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Factor V Leiden

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lizzyb Tue 12-Jan-21 10:51:23

Does anyone else carry this gene? Didn’t know I had it myself till about 5 years ago - it can cause blood clots. It seems to be passed down through the female line so I would have got this through my Mum (who never knew she had it!). Have never had a clot myself but knowing that I carry it I can protect against clotting when necessary (like long haul flights, for example). Anyone else with it?

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Ramblingrose22 Tue 12-Jan-21 10:58:31

My DH has suffered blood clots for years ad is on warfarin for life.

Is Factor V Leiden a new discovery?

If he inherited it would be from his father's side. His mother has never had a blood clot in her life and she has been very immobile for the past 10 years.

However no-one else on his father's side has ever suffered blood clots so it's likely that it's just his bad luck.

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lizzyb Tue 12-Jan-21 12:25:57

Ramblingrose22 - I don’t know how ‘new’ Leiden is ... I was tested for Thrombillia too which also can be hereditary and is more serious than Leiden.

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Ramblingrose22 Tue 12-Jan-21 14:44:39

lizzyb - do you mean thrombophillia?

I am hoping that it's not hereditary as our DS's could be affected. Taking blood thinners restricts what other medications you can take but obviously that's better than dying of a blood clot.

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Gossamerbeynon1945 Tue 12-Jan-21 15:08:59

I have the opposite, inherited from my father, who had severe Haemophilia B. I have low clotting factor of 28%, should be between 50 and 100. I am on the Rare Disease Register. I can't take NSAIDs and have to be very careful with any drug I am given. Before any medical procedure I have to be given replacement "clotting factor".

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