Gransnet forums

Health

Page 2 of 2 | First | Previous | Next | Last
| Flip | Customise |

Your experiences with Fibromyalgia

(29 Posts)
Add comment | Report
Scentia Wed 26-Feb-20 20:51:36

I have recently been diagnosed with Fibromyalgia and I was wondering if any others have it and what their life is like.
I have largely ignored my symptoms of pain for a while and it was only after my eyesight was compromised that I got looked at. I have had lots of tests over the past 6 weeks and this is the outcome.
I was under the impression (wrongly) that it was a psychosomatic condition and wasn’t a ‘real’ illness. I am therefore struggling to deal with this diagnosis and really would like to know what it is like, king term to live with it.

Myself, I have constant pain in many of my joints and over the last 2 years I have gone from running and walking ultra trail runs to struggling to walk 3 miles. I stumble and fall over, a lot and have days of dizziness that makes me feel drunk and nauseous. I feel really tired sometimes but still can’t get a good nights sleep. I am really feeling sorry for myself as my favourite thing in the world is to walk the hills and mountains and I can’t do that anymore. I am having to try out new ways to stay active and keep myself fit (or as fit as possible!)
What do others do to stay active.
Is there a list of self help things I can do to help myself. I would like any tips in natural ways of pain relief.
Will I deteriorate or can I get better? I will be seeing my GP tomorrow but I don’t know if he will have any answers for me.

Add comment | Report
OceanMama Sun 21-Jun-20 23:41:12

Want to add that starting the day with a warm shower helps. Soothes the muscles.

Add comment | Report
Corryanna Mon 22-Jun-20 15:41:17

Scentia, I can absolutely understand how you are feeling and your disappointment about walking + cycling. 9 years ago DH and I walked the West Highland Way over 7 days! We have done many long distance walks over the years and now I will never be able to do that again as I can't even walk along our flatish street to church.
It was my birthday last week and DH bought me a new Kindle. I have been trying to buy a new cover for it for last 90 mins - ridiculous! I've been nodding off and it's so annoying! In the morning my vision was awful and although I could ignore the dusty corners, it's no laughing matter.
I'm frightened of going to GP. Do I tell him what my symptons are without mentioning fibromyalgia? (I don't like telling him how to do his job!) or just make a list of my problems and let him read it? I cry so easily and just want to go to sleep and never wake up. I have everything family-wise to live for, no real money worries in the great scheme of things but I'm such a changed person from who my husband married, he'd be better off with a fitter and more interesting partner. Sorry to sound so sad sad life just sucks sometimes.

Add comment | Report
paddyanne Mon 22-Jun-20 17:13:56

you sound like my daughter ,who tells me if she didn't have her children to consider she would walk into the river .Thats awful to hear when theres absolutely nothing I wouldn't do to make things better for her .Speak to your GP who may be able to help with ant depressants for now until you get a proper diagnosis and then you can take it from there .They might be able to help with individual symptoms that will make a difference even if it doesn't cure you.My daughter is using CBD oil and has some success with it and an Acti Patch helps with some pain issues .Stay strong I'm sure your husband just like my SIL loves you regardless of your health problems .

Page 2 of 2 | First | Previous | Next | Last
| Flip | Customise |