckygirl my condolences. He is at peace now.
Sending love to you and the girls flowers

tanith Sun 02-Feb-20 11:37:47

Sincere condolences Luckygirl your family will give you the strength to get through.

Cherrytree59 Sun 02-Feb-20 11:35:59

My sincere condolences to you and your family.

Luckygirl Your husband is now at peace.

In the not too distant future you will share happy family memories with your daughters.
thanks

mande Sun 02-Feb-20 11:31:00

I am so terribly sorry. God bless you!

annsixty Sun 02-Feb-20 11:29:09

Sincere condolences Luckygirlto you and all your family.
You know you did your best and you did all you could.
Nine months on I still struggle to remember my H before his dementia.
Don’t expect those feelings to go away.
In some ways it helps to make it easier to cope with, I know that sounds awful, but my H died for me many years before his body did.
I think I dis my grieving in those years.flowers

Callistemon Sun 02-Feb-20 11:24:51

Luckygirl flowers

Such a sadness for you all, but a relief for him, he is now at peace.

Luckygirl Sun 02-Feb-20 11:22:40

He died last evening - about 11.15.

Huge relief, but huge sadness too. I am struggling to dredge up happy memories as the last few years have been dominated by his suffering, especially during the last year. I know he is at peace now - but I wish I could have him back - the well OH back who could enjoy life.

It is no way for an erudite, witty musical man to go. Very sad just now.

Nannylovesshopping Sat 01-Feb-20 22:36:05

Thinking of you all at this heartbreaking time, ?

annep1 Sat 01-Feb-20 22:01:35

Its a very hard sad time for you Luckygirl .
Keeping you all in my thoughts and prayers.

Alygran Sat 01-Feb-20 21:36:23

Thinking of you and your girls tonight flowers

kittylester Sat 01-Feb-20 21:34:49

Good post doodle!

I rang a few funeral directors when mum died and just went with the one I liked the sound of on the phone.

I certainly didnt go with the one who kept calling me 'my dear' but the one who I felt 'got' me! He turned out to judge the mood of me and my brothers exactly right.

I hope this is all over for your dh, yourself and your family soon.

sharon103 Sat 01-Feb-20 20:32:13

Thinking of you all. Love and hugs. flowers

Sparklefizz Sat 01-Feb-20 20:28:10

Thinking of you Lucky. xx flowers

Doodle Sat 01-Feb-20 20:22:02

Lucky I am so sorry you and your children are going through this sad time. I would like to comment about you trying to find happy memories but can’t because your DH has been ill for a long time. I know this is nothing like the same situation but my brother died of dementia after many years of not being himself. At first, that was all I could think of after he died was his last few days. Now, when I think of him, I do not remember his last years at all. I think only of the fun and happy times we had together. I hope this will happen for you too.
I hope the end is peaceful my thoughts and prayers with you and your family flowers