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OH now on end-of-life care.

(520 Posts)
Luckygirl Fri 24-Jan-20 17:10:07

OH in nursing hone with end-stage PD, and he has been in terrible mental stress with paranoia on top of his total physical helplessness. He shot a temperature yesterday and clearly has some sort of infection - probably chest. I opted for him not to go to hospital, as I know this is what he wants. They are trying (and failing) to get oral antibiotics down, and have scratched all meds non-essential for his comfort . We just want him to go in peace now. But he is intermittently awake and in distress that he cannot articulate. They have all the necessary drugs for palliative care.

I am torn between wanting to keep him and wanting him to just go now so his distress is over. It is a torment

GrannyLaine Fri 24-Jan-20 19:39:25

Luckygirl I'm so sorry for the situation you find yourself in and hope that you can find some peace and comfort in the hours and days ahead. May God be with you both xx

harrigran Fri 24-Jan-20 19:37:57

My heart goes out to you, it is distressing for you, God grant you the strength to carry on.

Lona Fri 24-Jan-20 19:33:25

Luckygirl, so sad for you all, you've done everything you can, and I hope the end is peaceful and swift for all your sakes. flowers

nanaK54 Fri 24-Jan-20 19:28:38

I'm so sorry, sending kindest thoughts flowers

Ilovecheese Fri 24-Jan-20 18:42:51

So sorry Luckygirl

Nico97 Fri 24-Jan-20 18:39:48

flowers flowers

Hetty58 Fri 24-Jan-20 18:30:26

Lucky (from experience) it may be that you have to tell him that it's OK to give up the struggle. Say that your daughters will look after you and he doesn't have to worry now. Sometimes, people really need 'permission' to go.

Liz46 Fri 24-Jan-20 18:30:14

Thinking of you Lucky.

Septimia Fri 24-Jan-20 18:24:41

Really sorry to hear this, especially since you've had such a struggle. Will be keeping you in my thoughts and prayers.

Riverwalk Fri 24-Jan-20 18:19:59

Lucky if he's in distress they need to commence those end of life medications now, particularly the anxiolytic drug, Midazolam.

MawB Fri 24-Jan-20 18:10:42

There is no easy solution to your torment except to think that you love him enough to let him go. ?
I do know much of what you must be feeling, but in hindsight, much as I would give my right arm to have Paw back again, it would be totally wrong to wish more hours and days of pain and suffering on him.
Take this opportunity for anybody who needs to see him, to visit. Be there with your daughters and if there is one positive to take from this, it is the chance to tell him you love him and to say goodbye. If he slips away in the arms of those who love him best, that is a privilege many of us would wish for.
A hard hard time for you ?

midgey Fri 24-Jan-20 18:09:50

Thinking about you both. flowers

Squiffy Fri 24-Jan-20 18:07:33

Lucky This must be torture for both of you. I'm so sorry. I know how torn you must be feeling. I hope his team will be able to alleviate his distress, which will make you feel better too.

MissAdventure Fri 24-Jan-20 18:06:53

I think everyone on here, and no doubt in real life too will be thinking of you both, Luckygirl.
Strength and courage being wished for you. flowers

BBbevan Fri 24-Jan-20 18:05:44

Bless you both. I hope if and when your DH leaves you, it will be very peaceful for him .??

merlotgran Fri 24-Jan-20 18:03:10

So sorry to read this, Lucky. Witnessing someone you love unable to explain their distress is very hard.

There comes a point when you know there is nothing more you can do other than face the inevitable with as much courage as you can muster.

Sending love and best wishes.

dragonfly46 Fri 24-Jan-20 17:58:35

Lucky I am so sorry but know just how you feel. It is heartbreaking to see someone you love suffer ?

phoenix Fri 24-Jan-20 17:56:47

Thinking of you.

Iam64 Fri 24-Jan-20 17:55:30

Sorry to hear the latest development with your much loved husband Luckygirl. It's heartbreaking to be in this situation, my experience has been of good medical teams and I do hope that is what you have to support you at this time. Sending love to all of you x

love0c Fri 24-Jan-20 17:53:08

Luckgirl so dreadfully sorry for and your husband. What an absolutely heartbreaking situation for you to be in. I have no answer really. Maybe be guided by the doctor if you feel it is intolerable for your husband. Sending love and the warmest of wishes to you.

tanith Fri 24-Jan-20 17:52:43

flowers

Bathsheba Fri 24-Jan-20 17:44:39

Oh Luckygirl I am so desperately sorry for you, to be dealing with this after such a long and drawn out struggle to get the best care for your OH. But you can at least take comfort from the fact that you did succeed in that struggle. You found him a place in a home where he has been content, somewhere he was happy to move to.

My thoughts are with you both as you face this next trial. flowers

rafichagran Fri 24-Jan-20 17:42:57

So Sorry flowers

lavenderzen Fri 24-Jan-20 17:42:57

I am so sorry Luckygirl a dreadful time for you flowers

Esspee Fri 24-Jan-20 17:42:52

Been there so know how you feel. I hope your dear husband is spared more pain. Do feel free to discuss with the doctor your husband’s expressed wishes, and yours. It can influence decisions on medication. May you both find peace.
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