Gransnet forums

Health

OH now on end-of-life care.

(520 Posts)
Luckygirl Fri 24-Jan-20 17:10:07

OH in nursing hone with end-stage PD, and he has been in terrible mental stress with paranoia on top of his total physical helplessness. He shot a temperature yesterday and clearly has some sort of infection - probably chest. I opted for him not to go to hospital, as I know this is what he wants. They are trying (and failing) to get oral antibiotics down, and have scratched all meds non-essential for his comfort . We just want him to go in peace now. But he is intermittently awake and in distress that he cannot articulate. They have all the necessary drugs for palliative care.

I am torn between wanting to keep him and wanting him to just go now so his distress is over. It is a torment

Calpurnia Sat 25-Jan-20 22:55:47

My thoughts are with you “Luckygirl” and with your daughters. You have all done your very best for your beloved husband and I hope this will comfort you in the days ahead. I hope he will soon be released from his unhappy state and that you will have the support you so deserve. We are all here for you. I hope you have a restful peaceful night.

NanTheWiser Sat 25-Jan-20 22:18:38

Very sorry to read this, Luckygirl, (and Scribbles). I echo Urm, sleep tight tonight.
flowers

dragonfly46 Sat 25-Jan-20 22:17:31

I hope you sleep well Lucky

merlotgran Sat 25-Jan-20 22:15:58

I understand those sentiments, Luckygirl. It's an exhausting vigil. Please be comforted by the fact that you have already seen your DH looking peaceful and calm and that's how he will look when you say goodbye.

I do hope you can get some sleep tonight.

Urmstongran Sat 25-Jan-20 22:10:39

Sleep tight Luckygirl x

Luckygirl Sat 25-Jan-20 22:07:17

You are right Septimia - I do wish that he had died, even though I will be broken when he does, and the basic reason is that he cannot have any decent life any more and we cannot hope for that any more.

MadeInYorkshire Sat 25-Jan-20 21:59:00

Oh how awful for you ladies going through this, sending my sympathies to you all .... so terribly sad, and when loved ones are also distressed it makes it much harder xx

Jane10 Sat 25-Jan-20 21:45:43

I hope you manage to have as good night's sleep as possible.

Septimia Sat 25-Jan-20 21:41:45

It feels awful to wish that he had died

Of course it does, Luckygirl. I felt like that about my FiL when he kept rallying but his quality of life was poor and it was hard work for my DH who had had a heart attack.

But we don't actually wish they had died, we wish that the situation could be resolved. The resolution we'd really like is for things to be back as they used to be, but they can't, so an end to the suffering is all we can ask for.

You've been wonderful for your OH and he's been very fortunate to have you. I wish him - and you - peace. x

Luckygirl Sat 25-Jan-20 21:32:05

scribbles flowers

Roses Sat 25-Jan-20 21:31:59

So sorry for you all

paddyanne Sat 25-Jan-20 21:28:45

This will be the hardest thing you have to do in your life,all the strength you have is being sapped by the hour.I remember it well and the feeling of a weight being lifted when my mother died.Not because I didn't love her but because I did and I was glad her trials were over.You'll find the strength to come through it too.Sending all my best wishes for you and your family ,and hoping your OH has a peaceful final hours

Callistemon Sat 25-Jan-20 21:28:07

Lucky thoughts are with you, this must be so difficult.
Try to sleep tonight.
xx

Luckygirl Sat 25-Jan-20 21:21:18

I think he may also have had a TIA as the right side of his mouth is drooping a bit and the right pupil is smaller.

Luckygirl Sat 25-Jan-20 21:20:34

He rallied a bit this morning and was able to drink water - he had been virtually unconscious for 48 hours, no speech at all, and not rousable. He was ranting this morning and saying some very unpleasant things to me; but this afternoon he has been calmer.

He is still very ill, but is conscious.

When he started to rally I did not know whether to be pleased or sad - he looked more at peace during those 48 hours than I have seen him in years and I was just hoping he would drift gently away and not regain full consciousness, and have to suffer all the terror of his paranoia all over again.

It is a dreadful emotional roller coaster. I slept on a chair by his bed for two nights, but have come home tonight as I am on my knees and must get a night's proper sleep.

Part of me wishes that he could just bring all this to an end - his future is so bleak if he survives. The doctor did warn us that if he did not go yesterday or today this could drag on. It is so emotionally exhausting.

It feels awful to wish that he had died but life has nothing for him any more.

Cherrytree59 Sat 25-Jan-20 20:59:24

thanks xxx

glammanana Sat 25-Jan-20 20:57:36

"Luckygirl & Scribbles" sending you both love and hugs at this sad time .

Oopsminty Sat 25-Jan-20 20:52:58

Thoughts are with you

Willow500 Sat 25-Jan-20 20:50:38

You have both been through so much my thoughts are with you as you face this final hurdle. May the end be as peaceful as it can be flowers

Jane10 Sat 25-Jan-20 19:49:21

Luckygirl- very best wishes to you and the family at this painful time. You really did your very best for him.
M0nica andBlueSky I have had similar experiences. Both times it was like the individuals concerned said goodbye and told us to go home for a rest. We did and they slipped away in our absence.

BlueSky Sat 25-Jan-20 19:42:26

Oh M0nica...

Kalu Sat 25-Jan-20 19:27:46

Just come in to say I hope you are getting through the day as well as you can lucky. Much love to you and your family.

M0nica Sat 25-Jan-20 19:02:36

All my sympathies Luckygirl. It is such a terrible place to be and this whole year and more has been so difficult for you.

I had this dilemma with my father, dying slowly, as breathing became more and more of a struggle. The last three weeks I sometime used to think that I wanted to put a pillow over his face and bring his sufferings to an end.

Bluesky, at the end I had exactly the same experience as you - and the nurses said the same thing

grannyactivist Sat 25-Jan-20 18:23:43

Adding my sympathies too Lucky, at such a difficult time for you and your family. When the end comes there will no doubt be a mixture of relief and sorrow, but, hopefully, also the assurance that you did all that could be asked or expected of you.

One note of caution, even when death is expected it is still often accompanied by shock. Glad you have your family alongside to shore you up. flowers

Greenfinch Sat 25-Jan-20 17:57:19

I send my heartfelt best wishes to you too Luckygirl