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OH now on end-of-life care.

(520 Posts)
Luckygirl Fri 24-Jan-20 17:10:07

OH in nursing hone with end-stage PD, and he has been in terrible mental stress with paranoia on top of his total physical helplessness. He shot a temperature yesterday and clearly has some sort of infection - probably chest. I opted for him not to go to hospital, as I know this is what he wants. They are trying (and failing) to get oral antibiotics down, and have scratched all meds non-essential for his comfort . We just want him to go in peace now. But he is intermittently awake and in distress that he cannot articulate. They have all the necessary drugs for palliative care.

I am torn between wanting to keep him and wanting him to just go now so his distress is over. It is a torment

lovebeigecardigans1955 Wed 29-Jan-20 15:56:57

I'm so sorry, Luckygirl, I know this is heartbreaking for you as I've been there myself. Part of you wants DH to stay alive but you don't want him to suffer so you wish it was over too. It's a terrible state of limbo.
Please be assured that most deaths are peaceful and when he's gone you will feel sad that he's no longer around but relieved that he's no longer suffering. This is the only positive way to look at it. flowers My sympathies to you.

Scribbles Wed 29-Jan-20 15:49:43

Luckygirl, Daughter & I are thinking of you. xx

Maggiemaybe Wed 29-Jan-20 14:34:47

Luckygirl, I am so sorry. Thinking of you. flowers

Caramac Wed 29-Jan-20 13:30:48

I’m glad you have your daughters with you at this difficult time flowers

Doodle Wed 29-Jan-20 13:27:03

Thinking of you lucky flowers

SueDonim Wed 29-Jan-20 13:21:02

I’m glad you have someone to share the strain, Luckygirl. It was a bit like that with my dad, although it was only one day. My mum and brother and I sat round his hospital bed chatting and even laughing at times at fond memories. He rarely roused (pneumonia following cancer) but it was somehow homely to be there talking as though everything was normal.

dragonfly46 Wed 29-Jan-20 09:50:20

Thinking of you Lucky today and every day flowers

BBbevan Wed 29-Jan-20 09:43:35

Thinking of you all.Lucky ???

lavenderzen Wed 29-Jan-20 09:43:06

Take care Lucky, thinking of you flowers

Luckygirl Wed 29-Jan-20 09:17:44

Thank you - all your words are helping to prop me up and I am grateful for this.

Marydoll Wed 29-Jan-20 07:46:41

Good morning lucky, what Kitty has said.
Hoping and for praying for peace for your husband, you and your family.

kittylester Wed 29-Jan-20 07:28:15

Morning lucky. I think you are right to try to keep some normality in your life. Mum stayed with us for quite a while after she was put on end of life care.

Sending love and support.

Curlywhirly Wed 29-Jan-20 07:10:39

Take care thanks

Ginny42 Wed 29-Jan-20 07:02:30

Words are so inadequate at times like these. You have been a pillar of strength and no one could have done more.

Take comfort from all the messages from people who have followed your journey and admire your resolve to give your DH the best possible care over the years.

Grammaretto Tue 28-Jan-20 23:44:53

Sending love and prayers xx

Kalu Tue 28-Jan-20 23:33:24

Sleep well Lucky. Night, night.

Marmight ?

Callistemon Tue 28-Jan-20 23:25:06

Have a peaceful night.

cornergran Tue 28-Jan-20 23:09:02

Love and strength to you all luckygirl, such a difficult time. Xx

Nannylovesshopping Tue 28-Jan-20 22:13:52

Dear luckygirl, always in my prayers x

Auntieflo Tue 28-Jan-20 22:13:34

Luckygirl,
I put that, then don't know what to say. Thank you for finding the time to update us all here.

It is almost an insult to your hard work in trying to find funding for your DH's care, that now it is to be offered at the n'th hour.
You certainly put up a heroic fight, and it has taken a toll, so sleep tight. Night, night, God bless.

merlotgran Tue 28-Jan-20 22:10:42

Thinking of you, Luckygirl

grannyqueenie Tue 28-Jan-20 22:01:03

Thinking of you luckygirl as you watch and wait. I’m so glad you have your girls to share it all with. x

paddyanne Tue 28-Jan-20 21:56:16

he may well be able to hear you even if he appears to be asleep.My sisiter and I sat with mum and chatted about silly things that we'd done in the past ,every now and then mum would open her eyes and add something to the conversation .I think she was glad we were remembering happier times .All she wanted was for us all to remain close when she had gone .
I'll keep a candle lit for you and your family and send my heartfelt best wishes to you all x

Luckygirl Tue 28-Jan-20 21:50:02

If he knew, he would be pleased about that.

Luckygirl Tue 28-Jan-20 21:49:30

My DDs share it with me. And sometimes one will be there when I am and we were just saying today that one positive spin-off in this sad situation is that we get quiet time together when we are not rushing about and dealing with GC, but we can sit and talk while OH sleeps. Precious shared time.