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Your experiences with Fibromyalgia

(28 Posts)
Marydoll Wed 26-Feb-20 21:02:07

Scentia, glad to see you took the plunge and posted. Good luck!

Scentia Wed 26-Feb-20 20:53:07

*not sure where the ‘king term’ phrase came from!

Scentia Wed 26-Feb-20 20:51:36

I have recently been diagnosed with Fibromyalgia and I was wondering if any others have it and what their life is like.
I have largely ignored my symptoms of pain for a while and it was only after my eyesight was compromised that I got looked at. I have had lots of tests over the past 6 weeks and this is the outcome.
I was under the impression (wrongly) that it was a psychosomatic condition and wasn’t a ‘real’ illness. I am therefore struggling to deal with this diagnosis and really would like to know what it is like, king term to live with it.

Myself, I have constant pain in many of my joints and over the last 2 years I have gone from running and walking ultra trail runs to struggling to walk 3 miles. I stumble and fall over, a lot and have days of dizziness that makes me feel drunk and nauseous. I feel really tired sometimes but still can’t get a good nights sleep. I am really feeling sorry for myself as my favourite thing in the world is to walk the hills and mountains and I can’t do that anymore. I am having to try out new ways to stay active and keep myself fit (or as fit as possible!)
What do others do to stay active.
Is there a list of self help things I can do to help myself. I would like any tips in natural ways of pain relief.
Will I deteriorate or can I get better? I will be seeing my GP tomorrow but I don’t know if he will have any answers for me.