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OH now on end-of-life care.

(520 Posts)
Luckygirl Fri 24-Jan-20 17:10:07

OH in nursing hone with end-stage PD, and he has been in terrible mental stress with paranoia on top of his total physical helplessness. He shot a temperature yesterday and clearly has some sort of infection - probably chest. I opted for him not to go to hospital, as I know this is what he wants. They are trying (and failing) to get oral antibiotics down, and have scratched all meds non-essential for his comfort . We just want him to go in peace now. But he is intermittently awake and in distress that he cannot articulate. They have all the necessary drugs for palliative care.

I am torn between wanting to keep him and wanting him to just go now so his distress is over. It is a torment

Septimia Wed 19-Feb-20 20:53:08

Oh, Luckygirl, it sounds the most wonderful, personalised occasion. Very hard for you but, like your time caring for your OH, full of love and thoughtfulness.

Take your time grieving but take any suitable opportunities to make your life worthwhile. I hope to hear, in due course, of some of the new things that you do. X

Luckygirl Wed 19-Feb-20 20:44:02

Well - it is over and done.

Everyone tells me it was a special occasion; but it went past in a blur for me. My lovely 17 year old grandson was by my side throughout and I am very proud of him and grateful for his maturity and kindness.

The service was taken by a good friend of us both and fellow musician of my OH's; the coffin was carried by sons-in-law and a dear friend; a friend played a Bach cello suite as the coffin arrived; my son-in-law read my memories; and the 3 girls each read their own and got through somehow; the choir I run ( and of which OH was a part for so many years) sang two songs; an actor friend read from the Song of Solomon about love; a recording of my DD singing the Pie Jesu from Rutter's Requiem was played at the end. It was a very friendly and personalised occasion. I think we could have done no better.

The burial was harrowing; but all the family were by my side.

Afterwards in the village hall was very very hard - so many people from so many different parts if the country and I really did not feel like speaking to any of them - but I did the best I could. I just wanted to curl up somewhere and howl.

But now I am finally at home on my own and I just have to try and get a grip and carry on.

All your kind thoughts helped to sustain me through the day and I thank you for them. My life now enters a totally new phase and I just have to try and find the strength to make it productive and worthwhile in some way.

Many thanks to all of you.

Lona Wed 19-Feb-20 19:48:00

Lucky flowers
Take care of yourself now, you need peace and rest xx

Sark Wed 19-Feb-20 17:58:38

Luckygirl flowers

NfkDumpling Wed 19-Feb-20 17:52:54

I hope all went well Lucky and you’re feeling better. XX

Jane10 Wed 19-Feb-20 16:41:16

Hope it went OK today. A lot of us were thinking of you.

Carillion01 Wed 19-Feb-20 11:49:06

Could not have said it better than JoyBloggs.
Thinking of you and for your DH...Eternal rest, perpetual light, rest in peace xxx

Cherrytree59 Wed 19-Feb-20 11:43:02

thanks

SueDonim Wed 19-Feb-20 11:40:32

flowers

Luckygirl Wed 19-Feb-20 10:25:47

Thank you so much everyone - just about to set off. Family have done just about everything except the order of service - all I have to do is turn up.

My main worry at this moment is whether my Always pad will stay the course. Keep your fingers crossed. Of such are the important moments of life made.

gillybob Wed 19-Feb-20 10:23:19

My thoughts are with you and your family today Luckygirl . flowers

JoyBloggs Wed 19-Feb-20 10:20:49

I have followed your long and difficult journey and am thinking of you and your family. I hope the day passes as gently as possible flowers

Grandmafrench Wed 19-Feb-20 10:20:18

He’s in the best place and he has you. God bless you. x

MawB Wed 19-Feb-20 10:19:05

My thoughts are with you Luckygirl - be proud of the love and devoted care you gave your dear husband throughout his life and when he most needed right to the end.

flowers “May he rest in peace and rise in glory”

Thorntrees Wed 19-Feb-20 10:17:07

Thinking of you and praying you find strength for today.

nanaK54 Wed 19-Feb-20 10:16:21

Sending kindest thoughts to you and your family flowers

Nortsat46 Wed 19-Feb-20 10:11:06

Sincerest good wishes and condolences.
I hope today brings you some comfort. ?

Nannylovesshopping Wed 19-Feb-20 10:07:01

Thinking of you and your family today?

farview Wed 19-Feb-20 10:05:30

Sending you love..?

Bellanonna Wed 19-Feb-20 08:52:20

Lucky ?

dragonfly46 Wed 19-Feb-20 08:21:22

Thinking of you today Lucky flowers

Alygran Wed 19-Feb-20 08:18:40

flowers for you today Luckygirl
My DD spoke at her Dad’s funeral and DGS, then 8, held my hand as we walked in.

Sar53 Wed 19-Feb-20 07:36:27

Thinking of you today Luckygirl and flowers for Scribbles. Much love xxx

Curlywhirly Wed 19-Feb-20 07:29:32

Luckygirl thinking of you today, hope the service goes well. Take care.

Kalu Wed 19-Feb-20 00:37:10

Sending you strength for the day ahead Lucky. My thoughts will be with you

Scribbles ?